Re: welcome /children with CMT

February 9, 2006

Hi ,

At 2 years old I was sure my son Jase had CMT. He is 9 now and CMT free. It

could just be her age. Do you want to go take her in for testing?

March 1, 2006

Welcome ,

I know how scarry the uncertainty of what the future can hold for your children,

bring diagnosed at such young ages. We also went through 1.5 years of testing

and specialist to diagnose our 3 year old with CMT type uncertain at this point.

was finnally able to progess and meet milestones with support devices

(DAFOs).

With therapy he now is able to climp stairs with railing support and kick a

ball. It has been a very challenging year but he has made alot of progress and

has seamed to plataue at this time. We continue to work with him to help him

gain strenghth. I hope your daughter with assistance can reach these milestones

too. This group has been very helpful for me. I hope you find the support you

need.

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