Re: I'm really confused now!

January 10, 2006

Jolene,

Remember that there are over 40 types/subtypes of CMT. I had the full DNA

testing done, which all came back negative, but was diagnosed with a good

neurologist, medical and family history, and the dreaded EMG testing. You may

have

a type of CMT that has just not been named or verified yet.

Hang in there!

Elaina.

January 10, 2006

Hi Jolene,

I hope we can continue to be a support to you. Your head must be spinning from

your news.

January 11, 2006

Hi Jolene.

I feel confusion is part of the game. You didn't say in you letter if you were

checked for all CMT types. My first genetic test showed negative but I was only

checked for Type 1 at that time. The next test I was checked for Type II and

showed positive at that time. So maybe a diagnosis is still waiting on you.

Wade

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