My Introduction

[Guest guest]

Hi...My name is Kathy B. I am 35 and a mother of 4 beautiful children. I found

out that I had CMT at age 6. I was very clumbsy when I was little and my mother

was worried about me. My father had CMT, so she wanted to have me tested to see

if I did too. At that time they really didn't know much about CMT so I wasn't

told alot about it. It wasn't until I was about 27 that I started experiencing

numbess in my legs, trouble holding onto things, and the lose of feeling in my

legs sometimes. I went to see a neurologist and found out tons of information

that I didn't know. I decided to have my children tested only because of their

difficulties with ankle sprains and fine motor skills. I had a blood test done

on each of them and 3 of my 4 children have CMT as well. My children and I are

active in volunteering to help raise money for MDA and this is the 2nd year my

children went to MDA camp. They just love camp and all the great children they

meet. It's very refreshing to know that their

is a support group out there that if you need advice or just someone to talk

to, that it is there for you.