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Am I crazy?

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Posted

Hi Mom,

It could be stress aggravating your CMT.

Have you tried any Vitamin C yet?

Posted

No, Mom, you are not crazy! If anything, you may just be more aware of

symptoms now, since you have joined the group and are just

understanding how diverse CMT symptoms can be. Add to that you have all

the children and you may perhaps be a bit stressed out with your recent

diagnosis, the children, life in general.

Stress itself is known to exacerbate CMT symptoms. I will go find

something on stress and post soon. (meant to do this for Elaina too)

~ Gretchen

Posted

Did your doctor give you any new meds? 'Cause Topomax, which is supposed to

help nerve pain, increased all my symptoms 10-fold. It always takes me a while

to figure out that it's the medicine that is the problem :)

Posted

you aren;'t crazy. I think that since you now have a diagnosis you are

probably just more aware of the pain that was already there. that is just my

opinion and opinions are like noses everybody hs one. keep smiling! it makes

people

wonder what you have been up too. Cathleen in Arkansas

Posted

Well, if you are crazy that makes both of us crazy because the same thing

happened to me. I always had the numbness, pain, and weakness, but it wasn't

until after I was diagnosed that the symptoms got worse. I also thought it may

have been from intravenous immunoglobulin (IVIg) treatment. I received several

treatments of this product because the dr. initially thought that I had Chronic

Inflammatory Demyelinating Polyneuropathy or CIDP. Anyway...I'm Ok,,,You're Ok.

  • 2 years later...
Guest guest
Posted

I am so very sorry you lost your boyfriend. You emailed me the other

day. May I ask what did they say was the reason for his death. Did

they do an autopsy. I can't imagine your dispair, it is bad enough to

get sick but to have someone pass away because of mold is terrible.

Bless you. I wonder if anyone has talked to the lawyers that are

working on that judge's case that died in Miami. Actually my mom

knows his brother. She didn't realize it at first when I sent her

the article about the judge but later realized the judge was related

to someone she knew. I think they had another death in the family so

she was waiting a while to give her condolences.

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