Guest guest Posted February 2, 2006 Report Posted February 2, 2006 I always thought I was just weird, but my reflexes come and go. Sometimes I have them and others I dont. I go to the MDA clinic in March so we will see what happens. Last time I had the reflexes the doctor told me I can't have CMT because I do have reflexes. I don't think he knew much about CMT. Jen Quote
Guest guest Posted February 2, 2006 Report Posted February 2, 2006 Me too Gretchen.As a kid my reflexes were almost nonexistant.As an adult I have them in my arms and legs! Go figure. Barb Quote
Guest guest Posted February 3, 2006 Report Posted February 3, 2006 Gretchen, Have you been taking Vitamin C? Penny Quote
Guest guest Posted February 3, 2006 Report Posted February 3, 2006 Good news Gretchen! No reflexes here. Well last time they were checked a had a little reflex. I think it was because I was watching and anticipated the hammer. Quote
Guest guest Posted February 3, 2006 Report Posted February 3, 2006 Hello, This has happened to me as well. I was diagnosed with Dejardine Sotas syndrome when I was three years old which was later rediagnosed to CMT when I was about 12. I am now 45. Never in my life had I ever experienced reflexes in my legs or arms. About two years ago I went to see a doc for a yearly check up and he checked my leg reflex and I couldn't belive it - my leg actually moved by itself! I was actually a bit spooked by it because I had never experienced anything like it in my life. It took me totally by surprise. My doc didn't seem to think it was anything out of the ordinary. When I told him that I had never shown reflexes before he told me that the other docs probably just didn't do it right. I have to say that my faith in doctors is not very strong. The reflexes do not seem to show that my CMT is perhaps subsiding though. Lately the numbness in my legs and feet is stonger than it ever has been and the muscles are atropying quite rapidly. No complaints though. My life is full and CMT is a relitively minor condition compared to many others that are out there like MS, ASL, MD, and so many others... Just my thoughts.. Cheers! Jeff Quote
Guest guest Posted February 3, 2006 Report Posted February 3, 2006 I have reflexes on " good " days and none on " bad " days. Actually, I'm not sure it even relates to good or bad days... They come and go. Doctors like to say 'well, you're not too bad because you still have reflexes' but I don't think the two things correlate -- especially since they come and go Quote
Guest guest Posted February 4, 2006 Report Posted February 4, 2006 Gretchen, Multiple Sclerosis causes strong reflexes. My brother who has CMT has very strong reflexes because he also has the MS. Did your doctor suggest a reason? I'm surprised that you haven't had your reflexes tested since 2001. My docs seem to love to check mine on each visit. Quote
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