Guest guest Posted February 2, 2006 Report Posted February 2, 2006 Hello Gretchen, and group. I recently found out that the CMT group in our area was choosing not to give out certain information that could help people with CMT. I find this appalling that they made the choices they did including not giving us sites that could help... because they didn't like them...including . I am sending a letter I sent to our local MDA in hopes others will contact their local MDA and ask them to add these site. Portland, Oregon MDA To whom it may concern: Hello, I have Charcot Marie Tooth disease. I have found two sites that have helped me so much. my only regret is that I didn't find the sites sooner. I was in a wheelchair, but will walk again because of the Helios braces made in Las Vegas. I also have joined a forum at, . In this forum are approx 1500 people with CMT from around the world. The leader Gretchen, and all the people in the group are so helpful and inspiring! My goal is to help as many people as I can with CMT. I hope by letting you know this information. you can add it to your broachers and web page. Thank you. Warm Regards, Kay More information on Helios braces: Website http://www.ORDesignsLV.com 2578 Belcastro Street Suite 101 Las Vegas, Nevada 89117 Phone 702 - 388 - 9909 TOLL FREE PHONE 888 - 696 - 9909 Fax 702 - 388 - 9929 Quote
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