What can I expect in the years to come?

[Guest guest]

Hi, I am very new to this disease. I'm a mom of three children and two

of them were diagnosed with CMT type 3. My Daughter is in casts right

now and has been for 6 weeks. She had surgery on her tendons in her

heels, to get her foot out of the " ballarina " position. Before that

she had a muscle/nerve biopsy.After, two LONG years of doctors

appointments, physio, seeing 12 specialists etc.....I finally know

what they have.My daughter is three and has NEVER took a step unaided

in her life. She can't even stand by herself. My six year old son on

the other hand can walk, jump all the fun stuff that little boys do.I

need to correspond with people like myself, that are dealing with

this, that has " BEEN THERE,DONE IT "

thanks

LISA