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Lenka's story

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Guest guest
Posted

Gretchen,

I've stayed up waaayy too late trying to retrace my steps through

that research. I may figure out overnight. I went to a lot of

different sources to write that, and I should have kept notes for

myself :). Oh, well.

I'll read the post that you suggested, as well. Til then, I took

all the references to the MDA out of the essay. Want to make sure

I'm legit :)

Take care, Lenka

Guest guest
Posted

Lenka,

CMT is one of 40 (or more maybe by this time) neuromuscular disorders

that is 'covered' under the umbrella of MDA. It has been this way for

years - I mean like back in the 1960's or so. Go back to my post

yesterday for the entire list. So many are 'not like' others, but they

all do fit into the 'neuromuscular category' as per MDA. And yet, in

many, there are balance problems, walking problems, sometimes tremors,

etc. Those 'symptoms' can be part of everything 'neurological,

neuromuscular', but does not mean disorders/diseases/syndromes

are " alike " .

I have found quite a bit of old information on the MDA site, so you

might want to check with the main office in Tucson for updated CMT

information.

~ Gretchen

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