My Introduction

[Guest guest]

Hi, my name is . My daughter's name is , she is 2 years old ( will

be 3 in March ). I'm not sure but I believe she has the early signs of CMT.

My older sister has it along with many other family members. Not to sure about

myself, but I'm more concerned with my daughter.

She has been having pain in her ankles for more than 6 months now. At first I

pushed it off as growing pains, just like her older brother had, but we have now

ruled that out, because this has been going on for over six months, and it's at

least five times a week. She wakes up in the middle of the night crying and

holding her ankles, (more the left one than the right).

She begs for me to rub them, and while I'm rubbing them her ankles crack and

grind, and their so stiff I can hardly get them to move up and down. After

rubbing them for awhile they loosen up and then she falls back to sleep. She

also has these spells during the day, but mostly at night.

I took her to the doctor,for this but they keep telling me that it's nothing to

worry about and that she will grow out of it. The last doctor told me that she

was just wanting attention. My daughter loves her sleep, and she hates to be

woke up,and when I told the doctor that he more or less said that there was

nothing he could do.

He didn't even touch her legs or anything. I was so angry when I left his

office.

I'm looking for answers. I'm hoping someone can help me to see if my daughter

has CMT,or if it's something else. This is truly hurting her, and if these

spells would only happen when the doctors were around they would see the pain in

her little face too.

Thank you for listening, and any suggestions are truly welcome.