Guest guest Posted October 25, 2008 Report Share Posted October 25, 2008 I know Mike is the son with Aosd but what is your name?? Also, the second flare I had I had a very very itchy red rash on my arms. The first one, it was the typical lacey stills rash. I hope all gets better fast. Liz NJ diagnosed 1972 now no Stills symptoms, but osteoarthritis, sjogrens, fibromyalgia, raynauds... **************Play online games for FREE at Games.com! All of your favorites, no registration required and great graphics – check it out! (http://pr.atwola.com/promoclk/100000075x1211202682x1200689022/aol?redir= http://www.games.com?ncid=emlcntusgame00000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2008 Report Share Posted October 25, 2008 I know Mike is the son with Aosd but what is your name?? Also, the second flare I had I had a very very itchy red rash on my arms. The first one, it was the typical lacey stills rash. I hope all gets better fast. Liz NJ diagnosed 1972 now no Stills symptoms, but osteoarthritis, sjogrens, fibromyalgia, raynauds... **************Play online games for FREE at Games.com! All of your favorites, no registration required and great graphics – check it out! (http://pr.atwola.com/promoclk/100000075x1211202682x1200689022/aol?redir= http://www.games.com?ncid=emlcntusgame00000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2008 Report Share Posted October 25, 2008 I know Mike is the son with Aosd but what is your name?? Also, the second flare I had I had a very very itchy red rash on my arms. The first one, it was the typical lacey stills rash. I hope all gets better fast. Liz NJ diagnosed 1972 now no Stills symptoms, but osteoarthritis, sjogrens, fibromyalgia, raynauds... **************Play online games for FREE at Games.com! All of your favorites, no registration required and great graphics – check it out! (http://pr.atwola.com/promoclk/100000075x1211202682x1200689022/aol?redir= http://www.games.com?ncid=emlcntusgame00000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2008 Report Share Posted October 25, 2008 Hi Liz My name is . My son, Mike is married and his wife's name is Cath. We are all still so overwhelmed with the recent diagnosis of AOSD (just last week) that we are in a state of denial. I'm ready to learn what I can so we can know how to proceed. Right now, Mike and Cath think the Dr was wrong in his diagnosis due to the fact his rash was painful and itchy and as well because his ANA count is very high. Is there anyone else out there who has had a painful and itchy rash as well as a high ANA count? Mike also presents with: sore joints...especially his wrists and hands (he is a truck driver so this is particularly problematic); low blood pressure but high heart rate; enlarged lymph glands in his chest; enlarged liver; pericarditis; night sweats (but he thinks no temperature spikes? Not sure how you can have night sweats and then chills without a spike in your temperature but Mike says his temp doesn't go up...); black spot in front of his right eye from time to time; fatigue; no sexual ability (for 4 months at least now); sore or itchy throat (he seems to be constantly clearing his throat, ever so slightly, in the past few months); tiny tiny black dots at the end of his fingers and at his nail bed (this is particularly noteworthy as one specialist said it indicated lupus but when we went to the rhuemy he said AOSD); shortness of breath from time to time and a feeling of choking. Cath says Mike is feeling angry and upset about everything and is getting frustrated. The rash thing was particularly problematic when it first started as it was so incredibly painful yet itchy at the same time. He was referred to a dermatologist who prescribed a cortisone creme. The creme took care of the rash nicely and now Mike uses it only if it flares a bit. I saw him recently and it is very hard to see his old rash now...it is very faint and almost a light salmon color which seems to blend in with his skin tone a bit. And finally, he has lost 20 pounds or so...and he is about 6' 2 " and now weights about 165 lbs. He used to be extremely healthy and active but now can only manage to come home from work and fall asleep... Thanks, everyone. I know my son and if he finds others with the same problems as him and they have AOSD, he would join the group and start getting the support he needs. Right now he is in denial which is creating more stress and anger which is aggravating his condition (in my opinion). If he could lessen his stress level he could start to recover from this absolute nightmare. I know there is no cure for this condition...but there certainly seems to be effective strategies for managing it!! You are an awesome group and I don't know what I would have done had I not found you all. Thanks for your information and support. Re: Results.Mike and I know Mike is the son with Aosd but what is your name?? Also, the second flare I had I had a very very itchy red rash on my arms. The first one, it was the typical lacey stills rash. I hope all gets better fast. Liz NJ diagnosed 1972 now no Stills symptoms, but osteoarthritis, sjogrens, fibromyalgia, raynauds... **************Play online games for FREE at Games.com! All of your favorites, no registration required and great graphics – check it out! (http://pr.atwola.com/promoclk/100000075x1211202682x1200689022/aol?redir= http://www.games.com?ncid=emlcntusgame00000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2008 Report Share Posted October 25, 2008 Just so you know, my rash was only on my extremities (hands and feet) and was crimson red and exquisitly painful. Not the typical rash at all. So you see, we're all different. Take care and be well. Ellen Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.