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Posted

Greetings!

I am a 33 year old mom of a two year old. I've had CMT my whole

life (late walker, high arches, delayed milestones) but it was

pretty mild until last year, when I started having numbness through

my hands and arthritis in my arches. I've had chronic pain in my

high arches for the past seven months. It's been quite a roller

coaster. I teach second grade full time. I'm trying to get

disability now because it is getting so hard to keep up with

everyday life. Insurance just approved genetic testing so I can

find out what kind of CMT I have. My two year old is a beautiful

little girl who isn't showing any signs of CMT. I look forward to

getting to know you.

Any suggestions for the pain? I started anti-depressants in

December. I also have provigil for the fatigue. But I'm looking

for options to help. Ideas?

I see a surgeon next month for possible options but I'm not certain

that surgery wouldn't have more side-effects than solutions. I'm

just going for a consult.

Thanks,

Lenka

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