Guest guest Posted January 28, 2006 Report Posted January 28, 2006 Well, I went to the neurogolist today they said I didn't have MS, diabetes and all blood work came back well. They told me I have axonal neuropathy and they said it is the outside of the nerve. I'm trying to find out more information on it. Is it still a type of CMT or something different? Do you know where the best place to find out information on it would be? Thanks so much Gretchen. . Bobbie Quote
Guest guest Posted January 28, 2006 Report Posted January 28, 2006 Yes, - well, of course, Gretchen said it better .....! DB GfijiG6@... wrote: Yes, CMT Type 2 is an axonal neuropathy. Axonal refers to what's inside the nerve - as opposed to demylenating neuropathy, which is more what CMT Type 1 is about, where the myelin wrapping around the nerve is affected. Besides axonal CMT, there are other " axonal neuropathies " , also immune related ones that are different than CMT. ~ Gretchen Quote
Guest guest Posted January 28, 2006 Report Posted January 28, 2006 Thank you, it seems that the dr's want to keep me on my toes learning all this new stuff. > Yes, - well, of course, Gretchen said it better .....! DB > > GfijiG6@... wrote: > > Yes, CMT Type 2 is an axonal neuropathy. Axonal refers to what's inside > the nerve - as opposed to demylenating neuropathy, which is more what > CMT Type 1 is about, where the myelin wrapping around the nerve is > affected. > > Besides axonal CMT, there are other " axonal neuropathies " , also immune related > ones that are different than CMT. > > ~ Gretchen > > > > > > > > > > > > > Quote
Guest guest Posted January 28, 2006 Report Posted January 28, 2006 Thank you so much. You always seemed to have such great wisdom on everything. > Bobbie, > > This link is for some of the CHRONIC IMMUNE Axonal POLYNEUROPATHIES: > AXONAL. > > http://www.neuro.wustl.edu/neuromuscular/antibody/pnimax.html > > You may wish to do research on your own on this. A good search engine > is http://dogpile.com > > ~ Gretchen > > > > > > > > > > > Quote
Guest guest Posted January 28, 2006 Report Posted January 28, 2006 http://www.mda.org I wish Gretchen would do a survey to see if all our members here are MDA patients to get MDA perks and care, etc. It is one of the how every many varieties of C-M-T, but it is the actual nerve not the sheath casing around the nerve. (as far as I know as I've got that as well) Donna B. Quote
Guest guest Posted January 30, 2006 Report Posted January 30, 2006 > > Yes, CMT Type 2 is an axonal neuropathy. Axonal refers to what's inside > the nerve - as opposed to demylenating neuropathy, which is more what > CMT Type 1 is about, where the myelin wrapping around the nerve is > affected. > > Besides axonal CMT, there are other " axonal neuropathies " , also immune related ones that are different than CMT. > > ~ Gretchen >hello everyone, much to my surprise you are all talking about something very interesting. As it works out i also have (cmt) are we talking about charcote marie tooth? If so then i would like to let you all in on a new finding. This is rare enough that only 4 families in the world have it. They have not finished the 3 yr study but there is a type 3 , one that affects both the mylen and the nerve. My family is one of the 4. For us its a disruption in the nerve connection to the brain. no connection leads to no function, (atrophy).Take care all underwater. Quote
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