Re: -Doctors

[Guest guest]

-

I am only on 10 mg of prednisone at the moment. But that could change anytime. I

have been trying to wean off 10mg for it seems forever, but I think it has been

at least 2 years. I get down to like 4mg and something happens and I have to go

right back up. Bummer!!!

That is good that you trust your Doctor and it means alot that he has other

Stills patients. It makes you feel like he knows what he is taking about when it

comes to medication, etc. You should of course always trust your Dr. That is

kinda what I was saying in an email to Mandi ( you might want to take a look at

it)

But you know what we all get different info from our Dr.s and our Dr.s have

their own way of doing things. And what works for him might not work for another

Dr's patient. So It is good that not all Dr think the same.

I live in Riverside County, which is pretty big, I am not sure what the

population is. But I actually go to Orange County to my Dr.s You probably have

heard of the OC. The are making TV shows about the city, considering it is right

by the beach.

The Rheumy that diagnosed me at UCLA had diagnosed 5 other cases in Stills. I

don't know over what period. If I lived closer I would definitely be going back

to her. She really knows what she is doing.

Yea that is a good idea to give the Dr. brochures about our support group to

give to the other Stills patients.

Well- Good luck on weaning off your prednisone.

Hope you having a painfree night.

Love and Support,

Keri in CA

Re: -splitting prednisone

Hi Keri, it is interesting. Maybe that's just how he wants me to handle it. I

got the impression that he felt that way in general. However, it does seem that

you'd want the least dose possible, doing the most it can to the body (therefore

splitting the doses would make sense). I think you're on a smaller dose than I

am aren't you? I'm on 27.5...heading down to 25 today. I don't know...I have

faith in my Dr. and will not split the doses for now. He's very young, but his

mentor was a Still's specialist.. and he really reads a lot and worries about my

case. So I'm sticking with him. That's incredible to me that your doctor also

has 3 other patients. Are you in a big town?

Cleveland Clinic only sees about 20 Still's patients a year...and they see them

from all over the nation.

Have you gotten to meet any of the other patients? I forgot to tell my Dr to

give the others here in SA my number in case they wanted to talk or get

together. It would be nice to have someone close by who understands. Well...I

sure am rambling this morning.

Better have some more coffee and clear the fog.

Have a great day!

in TX

[Guest guest]

-

I am only on 10 mg of prednisone at the moment. But that could change anytime. I

have been trying to wean off 10mg for it seems forever, but I think it has been

at least 2 years. I get down to like 4mg and something happens and I have to go

right back up. Bummer!!!

That is good that you trust your Doctor and it means alot that he has other

Stills patients. It makes you feel like he knows what he is taking about when it

comes to medication, etc. You should of course always trust your Dr. That is

kinda what I was saying in an email to Mandi ( you might want to take a look at

it)

But you know what we all get different info from our Dr.s and our Dr.s have

their own way of doing things. And what works for him might not work for another

Dr's patient. So It is good that not all Dr think the same.

I live in Riverside County, which is pretty big, I am not sure what the

population is. But I actually go to Orange County to my Dr.s You probably have

heard of the OC. The are making TV shows about the city, considering it is right

by the beach.

The Rheumy that diagnosed me at UCLA had diagnosed 5 other cases in Stills. I

don't know over what period. If I lived closer I would definitely be going back

to her. She really knows what she is doing.

Yea that is a good idea to give the Dr. brochures about our support group to

give to the other Stills patients.

Well- Good luck on weaning off your prednisone.

Hope you having a painfree night.

Love and Support,

Keri in CA

Re: -splitting prednisone

Hi Keri, it is interesting. Maybe that's just how he wants me to handle it. I

got the impression that he felt that way in general. However, it does seem that

you'd want the least dose possible, doing the most it can to the body (therefore

splitting the doses would make sense). I think you're on a smaller dose than I

am aren't you? I'm on 27.5...heading down to 25 today. I don't know...I have

faith in my Dr. and will not split the doses for now. He's very young, but his

mentor was a Still's specialist.. and he really reads a lot and worries about my

case. So I'm sticking with him. That's incredible to me that your doctor also

has 3 other patients. Are you in a big town?

Cleveland Clinic only sees about 20 Still's patients a year...and they see them

from all over the nation.

Have you gotten to meet any of the other patients? I forgot to tell my Dr to

give the others here in SA my number in case they wanted to talk or get

together. It would be nice to have someone close by who understands. Well...I

sure am rambling this morning.

Better have some more coffee and clear the fog.

Have a great day!

in TX

[Guest guest]

-

I am only on 10 mg of prednisone at the moment. But that could change anytime. I

have been trying to wean off 10mg for it seems forever, but I think it has been

at least 2 years. I get down to like 4mg and something happens and I have to go

right back up. Bummer!!!

That is good that you trust your Doctor and it means alot that he has other

Stills patients. It makes you feel like he knows what he is taking about when it

comes to medication, etc. You should of course always trust your Dr. That is

kinda what I was saying in an email to Mandi ( you might want to take a look at

it)

But you know what we all get different info from our Dr.s and our Dr.s have

their own way of doing things. And what works for him might not work for another

Dr's patient. So It is good that not all Dr think the same.

I live in Riverside County, which is pretty big, I am not sure what the

population is. But I actually go to Orange County to my Dr.s You probably have

heard of the OC. The are making TV shows about the city, considering it is right

by the beach.

The Rheumy that diagnosed me at UCLA had diagnosed 5 other cases in Stills. I

don't know over what period. If I lived closer I would definitely be going back

to her. She really knows what she is doing.

Yea that is a good idea to give the Dr. brochures about our support group to

give to the other Stills patients.

Well- Good luck on weaning off your prednisone.

Hope you having a painfree night.

Love and Support,

Keri in CA

Re: -splitting prednisone

Hi Keri, it is interesting. Maybe that's just how he wants me to handle it. I

got the impression that he felt that way in general. However, it does seem that

you'd want the least dose possible, doing the most it can to the body (therefore

splitting the doses would make sense). I think you're on a smaller dose than I

am aren't you? I'm on 27.5...heading down to 25 today. I don't know...I have

faith in my Dr. and will not split the doses for now. He's very young, but his

mentor was a Still's specialist.. and he really reads a lot and worries about my

case. So I'm sticking with him. That's incredible to me that your doctor also

has 3 other patients. Are you in a big town?

Cleveland Clinic only sees about 20 Still's patients a year...and they see them

from all over the nation.

Have you gotten to meet any of the other patients? I forgot to tell my Dr to

give the others here in SA my number in case they wanted to talk or get

together. It would be nice to have someone close by who understands. Well...I

sure am rambling this morning.

Better have some more coffee and clear the fog.

Have a great day!

in TX