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I need Patience

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Hi everyone,

A quick update. The rituxan is starting to wear off and pain and stiffness is

starting to increase again. I am supposed to be starting a new drug, but I am to

contact my Rheumy. I called up to the U of M (that is University of Michigan)

on Tuesday, and I still haven't heard back from the new fellow that has taken my

case. The fellow that I had before completed her fellowship and is now

practicing in Lansing, MI. I would have loved to have followed her (she was

wonderful) but insurance won't let me. It is amazing they allow me to go to the

U of M. Please pray that I will have patience as this new fellow(yes they are

doctors they are completing the last step to make them a specialist) learns my

case and gets back to me so I can try this new drug.

I do have good news. On Tuesday my counselor released me from further

counseling, saying there is nothing more they can teach me about dealing with

stress and anxiety. Actually both my counselor and I thought it was somewhat

ridiculus to send me to counseling in the first place. The only thing they did

was write down the coping skills, I already use when in a panic attack, on a

notecard for me to carry in case I need reminding of what I am suppose to do

when in a panic attack. The counceling was to satisfy my neurologist orders. My

lawyer that is handling my SSI case told me I must follow every suggested

treatment from all my doctors for SSI to consider me disabled. Otherwise as we

all know they will deny me for something very stupid. You might want to pray for

peace and patience for me as right now I am also very frustrated with the

government and Social Security in general. Applying for disability is a

nightmare.

Also I don't think I e-mailed the group about my Panic attack last Sunday.

This is what happened. When I woke up Sunday morning I was in the middle of a

full fledge Panic Attack. My muscles were so tense I could hardly move, and I

was having dificulty breathing. It took all of my strength to lift my hand 5

inches to get my cell phone and call my mom's cell for help. And once she

answered all I was able to say was Panic Attack - HELP! I am going to see my PCP

on Monday about this. What I know about panic attacks is that what happened to

me is a very rare occurance. My counselor even looked perplexed, she had never

heard of that happening to someone. Has anyone on here ever had this happen to

them? Anyway Ican just imagine what is going to happen next. Right now I am so

sick of Doctors and physical therapist. (Yes I am back in physical therapy

because I am having lots of tension and pain in my right shoulder blade to neck

and then to the shoulder joint. and my entire right

arm goes numb. I am losing strength and have trouble grasping stuff at times.

Not a good thing to happen when I am right side dominant.)

Ok sorry I needed to vent some of my frustrations that have occured this week.

And I do need some help remaining patient when I get frustrated.

I hope everyone has a good weekend. Go Bucks!

Fayette, OH

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