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Posted

Hi, my name is and I'm a single mother of 3 beautiful children, 2 of which

have CMT type 3 (Dejerine-Sottas Syndrome) I joined this group to get personal

experiences and share mine.There is a lot of helpful resources on the net, but

it's not the same as talking to someone who has " BEEN THERE - DONE THAT "

I'm new at this, my children were just recently diagnosed, they are 3 and 6

years old. Is there anyone who I can correspond with that has children suffering

with CMT? Or someone that has had it from a very young age?

Thank You

LISA

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