Re: PROPOSED ACTIVIITIES -

[Guest guest]

Haley,

does the word " victim " mean that that person is asking you to pity

them or does it mean that they have been hurt and need help.

I personally dont think there is such a thing as pity, you either

care or you dont,what you think is someone wanting pity may just be

someone wanting help and getting aggervated because they cant get

any. theres also a big difference in someone looking for pity

" attention " and someone going through a hard time and just needing

someone to listin while they vent for what ever is bothering them.

does mold suviver give the impression like canser suviver(meaning all

better now)? do you know if your all better now or is there a very

good possability that you will keep the illness that mold has givin

you.

>

> Ah, Jeanine -

>

> Part of it comes from what we want back from folks we are

attempting to teach. The #2 definition I've got in Webster's

is " dupe. "

>

> Well, I'm no dupe anymore, and daily you work tirelessly to

educate yourself and those around you about the severity of the

problems that to date are invisible to most others.

>

> What is it we want: do we want to educate so others can work

with us and advance understanding of prevention and healing or do we

want pity? In my experience, it still takes a buck along with pity

to get a cuppa joe -

>

> To my mind, you're been seriously victimized but you aren't a

victim, and if we're not all there yet ourselves, that's the goal in

order to really start finding what will work for us for healing.

I've been working on health and disability issues for decades prior

to bumping into the catastophe of mold - the way we define ourselves

has a GREAT deal to do with how others will see us and feel about

us. To claim victimhood is generally not effective in getting

support from others - they may throw enough money at it to assuage

their guilt, but they won't often engage in supporting us toward

wholescale understanding, prevention, remediation and healing.

>

> ~Haley

>

> who <jeaninem660@...> wrote:

> " letitia0514 "

> THANK YOU SO MUCH FOR WHAT YOU ARE DOING! I think 'victims " is a

fine

> word, it's your deal, you do it the way you want. just the fact

that

> your ill and trying to do what you can to help other victims is

great.

> and yes, we are all victims, that doesn't mean we are not fighters.

> some are more ill than others.and if their family is amoung the non-

> believers than they have even more right to fell like a victim.

> this is a most horrible deal to go through and it may be easy for

> some who are not as ill to forget or not understand how ill others

> may truely be. not all of us can afford to get any medical help or

> cannot find it even if we could afford it. we all do what we can

even

> if that just means only being able to try to help ourselfs some how.

> some dont have enough energy to even do that. theres times I fell

so

> bad i consider righting a plee post just begging for someone to

help

> me get through this, but my pride stops me from doing so. some have

> and my heart goes out to them because I know the place that they

are

> in. all I can do is say a prayer for them to get some help.

> everyone that goes through this starts out as a victim, some get

> better, some dont. I think we all need to keep this in our minds.

> we are victims and many of us need help, if we are unlaibled as

> victims, what does that really say to the public? is it not bad

> enough that those who do not understand just how this can devastate

> your life may not see us as victims?

>

> >

> > Hello all:

> >

> > i have been reading the e-mails and a lot has been said about the

> > word " victims " , which is the name that I called the conference

> > calls, which can be CHANGED. If you look up the word victim, it

> > means " a person who suffers injury, loss or death " . We have all

> > suffer in one of more of these categories. Is that true? I do

> > appreciate your comments and the name of the Conference

Calls/Videos

> > can be CHANGED. Maybe, I should have left the previous name " The

> > Mold Buddies Support Group Conference Calls. " I do like the

> > name " Mold Survivors " as well. I don't know about using Mold

> > Warriors, because there maybe a trademark issue and I don't want

to

> > get into that.

> >

> > What is mindboggling to me is that I have seen more emails about

> > the " languaging " than people wanting to help or participate.

> > Actually one person out of 1800 people sent me an email saying

that

> > she wanted to help with putting together the media kit and wanted

to

> > participate in the conference calls because she was new to the

> > group. Thank you, " Ms. D " .

> >

> > I would like to focus on the bigger picture, what can we do to

make

> > a change/impact that the mycotoxins from mold exposures can cause

> > devastating health effects on people's lives, even cause death. It

> > is us against the " SYSTEM " . Let's put our efforts towards uniting

to

> > do this.

> >

> > I know everyone is at a different place financially and health

wise

> > and I am aware of that. You can only do with what you can. I would

> > never expect anyone to do what they can't do.

> >

> > I thought that the conference calls would be another way for us to

> > communicate verbally, especially for the newbies of the group.

Yes,

> > I was disappointed by the turnout previously. I also thought it

was

> > great to share information among ourselves and also take some of

the

> > burden off of KC who has been instrumental in supporting all

> > 1800+ of us 7 days a week. (This is me talking

> > not KC/Sharon.) Sometimes it is easier to explain things verbally

> > than in writing. Wouldn't you agree?

> >

> > It was great talking to people and actually putting a voice to the

> > emails. As a resut, one of my highlights was actually meeting, Sue

> > from land. We talked for hours and meeting a fellow " mold

buddy "

> > was awesome.

> >

> > It was decided that Saturdays were perfect, because people

> > have " FREE " minutes on the weekend and 8:00 p.m. Eastern time was

> > the time. The previous conference call was non-structured, without

> > an agenda, but this one will be structured with an agenda. I did

> > that purposely because I wanted to get a feel of the dynamics of

the

> > group because I really did not know anyone.

> >

> > I would like to start that up again, but with your

> input/suggestions.

> >

> >

> > So of you are probably wondering who am I?

> >

> > I was a test engineer, systems engineer, project manager with the

> > federal government in DC, managing projects $10-$65 million. I

have

> > experience in bringing people together to achieve goals. For the

> > past 12 years, I have learned and experienced the government

> > bureaucracy so I know how the game is played. I guess that I am

in a

> > different place because I have been a " VICTIM " for a majority of

my

> > life. Yes, I am a VICTIM, but I do not allow that to defy me or

stop

> > me from achieving my goals. Another definition is " one who is

harmed

> > by or made to suffer from an act,circumstances, agency, or

> > condition.' I also own a event management company so I have

> > experience in dealing with the media and getting in print and on

the

> > radio station in the DC area.

> >

> > I hate what was done to me and to you. I can not sit here and let

> > this issue continue without a fight. I have a purpose for being

here

> > and I want to do something good for others. Yes, it will be a long

> > and hard battle, but I have been fighting all of my life. I have

> > been put here for a reason. I have so many ideas that I would like

> > to share. I want to help, but I can't do it without others. I need

> > your support.

> >

> > First, we must be the same page working together to achieve the

same

> > goals:

> >

> > I am looking for a small team of people who want to go to the next

> > step.

> >

> > Let's work on solving the problem together. A small group is more

> > effective than 1 or 2 people.

> >

> >

> > If anyone is interested, I will have a conference call on

Saturday,

> > August 5 at 9:00 p.m. Eastern time.

> > You can call 712-432-3000 Bridge No. 121019 Please announce your

> > name upon entering. Please mark your calendars. If that time is

not

> > good for you, but you can't join, please call or email me. Bring

> > your ideas with you or send me an email.

> >

> > I want to leave you with 2 quotes:

> >

> > Vision without execution is daydreaming. Bill Gates

> >

> > Venting is problem identification, not problem solving. Harry E.

> > Chambers

> >

> >

> > There's a lot of good energy on this group so that channel it

> > outward so others can see us.

> >

> > Please send your emails offline to me at mold_activist@

> > I do not want to burden KC/Sharon with a lot of emails.

> >

> > Please feel free to call me at 301-466-1805.

> >

> > Letitia s

> >

> > P.S. I will not be available tonight after 9:00 p.m. Eastern

> tonight.

> > I have asked my friends,family,co-workers, and associates to join

me

> > in prayer for mold victims.

> > You are all invited to call 712-432-3000 Bridge No. 121019.

> > 9:00 -9:30 p.m. or 10:00 - 10:30 p.m, or 11:00 - 11:30 p.m. or

> > 11:35 - midnight. All times are Eastern times. Tomorrow, I will

> > start a 40 day prayer/fasting for mold victims and some of my

> > friends are joining me. This prayer service is open to all

> religions.

> >

>

>

>

>

>

>

>

[Guest guest]

Haley, I didn't know I made reference to your health, I was thinking

about Katrina victims as they are called, and they got a lot of " pity "

but many still wait for help. I was thinking about someone older on

this board that may be to ill to help herself and really needs help.

I was thinking about some here that are just to ill to maybe offer

Letita help even though they would like to, and some that may not

even have enough energy to post. and yes, we have to take care of

ourself first and if, along the way we can do something to help

others it's great. what you are doing is great, it all gets us a step

closer. we all just do what we can, some have the means to do more

than others, some are still victims. maybe if the only ones that fell

up to helping Letita dont consider their self a victim it should be

changed, but isn't the whole purpose to help the victims? or is it

something else. Im a victim of mold, and I've never been a weak

minded person,I have worked right along with men my whole life, and

raised my childen alone. I am known to be so strong minded that my

family assumes that I can get through anything and I usually do.

Im so bullhead and set in my ways that I dont want a man in my life

if it means i have to give up anything of who i am. even if one came

around that didn't stink,lol's. I am angery and fusterated at haveing

this exposure at the hands of others evilways, its compounded by

the lack of understanding, lack of proper medical help, lack of

knowledge by science. there are some sicker than me, there are some

not as sick. thats not the point. the only point I was trying to make

is that we are all victims of mold and we allways will be, no matter

how we adjust. Katrina victims will always be Katrina victims, when

they tell their grandchildren their storys, wont they say'I was a

Katrina victim'? than they will tell them how they overcame the

strugle. dont you think theres a difference in how the public

precieves the word 'victim' and how the victim precieves it?

have I rolled over and let it take me, no, neither have you, but we

still are mold victims.

>

> Hey Jeanine-

>

> About 'wanting attention' - when I have enough

> strength, I do counseling with health patients,

> and I have a very high tolerance for people

> feeling all kinds of frustration while they're

> coming to terms with limitations and pain and

> figuring out how to live with them. It's a

> natural stage of contending with ignorance and

> intolerance of people who don't understand what

> it is to go through the struggle. But most

> people get past that stage to a place where they

> are able to take steps to find at least SOME

> doctors and friends who understand and can help

> us make the best of the challenge. Our best

> isn't always good enough - I've been there and

> done that, as most of us have.

>

> Yes, there IS a difference between pity and

> compassion, and no, I don't think anyone wants

> pity - it rarely gets one what they need -

> someone who pities can only listen for so long

> before their eyes glaze over. They are likely to

> tell you to think about how things are going to

> get better without helping you visualize how to

> get from here to there. Someone who has

> compassion about your situation is going to

> listen better and and answer thoughtfully, and

> will hold your hand when you lose your grip, as

> all of us may.

>

> BTW: cancer 'survivers' are not necessarily

> cancer-free... they're simply folks who have made

> it across an obstacle course to where they are,

> and generally there are no promises. Some are

> cancer free, some in remission, some just not

> actively dying at a clip, and there are many

> variations in between. So, perhaps we don't

> understand the plight of cancer patients the way

> others misunderstand our experience?

>

> I came to the mold 'game,' if you will, after a

> number of other stuff, much of which I have under

> control and livable but could become

> life-threatening at the drop of a hat... I'm

> still trying to get to the bottom of my mold

> stuff, but having watched my neighbor deteriorate

> and DIE from his exposure has me understanding

> just how serious it is. I've been working hand

> in glove with his mother to address the neglect

> that happened and learning more about my own

> situation as I go along.

>

> I TRULY understand about people who struggle when

> their doctors and family and friends don't have

> the first clue as to what they are struggling

> with... actually, I lost my closest friend at

> work after complications with one of my early

> open heart surgeries - it blew here mind to get

> to know someone her own age nearly die in surgery

> and then have the kinds of troubles I did

> subsequently. Big deal, perhaps, but then my

> marriage fell apart when my ex husband wasn't

> able to communicate with me after my miscarriage

> the following year and an emergency redo on the

> valve surgery, this time after being in

> congestive heart failure and v-fib, very messy

> stuff - He didn't know how to communicate with

> me.

>

> You question about MY health comes across as a

> bit personal - I'm not looking to get competitive

> with everyone - we each have our own challenges

> or we wouldn't have sought out other folks to see

> what they've learned. My exposure very nearly

> killed me two years ago when it contributed to my

> bleeding-out after a *minor* surgery - they split

> me down the middle and pumped 3 liters of blood

> out of my abdomen so I could heal. My exposure

> also triggered progression of a previously

> unknown congenital kidney disease. My renal

> function is now under 50% - as you may know, one

> doesn't get on the transplant list until the low

> 20s or start dialysis until about 12, neither of

> which I'm likely to survive given my history of

> complications and trouble with bloodthinners

> because of my artificial heart valve. While I

> have a lot of kidney now, my function did plummet

> over 10 percentage points in the last six months,

> which I find very spooky. My peripheral

> neuropathy and positional hypotension (which

> typically runs 85/55) are pretty minor compared

> to the dizzy spells and exhertion fatigue in

> terms of daily challenges. My situation may not

> be what yours is, but I've been round the block.

>

>

> We each have our wn experiences...

>

> ~Haley

>

> --- who <jeaninem660@...> wrote:

>

> > Haley,

> > does the word " victim " mean that that person is

> > asking you to pity

> > them or does it mean that they have been hurt

> > and need help.

> > I personally dont think there is such a thing

> > as pity, you either

> > care or you dont,what you think is someone

> > wanting pity may just be

> > someone wanting help and getting aggervated

> > because they cant get

> > any. theres also a big difference in someone

> > looking for pity

> > " attention " and someone going through a hard

> > time and just needing

> > someone to listin while they vent for what ever

> > is bothering them.

> > does mold suviver give the impression like

> > canser suviver(meaning all

> > better now)? do you know if your all better now

> > or is there a very

> > good possability that you will keep the illness

> > that mold has givin

> > you.

> >

> > >

> > > Ah, Jeanine -

> > >

> > > Part of it comes from what we want back

> > from folks we are

> > attempting to teach. The #2 definition I've

> > got in Webster's

> > is " dupe. "

> > >

> > > Well, I'm no dupe anymore, and daily you

> > work tirelessly to

> > educate yourself and those around you about the

> > severity of the

> > problems that to date are invisible to most

> > others.

> > >

> > > What is it we want: do we want to educate

> > so others can work

> > with us and advance understanding of prevention

> > and healing or do we

> > want pity? In my experience, it still takes a

> > buck along with pity

> > to get a cuppa joe -

> > >

> > > To my mind, you're been seriously

> > victimized but you aren't a

> > victim, and if we're not all there yet

> > ourselves, that's the goal in

> > order to really start finding what will work

> > for us for healing.

> > I've been working on health and disability

> > issues for decades prior

> > to bumping into the catastophe of mold - the

> > way we define ourselves

> > has a GREAT deal to do with how others will see

> > us and feel about

> > us. To claim victimhood is generally not

> > effective in getting

> > support from others - they may throw enough

> > money at it to assuage

> > their guilt, but they won't often engage in

> > supporting us toward

> > wholescale understanding, prevention,

> > remediation and healing.

> > >

> > > ~Haley

> > >

> > > who <jeaninem660@> wrote:

> > > " letitia0514 "

> > > THANK YOU SO MUCH FOR WHAT YOU ARE DOING! I

> > think 'victims " is a

> > fine

> > > word, it's your deal, you do it the way you

> > want. just the fact

> > that

> > > your ill and trying to do what you can to

> > help other victims is

> > great.

> > > and yes, we are all victims, that doesn't

> > mean we are not fighters.

> > > some are more ill than others.and if their

> > family is amoung the non-

> > > believers than they have even more right to

> > fell like a victim.

> > > this is a most horrible deal to go through

> > and it may be easy for

> > > some who are not as ill to forget or not

> > understand how ill others

> > > may truely be. not all of us can afford to

> > get any medical help or

> > > cannot find it even if we could afford it. we

> > all do what we can

> > even

> > > if that just means only being able to try to

> > help ourselfs some how.

> > > some dont have enough energy to even do that.

> > theres times I fell

> > so

> > > bad i consider righting a plee post just

> > begging for someone to

> > help

> > > me get through this, but my pride stops me

> > from doing so. some have

> > > and my heart goes out to them because I know

> > the place that they

> > are

> > > in. all I can do is say a prayer for them to

> > get some help.

> > > everyone that goes through this starts out as

> > a victim, some get

> > > better, some dont. I think we all need to

> > keep this in our minds.

> > > we are victims and many of us need help, if

> > we are unlaibled as

> > > victims, what does that really say to the

> > public? is it not bad

> > > enough that those who do not understand just

> > how this can devastate

> > > your life may not see us as victims?

> > >

> > > >

> > > > Hello all:

> > > >

> > > > i have been reading the e-mails and a lot

> > has been said about the

> > > > word " victims " , which is the name that I

> > called the conference

> > > > calls, which can be CHANGED. If you look up

> > the word victim, it

> > > > means " a person who suffers injury, loss or

> > death " . We have all

> > > > suffer in one of more of these categories.

> > Is that true? I do

> > > > appreciate your comments and the name of

> > the Conference

> > Calls/Videos

> > > > can be CHANGED. Maybe, I should have left

> > the previous name " The

> > > > Mold Buddies Support Group Conference

> > Calls. " I do like the

> > > > name " Mold Survivors " as well. I don't know

> > about using Mold

> > > > Warriors, because there maybe a trademark

> > issue and I don't want

> > to

> > > > get into that.

> > > >

> > > > What is mindboggling to me is that I have

> > seen more emails about

> > > > the " languaging " than people wanting to

> > help or participate.

> > > > Actually one person out of 1800 people sent

> > me an email saying

> > that

> > > > she wanted to help with putting together

> > the media kit and wanted

> > to

> > > > participate in the conference calls because

> > she was new to the

> > > > group. Thank you, " Ms. D " .

> > > >

> > > > I would like to focus on the bigger

> > picture, what can we do to

> > make

> > > > a change/impact that the mycotoxins from

> > mold exposures can cause

> > > > devastating health effects on people's

> > lives, even cause death. It

> > > > is us against the " SYSTEM " . Let's put our

> > efforts towards uniting

> > to

> > > > do this.

> > > >

> > > > I know everyone is at a different place

> > financially and health

> > wise

> > > > and I am aware of that. You can only do

> > with what you can. I would

> > > > never expect anyone to do what they can't

> > do.

> > > >

> > > > I thought that the conference calls would

> > be another way for us to

> > > > communicate verbally, especially for the

> > newbies of the group.

> > Yes,

> > > > I was disappointed by the turnout

> > previously. I also thought it

> > was

> > > > great to share information among ourselves

> > and also take some of

> > the

> > > > burden off of KC who has been instrumental

> > in supporting all

> > > > 1800+ of us 7 days a week. (This is me

> > talking

> > > > not KC/Sharon.) Sometimes it is easier to

> > explain things verbally

> > > > than in writing. Wouldn't you agree?

> > > >

> > > > It was great talking to people and actually

> > putting a voice to the

> > > > emails. As a resut, one of my highlights

> > was actually meeting, Sue

> > > > from land. We talked for hours and

> > meeting a fellow " mold

> > buddy "

> > > > was awesome.

> > > >

> > > > It was decided that Saturdays were perfect,

> > because people

> > > > have " FREE " minutes on the weekend and 8:00

> > p.m. Eastern time was

> > > > the time. The previous conference call was

> > non-structured, without

> > > > an agenda, but this one will be structured

> > with an agenda. I did

> > > > that purposely because I wanted to get a

> > feel of the dynamics of

> > the

> > > > group because I really did not know anyone.

> > > >

> > > > I would like to start that up again, but

> > with your

> > > input/suggestions.

> > > >

> > > >

> > > > So of you are probably wondering who am I?

> > > >

> > > > I was a test engineer, systems engineer,

> > project manager with the

> > > > federal government in DC, managing projects

> > $10-$65 million. I

> > have

> > > > experience in bringing people together to

> > achieve goals. For the

> > > > past 12 years, I have learned and

> > experienced the government

> > > > bureaucracy so I know how the game is

> > played. I guess that I am

> > in a

> > > > different place because I have been a

> > " VICTIM " for a majority of

> > my

> > > > life. Yes, I am a VICTIM, but I do not

> > allow that to defy me or

> > stop

> > > > me from achieving my goals. Another

> > definition is " one who is

> > harmed

> > > > by or made to suffer from an

> > act,circumstances, agency, or

> > > > condition.' I also own a event management

> > company so I have

> > > > experience in dealing with the media and

> > getting in print and on

> > the

> > > > radio station in the DC area.

> > > >

> > > > I hate what was done to me and to you. I

> > can not sit here and let

> > > > this issue continue without a fight. I have

> > a purpose for being

> > here

> > > > and I want to do something good for others.

> > Yes, it will be a long

> > > > and hard battle, but I have been fighting

> > all of my life. I have

> > > > been put here for a reason. I have so many

> > ideas that I would like

> > > > to share. I want to help, but I can't do it

> > without others. I need

> > > > your support.

> > > >

> > > > First, we must be the same page working

> > together to achieve the

> > same

> > > > goals:

> > > >

> > > > I am looking for a small team of people who

> > want to go to the next

> > > > step.

> > > >

> > > > Let's work on solving the problem together.

> > A small group is more

> > > > effective than 1 or 2 people.

> > > >

> > > >

> > > > If anyone is interested, I will have a

> > conference call on

> > Saturday,

> > > > August 5 at 9:00 p.m. Eastern time.

> > > > You can call 712-432-3000 Bridge No. 121019

> > Please announce your

> > > > name upon entering. Please mark your

> > calendars. If that time is

> > not

> > > > good for you, but you can't join, please

> > call or email me. Bring

> > > > your ideas with you or send me an email.

> > > >

> > > > I want to leave you with 2 quotes:

> > > >

> > > > Vision without execution is daydreaming.

> > Bill Gates

> > > >

> > > > Venting is problem identification, not

> > problem solving. Harry E.

> > > > Chambers

> > > >

> > > >

> > > > There's a lot of good energy on this group

> > so that channel it

> > > > outward so others can see us.

> > > >

> > > > Please send your emails offline to me at

> > mold_activist@

> > > > I do not want to burden KC/Sharon with a

> > lot of emails.

> > > >

> > > > Please feel free to call me at

> > 301-466-1805.

> > > >

> > > > Letitia s

> > > >

> > > > P.S. I will not be available tonight after

> > 9:00 p.m. Eastern

> > > tonight.

> > > > I have asked my friends,family,co-workers,

> > and associates to join

> > me

> > > > in prayer for mold victims.

> > > > You are all invited to call 712-432-3000

> > Bridge No. 121019.

> > > > 9:00 -9:30 p.m. or 10:00 - 10:30 p.m, or

> > 11:00 - 11:30 p.m. or

> > > > 11:35 - midnight. All times are Eastern

> > times. Tomorrow, I will

> > > > start a 40 day prayer/fasting for mold

> > victims and some of my

> > > > friends are joining me. This prayer service

> > is open to all

> > > religions.

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > [Non-text portions of this message have been

> > removed]

> > >

> >

> >

> >

> >

> >

> >

> >

> >

>