Guest guest Posted April 13, 2006 Report Posted April 13, 2006 My wife signed me up about 6 mos. ago for this group, and then she read it and finally got me to. I have tried to send over my intro 3 times, but I made the letter too long and got kicked off the computer. My computer skills are still back in the mid 90s and I type 165 words. Unfortunately that's per hour, not minute Ha Ha. Was diagnosed with CMT1A at @ age 50 although I've had ups and downs my whole life, a long story for another day. I am starting to wooble when I walk, am losing hand strength and coordination and have the whole gammet of pain: shooting,sharp,electrical, burning, numbness did I leave any out! Mostly in my ankles, feet and lately shins. I'm now 55, still working full time as a car and truck salesman, I do fall more than avg. when out on an icy lot,and am very active. I fish off the shore, although its getting harder to walk over rocks. Last week I went snowboarding at Wildcat mtn. in N.H. Its almost easier than walking besause you have these big stiff boots almost up to you knees, and then you are strapped into the board with bindings, so you don't need strong ankles, you move with your whole body, like surfing. I could go on for a new record for longest intro letter, but I want this to get sent over this time. Gretchen, your holiday greeting inspired me, I am singing in my church choir on Fri. and Sun. and playing with the Handbell choir on Sun. the latter is a challenge with CMT! Easter is very special to me too. I loved your Christmas greeting too, although you left out the second half of Desiderata. I love you too Gretchen, you are very special, and do so much! If my wife throws me out, I'll apply for the job of rubbing your feet.Happy Easter and GOD BLESS to all more later. Quote
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