Guest guest Posted January 19, 2006 Report Posted January 19, 2006 Hi , I don't have the information or the pictures anymore, they were just photo copies out of a medical journal. Have you see a neurologist? I think its a pretty well known fact that CMT can effect your face muscles. Well now by neurologist anyway, lol... I have known CMT can effect your face for almost as long as I have had CMT. My neurologist used to check me for it all the time. Do you know what sub type of CMT you have? Quote
Guest guest Posted January 20, 2006 Report Posted January 20, 2006 I have 1A and have always assumed this numbness was because of the CMT and never worried about it but TWO neurologists (one with MDA) both scratched their heads and said hmmm, I guess it's possible it could be from the CMT but it's not really probable. They made it sound like it would be a rarity. It is just so frustrating to find out how little doctors actually do know about us! Quote
Guest guest Posted January 20, 2006 Report Posted January 20, 2006 I wish I had that paper still. I was taking to a nurse at my dermatologist office not long ago. She also has CMT. Anyway I asked her about botox, she even said something about CMT and face muscles. She advised against botox for that reason. I do wonder if it (CMT) is so rare that it is not being taught in medical school anymore and is less published? Could that be?? Next time I see the doctor I will ask for more copies. The book is at his office. Quote
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