finding an orthotist

[Guest guest]

In a message dated 2/27/2006 5:33:42 P.M. Pacific Standard Time,

elaineangel54@... writes:

Are they all different? I just want someone that really knows about CMT and

what is best for me.

I have seen six orthotists with my kids.

Questions I ask now are:

How many CMT patients do you have?

The orthotist that we use now has several CMT families that he sees. He

really understands the CMT gait. He admits that it is hard to make a perfect

AFOS

for CMTers because we are all so different.

I also ask if they make their own AFOS and do their own modifications on

site.

For Adam I ask what type of plastic they use because he is so hard on them

he cracks or shatters the plastic that cascade uses.

I think now we finally have it right now!

Good luck

[Guest guest]

Hi Kim, Jen and all,

I am making myself the first appointment with an orthotist and I am reading all

I can from all of you so I will know what questions to ask. Do you find one the

first time you go? Are they all different? I just want someone that really

knows about CMT and what is best for me.

I was out walking in the neighborhood tonight and I really enjoy that, I just

have to be really careful not to trip over myself due to my drop foot. Thanks

for all the encouragment. I will keep you all posted.

Elaine

[Guest guest]

There are differences in orthotists. I would hope he or she would show you the

different types of orthosis that you can use both plastic and metal. Too many

only want to make plastic AFOs and not tell their patients about the metal ones.

I prefer the metal ones and feel that they are much more comfortable. Either

type will work for CMT. You will be limited more in the types of shoes you can

wear with the plastic ones than the metal ones contrary to what some orthotists

will tell you. Plus there are the issues of the plastic ones rubbing your skin

and heels.

Be sure to get a brace with an ankle joint if at all possible. The worst plastic

braces I ever had where rigid without ankle joints.

Hope this helps. Remember you are the customer and the orthotist should be there

to help and please you.

Bob