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Re: welcome Carri

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Posted

Hi Carri,

Nice to meet you. I was just complaining about the cold here in

California then you pop in from Alaska. I take back my complaints. LOL

Posted

Hi ,

I too have been pretty active,I do horseback riding and bike riding. I also

still working full-time. Like you, I have kept my CMT to myself, and have also

been in a state of denial, I have had CMT since I was young. I figured as long

as I have " leg muscles and am still able to be active " I am OK. Just recently I

have had to accept that I have started to become progressively worse, especially

with fatigue, sensory nerve damage and muscle spasms, and falling. MDA chat,

CMT, support and have helped me so much as far as becoming more educated

on CMT, and having the most kindest and understanding people to discuss our

concerns with, and a great way to make friends!

Welcome,

from Minnesota

Posted

Hello Carri;

My name is Dennis, Welcome to . Yes, you do sound like your out of place,

since your not experincing the heavier symptoms of a CMT diagnosis. What caught

my attention...was your last name...SATTERSWAITE. I grew up with a girl with

that name, and in my opinion, its not a common name. I grew up in Auburn, WA.

Seeing that I am an older person...65, my memory isn't as sharp as it once was;

but I think her name was either...Elizibeth or Vicky. She was an absolute eye

catcher ! So, do you know if your hubbies family came from Auburn, Washinton?

And if vicky or lizzy, is still around, and what she is doing? My reason for

asking is just so I can catch up with her in timeline. Cause I am a happily

married man of 27 yrs, on this second time around. So my reason is purely

social.

I was a tall, skinny kid, always in trouble with the Church folks. Elizebeth,

was the kind of girl that all good LDS boys would dream of. She was, in my

mind...PURE. She also had several brothers, and there names escape me at this

writing. But, JIMMY is a name that keeps popping into my gray matter while I am

writing this note. Can you help me here?

Sincerely,

Dennis, one of the CMT flock

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