Question about my CMT

[Guest guest]

Augold,

People with CMT do not " routinely " develop breathing problems;

however, in some people with CMT, the phrenic nerve can be affected,

and this is where the problem lies.

Very difficult to explain why CMT progresses in some so quickly, and

in others very slowly. Matter of fact, I haven't had an explanation

for that, except for " CMT progression varies with each individual as

related to the individual's own unique genetic code " . Progression is also going

to depend on the condition of the nerve and it's relation to the muscle. Here

again, genetics comes in. Demylenating CMT (as in Type 1) involves the myelin

'wrapping' around the nerve. Axonal CMT (Type 2) involves the inside nerve

itself, and there can be fewer nerves firing. Read through this

http://lindacrabtree.com/cmtnews/Nervous%20systems/CMT%20and%20the%20%20Peripher\

al%20Nervous%20System.htm

" Stress " is known to 'aggravate' CMT symptoms. However, some people

manage stress better than others, or vice versa. I recently heard the

best definition of stress from Wayne Dyer: " The world does not create

stress. Stress is created from an event or situation in which an individual

finds she/hecannot control. " Sure gave me lots to think about.

Try these links for breathing, stress, vocal cords. When I find what

I'm looking for on progression, I'll send it on. You might also go

through the articles in the HNF site - I think there were some on

Breathing, Stress, maybe vocal cords too http://hnf-cure.org

http://lindacrabtree.com/cmtnews/breathing/breathingsubtitles.html

http://lindacrabtree.com/cmtnews/Stress/Stresssubtitles.html

http://lindacrabtree.com/cmtnews/Vocal%20Cord%

20Paralysis/subtitles.html