Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 Lenka, Just read your story. You're writing style is interesting, very lyrical, poetic. And I hope you DO get some good press out of it. One question - you state: " In fact, the largest percentage of people in the Muscular Dystrophy Association are diagnosed with CMT. " Lenka, can you get me a reference for that please? (I mean other than the MDA site) I'd like to challenge this - because, IF this is true, then WHY is MDA focusing their research on MD and ALS and why is the MDA CMT research budget only $5 million for 3 years (this budget info came to me from a question I asked Bob in the PR office at MDA last year) Also you say " Unlike the other forms of Muscular Dystrophy... " I feel the need to clarify CMT is NOT a form of MD. See Greg 's explanation of MD, MS and CMT in the next post. (I have it in our Files too for anyone who needs to refer to it) Keep writing and definitely hold those changes sacred. I feel each part of our lives are sacred and deserve to be honored. ~ Gretchen Quote Link to comment Share on other sites More sharing options...
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