Guest guest Posted October 18, 2006 Report Posted October 18, 2006 If you are reactive to mold and the impact is greater than " tolerable " why wait to seal off the bathroom? You will only continue the exposure, leaving yourself at risk. Seal it off now while you are awaiting the test results. Or - Seal it off and get a qualified professional to remove it according to EPA, ACGIH and S520 guidance and standards. Regardless of what kind of mold it is. Even if the mold (more likely multiple molds and bacteria) isn't a problem for you now you could become sensitized to it while you are waiting. No need to panic but there is also no need to wait. Carl Grimes Healthy Habitats LLC ----- > The pink mold that was growing in my school room was Fusarium. You do > not want Fusarium growing anywhere in your home. There are other > molds that can be pink also that aren't toxic like Fusarium can be. > It can produce T-2 toxin. This has completely destroyed my health. > If I were you, I would send it off to be tested. If it turns out to > be Fusarium, I would seal off the bathroom and not use it anymore. > If it's not Fusarium, it may not be as big of a problem. > > Kathyw > Quote
Guest guest Posted October 19, 2006 Report Posted October 19, 2006 Just for your information: I was exposed to a building long ago, & I had MOST of the symptoms you mention below....including near-paralysis, from my spinal cord being SO demyelinated (damaged) at my waist level. I was put on (I think) 100mg of IV steroids for about a week, to reduce the swelling and inflammation around my spinal CORD itself. (The diagnosis is acute transverse myelitis.) If it wasn't for the steroids AND months and months of physical " terrorists " (lol!!) I'd never have walked again.....and that's what this non-threatening (!!) mold did to me. I could tell you much more than this, but you don't have time to read all my info!!!!!!!!!! Take care, all, & God help us...... [] Re: Pink Mold > > Kathy, > > Do you remember what symptoms the Fusarium you mentioned here was > causing you? Were the primary symptoms severe skin burning, horrible > nausea, vomiting and diarrhea? Did fatigue, respiratory problems, > brain fog and chest pain come only after prolonged exposure? > > When I'm exposed to contaminated objects or people with contaminated > clothes, I ususally get these symptoms, so I suppose the toxin is T-2 > toxin and that it probably comes from Fusarium. If your experience is > similar to mine, I would have one more reason to belive that's so. > > > According to what I've read, toxins from Stachy first cause fatigue, > depression, memory problems, respiratory problems and chest pain in > higher doses. This can be attributed to Stachy's unique ability to > produce Satratoxin. > > On the other hand, Fusarium first causes severe nausea, diarrhea and > vomiting. Perhaps because it makes more of T-2 toxin than Stachy. > > Take a look at these explanations for T-2 toxin and Satratoxin in my > next message. There is a difference. While I don't doubt that > Satratoxin is devastating, I'd say that T-2 toxin is the highest > achievement of the devil himself. Once you feel it in a higher > concentration you're changed forever. > Yes, I have had most of these symptoms except vomiting. I had severe diarrhea in the spring of 2002 (had to get 2 IVs to replace fluids; I even developed bowel incontinence and had to wear depends for over a year. (This can also be due to vomitoxin which can also be produced by Fusarium.) Before that I had severe fatigue, the brain fog, chemical sensitivity, and sinus problems for several years, but was still able to work. Around 1998 I started coughing up dark brown junk and to this day don't know if it was bleeding from toxins or an actual infection, but it never completely went away until after I quit work in the fall of 2003. Around 1999 I developed PSVT (severe attacks of tachycardia that I had to have 2 ablations for) I had mild to moderate chest pain and the first endoscopy I had in around 1998 showed grade II esohagitis. I took proton pump inhibitors, but they didn;t help. The burning pain was tolerabe at that time .Also, in the late spring of 2002 I started washing the dark brown junk out of my sinuses. That summer I developed petechia on my arms . The school where I worked was closed down due to Stachybotrys being found airborne in several rooms in the fall of 2002. I know they tested my room, but the results were never found. There were pink spots on ceiling tiles above the right HVAC unit and on the wall and pink debris inside the unit. Later testing showed Fusarium in the unit. It was also growing in rotting algae on the flat roof that held water and leaked and also landed near my air intakes. Being a Biology teacher, I did my own testing at first and found the Fusarium. After we returned to work from the " remdiation " in the fall of 2002 they worked on the roof with us in school. Black debris fell from the ceiling and covered my computers. I had it tested and the predominant mold was Fusarium, 43,000 spores/swab. It was even higher than Cladosporium, which is much more common. I had never heard of Fusarium at that time. I kept getting sicker and sicker. I coughed up brown junk all winter and had to go on prednisone to get it coughed up. I was also on nebulized amphotericin B, an antifungal. I also started getting places on my arms that spontaneously bled and turned black. (I still get the red placeds, but they very seldom bleed anymore.) i was doing somewhat better over the summer and tapered off the prednisone, but within a month after starting back to work, I started coughing up clear sticky junk and also had it coming out of my head. My allergy doctor did a hyypersensitivy pneumonits panel from ARUP and it showed I had been sensized to Fusarium.(on 2 different occasions, the 2nd time was higher.) He later did IgG and IgM testing from Immujnosciences laboratory and I showed chronic exposure to about 10 molds, including Fusarium. I also showed chronic exposure to both T-2 toxin and vomitoxin. I had to go back on prednisone and did farly well until I tapered off of it in the winter of 2004. Then I developed severe burning chest pain. I had had another GI endoscopy the previous September and the next day, the chest pain was so bad I went to the ER. Nothing helped, but it did get somewhat better while I was sitll on the prednnisone. I had a Barium swallow before that that showed what looked like a " mass " in my stomach. It turned out to be prominent gastric folds with acute gastritis and duodenitis. Evidently my esophagus also looked pretty bad, becasue the GI doctor did a biiopsy for Barrett's a precancerous condition.. Thank goodness, it was negative. The chest pain was so severe all the winter of 2004 that I walked the floor day and night. I thought it was reflux at the time, but I started taking 4 nexiums a day, that didn't help. I thought I was going to die. Then I had a pH probe that was negitive for reflux. After doing much research concerning T-2 toxin, I'm now convinced that it was what caused the burning chest pain. I think I had a " mild " case of alimentary toxic alukia. I even got an email form Dr. Aswalde (the author of the article about T-2 toxin that KC posted a few days ago), saying this was very possible. He said if I was breathing it then I was also swallowing it. I was sick all that spring and summer, but the burning chest pain has slowly subsided and the last endoscopy I had was normal. Around August of 2004, I statred getting severe pain in my sinuses. Since that time I have had several molds, including Fusarium and Blastomyces, and 5 gram negative bacteria cultured from my sinuses. The sinusitis seems to be my main problem now. The pain has been debilitiating. Over the past 2 years I have been on IV antibiotics and antifungals and finally had to go back on prednisone last winter. I saw Dr. Shoemaker about this time last year and tried to take the CSM, but the digestive problems were still so bad then, that I couldn't tolerate it. I started using bentonite, and that has helped somewhat. I don't know if the T-2 toxin is what affected my sinuses or the hypersensitivity to the Fusarium and other molds. I had sinus surgery in July of this year to open up clogged spheonids and frontals. The biopsy showed mild inflammation in all my sinuses even on the prednisone. I was diagnosed with prednisone dependent chronic sinusitis. I still get this slimy junk and white and sometimes the brown globs from my sinuses. I've even gotten ot bits of debris that look like fungal filaments. I am now on oral antibotics and sporanox and use a sporanox sinus rinse in addtion to the prednisone. I still get the pain, but it isn't quite as bad, but I've basically been nonfunctional much of the time for 3 years even after leaving the environment. The only time that I felt half way decent was when I was on high dose prednisone back last winter, but neither my doctors nor I want to stay on that much predisone. I'm on 12.5 mg. right now and keep trying to reduce it. I'm not advocating that anyone take prednisone, because I know what Dr. Shoemaker and others say about it, but I would not be able to function at all without it now. I keep having hope that I can go off of it and this will eventually clear up. There have been many days and nights the pain has been so bad, I have prayed to die. I've had to take medication for pain for 2 years, and never took it before, even after other surgeries. I do seem to be making a little progress, but it is so slow, that I have to look back in my journal to see how bad it was before to compare. So, yes, T-2 toxin is bad stuff, probably one of the worst toxins of all kinds. I guess you know it has been preported to have been used in Biological warfare. Even the CDC has an article on it. I would suggest that you get the IgG and IgM testing done for the T-2 toxin and vomitoxin and also fusarium. In the meantime, I would as Carl suggested, seal off that bathroom until you know something for sure or better yet, get out of the house. I need to get my story out, but have been too sick to do so. If anyone reading this wants to use it, feel free. I do plan to get it out in the public if I ever start feeling better. This spring and summer have been especailly difficult as my mother became critcally ill and passed away in September, so I really havn't had a chance to do much yet. I've just now started reading the posts on sickbuilfdings again . But any time T-2 toxin is mentioned, I feel it necessary to respond if I can. I don't want sympathy, because I know most people in the group have suffered as much as I have. I have told parts of my story before, but since there are a lot of new people in the group since I was active, felt it was imperative to do so again. I pray that you are not being exposed to T-2 toxin. Kathyw Quote
Guest guest Posted October 19, 2006 Report Posted October 19, 2006 thanks, kathy---but i'll NEVER be well, hon......unless God Himself steps in to repair my cord. i feel a little better in some ways, but again--i'm too damaged to be " repaired " again. i'm sorry to hear of your friend, kathy--email me offlist, ok? take care, vicki [] Re: Pink Mold > > Just for your information: I was exposed to a building long ago, & I had MOST of the symptoms you mention below....including near- paralysis, from my spinal cord being SO demyelinated (damaged) at my waist level. I was put on (I think) 100mg of IV steroids for about a week, to reduce the swelling and inflammation around my spinal CORD itself. (The diagnosis is acute transverse myelitis.) If it wasn't for the steroids AND months and months of physical " terrorists " (lol!!) I'd never have walked again.....and that's what this non-threatening (!!) mold did to me. I could tell you much more than this, but you don't have time to read all my info!!!!!!!!!! > > Take care, all, & God help us...... > > >, Yes, I know some of your story. I have meant to contact you privately. Maybe I'll have more time now. I found out about your story from another lady that worked at my school who developed transverse myelitis. She had retired a few years earlier, but had been substituting when this suddenly attacked her. She was walking to the vo tech building and passed through an area that was thick with the algae that contained the Fusarium. She'll never know if that's what caused it, but my guess is that it at least contributed to it. She can walk somewhat now, but does not have use of her hands. You probably have had contact with her as she belongs to a transverse myelitis support group. I think it was from that group that she sent me the information about you. I hope you are continuing to improve. I know it's a nightmare for all of us and knowing others have survived helps keep me going. Kathyw Quote
Guest guest Posted October 19, 2006 Report Posted October 19, 2006 , have you considered trying hyperbaric oxygen treatment? --- <toriaquilts@...> wrote: > thanks, kathy---but i'll NEVER be well, > hon......unless God Himself steps in to repair > my cord. i feel a little better in some ways, > but again--i'm too damaged to be " repaired " > again. i'm sorry to hear of your friend, > kathy--email me offlist, ok? > > take care, > vicki > Quote
Guest guest Posted October 20, 2006 Report Posted October 20, 2006 Branislay, This isn't Kathy but just reading your post made me think of a King horror story only it isn't a novel it's the REAL THING!! Kind of like The Stand only everyone got sick and died a lot faster in that book. The mycotoxins in our world, of 2006, are slowly making us sick and no one wants to understand or believe us, not even our Drs. It is absolutely terrifying, a true nightmare. Many times a day I look around at our buildings, homes, and schools and see that they are in deplorable conditions and getting worse by the day. I can't go into a building without looking up and all around. I can't remember being anywhere (except my own home & a some others) that I haven't seen brown and stained ceiling tiles and more. It is frightening to me that our world is falling apart and most people, other than all of us, just don't get it(and don't want to)!! I was a teacher and fear for all the children. They are spending over 6 hrs. a day in moldy environments & by high school they will be too sick to even think about college or a job. Sorry to be so negative but it is scarey to think what is really happening all around us. I keep hoping and praying that someday very soon the medical community and the rest of the world will realize what is happening. If only they would listen!!!!!!!!! Good luck and stay away from the mycotoxins! Sue kathy, thank you for the detailed answer. Obviously you were exposed to very high concentration of these toxins, and your internal organs seem to have been affected much more severely. Your story sounds very scary. I'm not the same person who recently posted the question about pink mold in his bathroom. I just popped in to ask what were your symptoms, because I find that my symtoms are not very consistent with Stachy's toxins, but are very consistent with the toxins produced by Fusarium. My case is different from the usual SBS scenario. The flat and the building I live in are NOT the source of mold contamination. All my mold-related problems are only due to cross-contamination from the outside through other people or objects. It's a long story, but in a nutshell: During 1990s I suffered mostly because of imported objects bought in supermarkets. It took me quite a while until I realized that mycotoxins were what was causing me the problems. There never was visible mold, I would just buy a soap (for instance) and feel the symptoms that are consistent with T-2 toxin poisoning. I tested those soaps for bacteria and toxic chemicals, they found nothing. When I mentioned toxic mold they laughed and their main biologist told me " If it weren't for mold we humans wouldn't be alive, and there would be no life. All molds are harmless. We never test them and we won't test them for you either " . And she is the director of the main organisation that is in charge for testing water, food and all other products in this country (something like FDA in USA)! More recently I am faced with a much bigger problem, and I'd really like to hear suggestions from other people regarding this issue. Namely, it seems that people here recently started to travel to other countries / regions that are severely infested with toxic mold... and when they come back, they carry on their clothes and belongings very powerful mycotoxins and/or mold fragments. I guess they don't feel it or may have only minor allergy problems. However, when they just pass near me in the street, or if I encounter them in public transport, the contamination can make my clothes and other belongings totally unsuable. One such incident happened in July this year. It's explained in this message: _http://health.http://healthhttp://heahttp://health.http://health_ (/message/41067) This momentary exposure made all the documents I carried with myself unusable. And of course the clothes had to be thrown away. Even new clothes that I used right after the first contamination, and which came into contact with the 'original contamination' became unusable. During 2nd half of August and September, I started to use the public transport again. While the majority of the people are totally clean and neutral in terms of mold/mycotoxins, there were a lot of " smaller " cross-contaminationcross-contamination<WBR>s. The majority of them without any need on my part to decontamiante. Unfortunately, there were three people who carried significant contamination on their clothes (not as strong as the one from July, but comparable). Now I really scared to death. What if this doesn't stop? How will I function in this city at all? It's like every 100th person I encounter outside just stepped outside his/her sick building carrying on himself/herself dangerous amounts of mycotoxins. I can't avoid people indefinitely. This phenomenon is something very new for the city I live in. This sort of thing didn't exist in this form before July this year. I am completely shocked and unable to see any way out of this situation. I can't make any longer plans - because everything can be spoiled by such a seemingly trivial thing as a contaminated person passing by you in the bus. How did you deal with the problem of cross-contamination of clothes and personal belongings? -Branislav Quote
Guest guest Posted October 21, 2006 Report Posted October 21, 2006 yeah, i've thought about it, but can't afford it , kathy......i have NO money, to speak of. that's VERY expensive. vicki :>( Re: [] Re: Pink Mold , have you considered trying hyperbaric oxygen treatment? --- <toriaquilts@...> wrote: > thanks, kathy---but i'll NEVER be well, > hon......unless God Himself steps in to repair > my cord. i feel a little better in some ways, > but again--i'm too damaged to be " repaired " > again. i'm sorry to hear of your friend, > kathy--email me offlist, ok? > > take care, > vicki > Quote
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