Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 Gretchen, Unfortunately, I think I got the percentage information from the MDA site, but I'm not tracking it down now, so I will have to quest for it or take it out if I can't verify where I found the information. I'll keep you posted The information connecting CMT to MD is from charcot-marie- tooth.org. They write in their about CMT page: CMT is one of the 40 diseases covered by the MDA, but unlike muscular dystrophy, in which the defect is in the muscles, CMT is a disorder in which the defect is in the nerves that control the muscles. I will try to make it more clear that CMT is not a form of MD, though I am confused. What is the connection, then? Why is CMT covered by the MDA if it isn't " like " the other diseases covered by MDA? I would like to know, as I speak to people, because I don't want to spread misinformation, and I know you have been involved with this type of research for a long time. I do honor us as having our own challenges. I'm trying to make sense of it myself. Thanks for your feedback, Lenka Quote Link to comment Share on other sites More sharing options...
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