Guest guest Posted September 4, 2006 Report Posted September 4, 2006 Barb, Please keep us informed as to when you return for treatments with the HBOT. I did not realize this about the ear pressure, which makes sense. I have been considering treatments and because of the cost have been hoping to find someone with mold exposure who has done a series. (Recomendation at the time was 3 x a week for 2 months with the cost not covered by my insurance and being well over a few thousand dollars) In 3 years I have yet to hear of anyone who has done these treatments for mold and the cost is probably a main reason for this. I have much difficulty with ear pressure to such an extent that I avoid flying. These treatments may not work for me either because of this problem. The physician that promotes the HBOT for illness due to mold also relays they help with cognitive deficits from the mold exposure. I wonder if they also help with MCS? It sure would be worth it to have at least one person from this group try a series. In a message dated 9/4/2006 10:57:36 AM Central Standard Time, barb1283@... writes: Sharon, They charge you less if you buy a 'package' of 10-20 treatment, etc. I just wanted to try one for starters, so price changes for frequency of use, but about 145 for my one treatment. It was an hour long. They took me down to 20 feet since I was beginner. Goal is to get down to 45 feet for me. It depends on what doctor says. Since I had trouble with my one ear getting down to 20 feet, I have to work on ear before going back. It is much more pressure change than you experience flying since in flight, cabin is pressurized for your comfort. Goal in HBOT is to pressurize you so o2 goes in deeper. I'll let you know. I plan to take a series. I doubt you can tell anything significant from one. I don't know anyone else that is doing them. I didn't think of it for detoxing, but have been wanting to try them for my frequent migraine headaches. Now I have liver trouble apparently so thought I would go ahead. They use it in hospital for deep tissue repair so I figured it might help my liver. My doctor have me a Rx for catscan of liver but havent't done that yet since wonder if radiating my liver would do more damage. I know they say it is lightweight but I have lost confidence in information from medical community. I WILL be using Rx for catscan though perhaps having a series of HBOT since I had cancer in area and so I do need to have picture of area taken soon. It's been two years since surgery removed small amount of cancer so about time to look at area again. Incidentally Dr Croft review surgery tissue from my surgery in 2004 and said cancer found is consistent with type of cancer caused by mycotox damage and another Dr said the fact that oesophils were found at cancer site indicate it molds/funguses 'might' have been cause, so two opinions on that. --- _snk1955@..._ (mailto:snk1955@...) wrote: > > In a message dated 9/3/2006 8:30:06 P.M. >> _barb1283@..._ (mailto:barb1283@...) writes: > > hyperbaric > oxygen treatment > > > how much do those costs? have others had > success with these? Quote
Guest guest Posted September 4, 2006 Report Posted September 4, 2006 Hi , It is Cincinnati Hyperbarics at Cole Center here. So, maybe one thing I don't have to fly out of town for. I wish I could afford to just stay in one!!!! I didn't anticipate the ear thing either. A person who got in after me just laid down and relaxed. The first ten minutes I was in there, I was constantly trying to pop my ears, jawn, swallow, etc, a real struggle for me. I have since I have been a child had a tendency to develop lots of wax and now I hear using a Q tip can push wax deeper inside ear. I have heard not to use Q tip but unless I know why, I'm not a good patient, so now I know why, can almost picture that. --- bobbinsbiomed@... wrote: > > Barb, > > Please keep us informed as to when you return > for treatments with the HBOT. > Quote
Guest guest Posted September 5, 2006 Report Posted September 5, 2006 & Barb, I reciently have started doing Hyperbaric Treatments with MUCH success. BUT... I know people that did the treatments right out of their homes/work, only to spend a lot of money... and then a few years down the line still have symptoms. Hyperbaric is NOT the cure-all- but it sure helps. If your " center " or doctor knows about mold toxins, then they should know about the ear issues we have, and work with you accordingly. When I did my " set " of treatments, I felt better than I have in years!!! I had energy, I could think clearly, I slept. Please contact me directly, if you would like more informantion. I can share my experiences in finding treatment- and yes, sadly- no insurance coverage for this. Sharon bobbinsbiomed@... wrote: Barb, Please keep us informed as to when you return for treatments with the HBOT. I did not realize this about the ear pressure, which makes sense. I have been considering treatments and because of the cost have been hoping to find someone with mold exposure who has done a series. (Recomendation at the time was 3 x a week for 2 months with the cost not covered by my insurance and being well over a few thousand dollars) In 3 years I have yet to hear of anyone who has done these treatments for mold and the cost is probably a main reason for this. I have much difficulty with ear pressure to such an extent that I avoid flying. These treatments may not work for me either because of this problem. The physician that promotes the HBOT for illness due to mold also relays they help with cognitive deficits from the mold exposure. I wonder if they also help with MCS? It sure would be worth it to have at least one person from this group try a series. In a message dated 9/4/2006 10:57:36 AM Central Standard Time, barb1283@... writes: Sharon, They charge you less if you buy a 'package' of 10-20 treatment, etc. I just wanted to try one for starters, so price changes for frequency of use, but about 145 for my one treatment. It was an hour long. They took me down to 20 feet since I was beginner. Goal is to get down to 45 feet for me. It depends on what doctor says. Since I had trouble with my one ear getting down to 20 feet, I have to work on ear before going back. It is much more pressure change than you experience flying since in flight, cabin is pressurized for your comfort. Goal in HBOT is to pressurize you so o2 goes in deeper. I'll let you know. I plan to take a series. I doubt you can tell anything significant from one. I don't know anyone else that is doing them. I didn't think of it for detoxing, but have been wanting to try them for my frequent migraine headaches. Now I have liver trouble apparently so thought I would go ahead. They use it in hospital for deep tissue repair so I figured it might help my liver. My doctor have me a Rx for catscan of liver but havent't done that yet since wonder if radiating my liver would do more damage. I know they say it is lightweight but I have lost confidence in information from medical community. I WILL be using Rx for catscan though perhaps having a series of HBOT since I had cancer in area and so I do need to have picture of area taken soon. It's been two years since surgery removed small amount of cancer so about time to look at area again. Incidentally Dr Croft review surgery tissue from my surgery in 2004 and said cancer found is consistent with type of cancer caused by mycotox damage and another Dr said the fact that oesophils were found at cancer site indicate it molds/funguses 'might' have been cause, so two opinions on that. --- _snk1955@..._ (mailto:snk1955@...) wrote: > > In a message dated 9/3/2006 8:30:06 P.M. >> _barb1283@..._ (mailto:barb1283@...) writes: > > hyperbaric > oxygen treatment > > > how much do those costs? have others had > success with these? Quote
Guest guest Posted September 5, 2006 Report Posted September 5, 2006 Hi Sharon M, What great information. I came home and feel asleep early the day after my treatment and wondered if it had something to do with treatment. I will keep the email and contact you if I have questions. Thanks --- Sharon Morningstar <willowinwind2002@...> wrote: > & Barb, > > I reciently have started doing Hyperbaric > Treatments with MUCH success. BUT... > I know people that did the treatments right > out of their homes/work, only to spend a lot of > money... and then a few years down the line > still have symptoms. Hyperbaric is NOT the > cure-all- but it sure helps. > > If your " center " or doctor knows about mold > toxins, then they should know about the ear > issues we have, and work with you accordingly. > > > When I did my " set " of treatments, I felt > better than I have in years!!! I had energy, I > could think clearly, I slept. > Please contact me directly, if you would > like more informantion. I can share my > experiences in finding treatment- and yes, > sadly- no insurance coverage for this. > > Sharon > Quote
Guest guest Posted September 5, 2006 Report Posted September 5, 2006 Sharon--How many treatments did you do??? Did you have any trouble with the hyperbaric process??? Leigh Sharon Morningstar <willowinwind2002@...> wrote: & Barb, I reciently have started doing Hyperbaric Treatments with MUCH success. BUT... I know people that did the treatments right out of their homes/work, only to spend a lot of money... and then a few years down the line still have symptoms. Hyperbaric is NOT the cure-all- but it sure helps. If your " center " or doctor knows about mold toxins, then they should know about the ear issues we have, and work with you accordingly. When I did my " set " of treatments, I felt better than I have in years!!! I had energy, I could think clearly, I slept. Please contact me directly, if you would like more informantion. I can share my experiences in finding treatment- and yes, sadly- no insurance coverage for this. Sharon bobbinsbiomed@... wrote: Barb, Please keep us informed as to when you return for treatments with the HBOT. I did not realize this about the ear pressure, which makes sense. I have been considering treatments and because of the cost have been hoping to find someone with mold exposure who has done a series. (Recomendation at the time was 3 x a week for 2 months with the cost not covered by my insurance and being well over a few thousand dollars) In 3 years I have yet to hear of anyone who has done these treatments for mold and the cost is probably a main reason for this. I have much difficulty with ear pressure to such an extent that I avoid flying. These treatments may not work for me either because of this problem. The physician that promotes the HBOT for illness due to mold also relays they help with cognitive deficits from the mold exposure. I wonder if they also help with MCS? It sure would be worth it to have at least one person from this group try a series. In a message dated 9/4/2006 10:57:36 AM Central Standard Time, barb1283@... writes: Sharon, They charge you less if you buy a 'package' of 10-20 treatment, etc. I just wanted to try one for starters, so price changes for frequency of use, but about 145 for my one treatment. It was an hour long. They took me down to 20 feet since I was beginner. Goal is to get down to 45 feet for me. It depends on what doctor says. Since I had trouble with my one ear getting down to 20 feet, I have to work on ear before going back. It is much more pressure change than you experience flying since in flight, cabin is pressurized for your comfort. Goal in HBOT is to pressurize you so o2 goes in deeper. I'll let you know. I plan to take a series. I doubt you can tell anything significant from one. I don't know anyone else that is doing them. I didn't think of it for detoxing, but have been wanting to try them for my frequent migraine headaches. Now I have liver trouble apparently so thought I would go ahead. They use it in hospital for deep tissue repair so I figured it might help my liver. My doctor have me a Rx for catscan of liver but havent't done that yet since wonder if radiating my liver would do more damage. I know they say it is lightweight but I have lost confidence in information from medical community. I WILL be using Rx for catscan though perhaps having a series of HBOT since I had cancer in area and so I do need to have picture of area taken soon. It's been two years since surgery removed small amount of cancer so about time to look at area again. Incidentally Dr Croft review surgery tissue from my surgery in 2004 and said cancer found is consistent with type of cancer caused by mycotox damage and another Dr said the fact that oesophils were found at cancer site indicate it molds/funguses 'might' have been cause, so two opinions on that. --- _snk1955@..._ (mailto:snk1955@...) wrote: > > In a message dated 9/3/2006 8:30:06 P.M. >> _barb1283@..._ (mailto:barb1283@...) writes: > > hyperbaric > oxygen treatment > > > how much do those costs? have others had > success with these? Quote
Guest guest Posted September 7, 2006 Report Posted September 7, 2006 Here is an interesting link about hyperbaric oxygen. _http://xtramsn.co.nz/lifestyles/0,,12607-6129403,00.html_ (http://xtramsn.co.nz/lifestyles/0,,12607-6129403,00.html) Sharon Quote
Guest guest Posted September 8, 2006 Report Posted September 8, 2006 I developed MCS following a severe mold exposure in 2001 and am currently on a desensitization program etc. I want to tell you about my incredible HBOT story. Last November I had a perfume exposure that knocked me for a loop; lost 6 weeks of work; and left me with severe total body pain 24/7 which is so very debilitating and exhausting; and increased sensitivity to triggers. In April, I requested a trial of Hyperbaric Oxygen Therapy (after reading research material on a variety of subjects including strokes). To make a long story short, I had 3 - 1 hour sessions a day apart. And to my amazement and delight, the pain started easing off during the first treatment, and was totally gone after the third treatment, and lasted for six weeks! YEAH! I also felt generally better, with improved concentration, stamina, etc. but the pain relief was so unexpected and a very welcome change. Because there is so little available research, I want to share my story with you. If others have the horrible pain, please give yourself the opportunity to at least try HBOT. The cost of treatment was $100.00 per 'dive'- a one-hour session. Best wishes to all. I am not able to check my messages regularly, but will be interested if others try HBOT and if it affects their pain status. a > > > > > In a message dated 9/3/2006 8:30:06 P.M. > >> _barb1283@..._ (mailto:barb1283@...) writes: > > > > hyperbaric > > oxygen treatment > > > > > > how much do those costs? have others had > > success with these? > > Quote
Guest guest Posted September 8, 2006 Report Posted September 8, 2006 are youable to be around perfume now???? yukon_paula <yukon_paula@...> wrote: I developed MCS following a severe mold exposure in 2001 and am currently on a desensitization program etc. I want to tell you about my incredible HBOT story. Last November I had a perfume exposure that knocked me for a loop; lost 6 weeks of work; and left me with severe total body pain 24/7 which is so very debilitating and exhausting; and increased sensitivity to triggers. In April, I requested a trial of Hyperbaric Oxygen Therapy (after reading research material on a variety of subjects including strokes). To make a long story short, I had 3 - 1 hour sessions a day apart. And to my amazement and delight, the pain started easing off during the first treatment, and was totally gone after the third treatment, and lasted for six weeks! YEAH! I also felt generally better, with improved concentration, stamina, etc. but the pain relief was so unexpected and a very welcome change. Because there is so little available research, I want to share my story with you. If others have the horrible pain, please give yourself the opportunity to at least try HBOT. The cost of treatment was $100.00 per 'dive'- a one-hour session. Best wishes to all. I am not able to check my messages regularly, but will be interested if others try HBOT and if it affects their pain status. a > > > > > In a message dated 9/3/2006 8:30:06 P.M. > >> _barb1283@..._ (mailto:barb1283@...) writes: > > > > hyperbaric > > oxygen treatment > > > > > > how much do those costs? have others had > > success with these? > > Quote
Guest guest Posted September 8, 2006 Report Posted September 8, 2006 The short answer is 'no'. But since I became sensitive, some odors while unpleasant haven't caused severe and immediate symptoms (Headache; nausea; vomitting; brain fog; loss of concentration; joint pains; muscle aches; chest pain; shortness of breath; high blood pressure etc). I have noticed that if I notice a smell and get away from it that the symptoms often don't escalate as they had before. I still have moments when that one 'exposure' hits me like a 'hammer'. I didn't expect the HBOT to 'cure' me, but it has certainly shown a marked improvement in my quality of life. I find that about a month following the hyperbaric treatment that I am more sensitive, and often one hip starts hurting, or a shoulder etc. So I am trying to plan treatments on a monthly basis at this time. Definitely a work in progress, but it is truly nice to find something that works, Cheers, a > > > > > > > > In a message dated 9/3/2006 8:30:06 P.M. > > >> _barb1283@_ (mailto:barb1283@) writes: > > > > > > hyperbaric > > > oxygen treatment > > > > > > > > > how much do those costs? have others had > > > success with these? > > > > Quote
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