Guest guest Posted March 8, 2006 Report Posted March 8, 2006 Gretchen, Unfortunately, I think I got the percentage information from the MDA site, but I'm not tracking it down now, so I will have to quest for it or take it out if I can't verify where I found the information. I'll keep you posted The information connecting CMT to MD is from charcot-marie- tooth.org. They write in their about CMT page: CMT is one of the 40 diseases covered by the MDA, but unlike muscular dystrophy, in which the defect is in the muscles, CMT is a disorder in which the defect is in the nerves that control the muscles. I will try to make it more clear that CMT is not a form of MD, though I am confused. What is the connection, then? Why is CMT covered by the MDA if it isn't " like " the other diseases covered by MDA? I would like to know, as I speak to people, because I don't want to spread misinformation, and I know you have been involved with this type of research for a long time. I do honor us as having our own challenges. I'm trying to make sense of it myself. Thanks for your feedback, Lenka Quote
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