Re: Re: PROPOSED ACTIVIITIES -

[Guest guest]

Ah, Jeanine -

Part of it comes from what we want back from folks we are attempting to teach.

The #2 definition I've got in Webster's is " dupe. "

Well, I'm no dupe anymore, and daily you work tirelessly to educate yourself

and those around you about the severity of the problems that to date are

invisible to most others.

What is it we want: do we want to educate so others can work with us and

advance understanding of prevention and healing or do we want pity? In my

experience, it still takes a buck along with pity to get a cuppa joe -

To my mind, you're been seriously victimized but you aren't a victim, and if

we're not all there yet ourselves, that's the goal in order to really start

finding what will work for us for healing. I've been working on health and

disability issues for decades prior to bumping into the catastophe of mold - the

way we define ourselves has a GREAT deal to do with how others will see us and

feel about us. To claim victimhood is generally not effective in getting

support from others - they may throw enough money at it to assuage their guilt,

but they won't often engage in supporting us toward wholescale understanding,

prevention, remediation and healing.

~Haley

who <jeaninem660@...> wrote:

" letitia0514 "

THANK YOU SO MUCH FOR WHAT YOU ARE DOING! I think 'victims " is a fine

word, it's your deal, you do it the way you want. just the fact that

your ill and trying to do what you can to help other victims is great.

and yes, we are all victims, that doesn't mean we are not fighters.

some are more ill than others.and if their family is amoung the non-

believers than they have even more right to fell like a victim.

this is a most horrible deal to go through and it may be easy for

some who are not as ill to forget or not understand how ill others

may truely be. not all of us can afford to get any medical help or

cannot find it even if we could afford it. we all do what we can even

if that just means only being able to try to help ourselfs some how.

some dont have enough energy to even do that. theres times I fell so

bad i consider righting a plee post just begging for someone to help

me get through this, but my pride stops me from doing so. some have

and my heart goes out to them because I know the place that they are

in. all I can do is say a prayer for them to get some help.

everyone that goes through this starts out as a victim, some get

better, some dont. I think we all need to keep this in our minds.

we are victims and many of us need help, if we are unlaibled as

victims, what does that really say to the public? is it not bad

enough that those who do not understand just how this can devastate

your life may not see us as victims?

>

> Hello all:

>

> i have been reading the e-mails and a lot has been said about the

> word " victims " , which is the name that I called the conference

> calls, which can be CHANGED. If you look up the word victim, it

> means " a person who suffers injury, loss or death " . We have all

> suffer in one of more of these categories. Is that true? I do

> appreciate your comments and the name of the Conference Calls/Videos

> can be CHANGED. Maybe, I should have left the previous name " The

> Mold Buddies Support Group Conference Calls. " I do like the

> name " Mold Survivors " as well. I don't know about using Mold

> Warriors, because there maybe a trademark issue and I don't want to

> get into that.

>

> What is mindboggling to me is that I have seen more emails about

> the " languaging " than people wanting to help or participate.

> Actually one person out of 1800 people sent me an email saying that

> she wanted to help with putting together the media kit and wanted to

> participate in the conference calls because she was new to the

> group. Thank you, " Ms. D " .

>

> I would like to focus on the bigger picture, what can we do to make

> a change/impact that the mycotoxins from mold exposures can cause

> devastating health effects on people's lives, even cause death. It

> is us against the " SYSTEM " . Let's put our efforts towards uniting to

> do this.

>

> I know everyone is at a different place financially and health wise

> and I am aware of that. You can only do with what you can. I would

> never expect anyone to do what they can't do.

>

> I thought that the conference calls would be another way for us to

> communicate verbally, especially for the newbies of the group. Yes,

> I was disappointed by the turnout previously. I also thought it was

> great to share information among ourselves and also take some of the

> burden off of KC who has been instrumental in supporting all

> 1800+ of us 7 days a week. (This is me talking

> not KC/Sharon.) Sometimes it is easier to explain things verbally

> than in writing. Wouldn't you agree?

>

> It was great talking to people and actually putting a voice to the

> emails. As a resut, one of my highlights was actually meeting, Sue

> from land. We talked for hours and meeting a fellow " mold buddy "

> was awesome.

>

> It was decided that Saturdays were perfect, because people

> have " FREE " minutes on the weekend and 8:00 p.m. Eastern time was

> the time. The previous conference call was non-structured, without

> an agenda, but this one will be structured with an agenda. I did

> that purposely because I wanted to get a feel of the dynamics of the

> group because I really did not know anyone.

>

> I would like to start that up again, but with your

input/suggestions.

>

>

> So of you are probably wondering who am I?

>

> I was a test engineer, systems engineer, project manager with the

> federal government in DC, managing projects $10-$65 million. I have

> experience in bringing people together to achieve goals. For the

> past 12 years, I have learned and experienced the government

> bureaucracy so I know how the game is played. I guess that I am in a

> different place because I have been a " VICTIM " for a majority of my

> life. Yes, I am a VICTIM, but I do not allow that to defy me or stop

> me from achieving my goals. Another definition is " one who is harmed

> by or made to suffer from an act,circumstances, agency, or

> condition.' I also own a event management company so I have

> experience in dealing with the media and getting in print and on the

> radio station in the DC area.

>

> I hate what was done to me and to you. I can not sit here and let

> this issue continue without a fight. I have a purpose for being here

> and I want to do something good for others. Yes, it will be a long

> and hard battle, but I have been fighting all of my life. I have

> been put here for a reason. I have so many ideas that I would like

> to share. I want to help, but I can't do it without others. I need

> your support.

>

> First, we must be the same page working together to achieve the same

> goals:

>

> I am looking for a small team of people who want to go to the next

> step.

>

> Let's work on solving the problem together. A small group is more

> effective than 1 or 2 people.

>

>

> If anyone is interested, I will have a conference call on Saturday,

> August 5 at 9:00 p.m. Eastern time.

> You can call 712-432-3000 Bridge No. 121019 Please announce your

> name upon entering. Please mark your calendars. If that time is not

> good for you, but you can't join, please call or email me. Bring

> your ideas with you or send me an email.

>

> I want to leave you with 2 quotes:

>

> Vision without execution is daydreaming. Bill Gates

>

> Venting is problem identification, not problem solving. Harry E.

> Chambers

>

>

> There's a lot of good energy on this group so that channel it

> outward so others can see us.

>

> Please send your emails offline to me at mold_activist@...

> I do not want to burden KC/Sharon with a lot of emails.

>

> Please feel free to call me at 301-466-1805.

>

> Letitia s

>

> P.S. I will not be available tonight after 9:00 p.m. Eastern

tonight.

> I have asked my friends,family,co-workers, and associates to join me

> in prayer for mold victims.

> You are all invited to call 712-432-3000 Bridge No. 121019.

> 9:00 -9:30 p.m. or 10:00 - 10:30 p.m, or 11:00 - 11:30 p.m. or

> 11:35 - midnight. All times are Eastern times. Tomorrow, I will

> start a 40 day prayer/fasting for mold victims and some of my

> friends are joining me. This prayer service is open to all

religions.

>

[Guest guest]

Hey Jeanine-

About 'wanting attention' - when I have enough

strength, I do counseling with health patients,

and I have a very high tolerance for people

feeling all kinds of frustration while they're

coming to terms with limitations and pain and

figuring out how to live with them. It's a

natural stage of contending with ignorance and

intolerance of people who don't understand what

it is to go through the struggle. But most

people get past that stage to a place where they

are able to take steps to find at least SOME

doctors and friends who understand and can help

us make the best of the challenge. Our best

isn't always good enough - I've been there and

done that, as most of us have.

Yes, there IS a difference between pity and

compassion, and no, I don't think anyone wants

pity - it rarely gets one what they need -

someone who pities can only listen for so long

before their eyes glaze over. They are likely to

tell you to think about how things are going to

get better without helping you visualize how to

get from here to there. Someone who has

compassion about your situation is going to

listen better and and answer thoughtfully, and

will hold your hand when you lose your grip, as

all of us may.

BTW: cancer 'survivers' are not necessarily

cancer-free... they're simply folks who have made

it across an obstacle course to where they are,

and generally there are no promises. Some are

cancer free, some in remission, some just not

actively dying at a clip, and there are many

variations in between. So, perhaps we don't

understand the plight of cancer patients the way

others misunderstand our experience?

I came to the mold 'game,' if you will, after a

number of other stuff, much of which I have under

control and livable but could become

life-threatening at the drop of a hat... I'm

still trying to get to the bottom of my mold

stuff, but having watched my neighbor deteriorate

and DIE from his exposure has me understanding

just how serious it is. I've been working hand

in glove with his mother to address the neglect

that happened and learning more about my own

situation as I go along.

I TRULY understand about people who struggle when

their doctors and family and friends don't have

the first clue as to what they are struggling

with... actually, I lost my closest friend at

work after complications with one of my early

open heart surgeries - it blew here mind to get

to know someone her own age nearly die in surgery

and then have the kinds of troubles I did

subsequently. Big deal, perhaps, but then my

marriage fell apart when my ex husband wasn't

able to communicate with me after my miscarriage

the following year and an emergency redo on the

valve surgery, this time after being in

congestive heart failure and v-fib, very messy

stuff - He didn't know how to communicate with

me.

You question about MY health comes across as a

bit personal - I'm not looking to get competitive

with everyone - we each have our own challenges

or we wouldn't have sought out other folks to see

what they've learned. My exposure very nearly

killed me two years ago when it contributed to my

bleeding-out after a *minor* surgery - they split

me down the middle and pumped 3 liters of blood

out of my abdomen so I could heal. My exposure

also triggered progression of a previously

unknown congenital kidney disease. My renal

function is now under 50% - as you may know, one

doesn't get on the transplant list until the low

20s or start dialysis until about 12, neither of

which I'm likely to survive given my history of

complications and trouble with bloodthinners

because of my artificial heart valve. While I

have a lot of kidney now, my function did plummet

over 10 percentage points in the last six months,

which I find very spooky. My peripheral

neuropathy and positional hypotension (which

typically runs 85/55) are pretty minor compared

to the dizzy spells and exhertion fatigue in

terms of daily challenges. My situation may not

be what yours is, but I've been round the block.

We each have our wn experiences...

~Haley

--- who <jeaninem660@...> wrote:

> Haley,

> does the word " victim " mean that that person is

> asking you to pity

> them or does it mean that they have been hurt

> and need help.

> I personally dont think there is such a thing

> as pity, you either

> care or you dont,what you think is someone

> wanting pity may just be

> someone wanting help and getting aggervated

> because they cant get

> any. theres also a big difference in someone

> looking for pity

> " attention " and someone going through a hard

> time and just needing

> someone to listin while they vent for what ever

> is bothering them.

> does mold suviver give the impression like

> canser suviver(meaning all

> better now)? do you know if your all better now

> or is there a very

> good possability that you will keep the illness

> that mold has givin

> you.

>

> >

> > Ah, Jeanine -

> >

> > Part of it comes from what we want back

> from folks we are

> attempting to teach. The #2 definition I've

> got in Webster's

> is " dupe. "

> >

> > Well, I'm no dupe anymore, and daily you

> work tirelessly to

> educate yourself and those around you about the

> severity of the

> problems that to date are invisible to most

> others.

> >

> > What is it we want: do we want to educate

> so others can work

> with us and advance understanding of prevention

> and healing or do we

> want pity? In my experience, it still takes a

> buck along with pity

> to get a cuppa joe -

> >

> > To my mind, you're been seriously

> victimized but you aren't a

> victim, and if we're not all there yet

> ourselves, that's the goal in

> order to really start finding what will work

> for us for healing.

> I've been working on health and disability

> issues for decades prior

> to bumping into the catastophe of mold - the

> way we define ourselves

> has a GREAT deal to do with how others will see

> us and feel about

> us. To claim victimhood is generally not

> effective in getting

> support from others - they may throw enough

> money at it to assuage

> their guilt, but they won't often engage in

> supporting us toward

> wholescale understanding, prevention,

> remediation and healing.

> >

> > ~Haley

> >

> > who <jeaninem660@...> wrote:

> > " letitia0514 "

> > THANK YOU SO MUCH FOR WHAT YOU ARE DOING! I

> think 'victims " is a

> fine

> > word, it's your deal, you do it the way you

> want. just the fact

> that

> > your ill and trying to do what you can to

> help other victims is

> great.

> > and yes, we are all victims, that doesn't

> mean we are not fighters.

> > some are more ill than others.and if their

> family is amoung the non-

> > believers than they have even more right to

> fell like a victim.

> > this is a most horrible deal to go through

> and it may be easy for

> > some who are not as ill to forget or not

> understand how ill others

> > may truely be. not all of us can afford to

> get any medical help or

> > cannot find it even if we could afford it. we

> all do what we can

> even

> > if that just means only being able to try to

> help ourselfs some how.

> > some dont have enough energy to even do that.

> theres times I fell

> so

> > bad i consider righting a plee post just

> begging for someone to

> help

> > me get through this, but my pride stops me

> from doing so. some have

> > and my heart goes out to them because I know

> the place that they

> are

> > in. all I can do is say a prayer for them to

> get some help.

> > everyone that goes through this starts out as

> a victim, some get

> > better, some dont. I think we all need to

> keep this in our minds.

> > we are victims and many of us need help, if

> we are unlaibled as

> > victims, what does that really say to the

> public? is it not bad

> > enough that those who do not understand just

> how this can devastate

> > your life may not see us as victims?

> >

> > >

> > > Hello all:

> > >

> > > i have been reading the e-mails and a lot

> has been said about the

> > > word " victims " , which is the name that I

> called the conference

> > > calls, which can be CHANGED. If you look up

> the word victim, it

> > > means " a person who suffers injury, loss or

> death " . We have all

> > > suffer in one of more of these categories.

> Is that true? I do

> > > appreciate your comments and the name of

> the Conference

> Calls/Videos

> > > can be CHANGED. Maybe, I should have left

> the previous name " The

> > > Mold Buddies Support Group Conference

> Calls. " I do like the

> > > name " Mold Survivors " as well. I don't know

> about using Mold

> > > Warriors, because there maybe a trademark

> issue and I don't want

> to

> > > get into that.

> > >

> > > What is mindboggling to me is that I have

> seen more emails about

> > > the " languaging " than people wanting to

> help or participate.

> > > Actually one person out of 1800 people sent

> me an email saying

> that

> > > she wanted to help with putting together

> the media kit and wanted

> to

> > > participate in the conference calls because

> she was new to the

> > > group. Thank you, " Ms. D " .

> > >

> > > I would like to focus on the bigger

> picture, what can we do to

> make

> > > a change/impact that the mycotoxins from

> mold exposures can cause

> > > devastating health effects on people's

> lives, even cause death. It

> > > is us against the " SYSTEM " . Let's put our

> efforts towards uniting

> to

> > > do this.

> > >

> > > I know everyone is at a different place

> financially and health

> wise

> > > and I am aware of that. You can only do

> with what you can. I would

> > > never expect anyone to do what they can't

> do.

> > >

> > > I thought that the conference calls would

> be another way for us to

> > > communicate verbally, especially for the

> newbies of the group.

> Yes,

> > > I was disappointed by the turnout

> previously. I also thought it

> was

> > > great to share information among ourselves

> and also take some of

> the

> > > burden off of KC who has been instrumental

> in supporting all

> > > 1800+ of us 7 days a week. (This is me

> talking

> > > not KC/Sharon.) Sometimes it is easier to

> explain things verbally

> > > than in writing. Wouldn't you agree?

> > >

> > > It was great talking to people and actually

> putting a voice to the

> > > emails. As a resut, one of my highlights

> was actually meeting, Sue

> > > from land. We talked for hours and

> meeting a fellow " mold

> buddy "

> > > was awesome.

> > >

> > > It was decided that Saturdays were perfect,

> because people

> > > have " FREE " minutes on the weekend and 8:00

> p.m. Eastern time was

> > > the time. The previous conference call was

> non-structured, without

> > > an agenda, but this one will be structured

> with an agenda. I did

> > > that purposely because I wanted to get a

> feel of the dynamics of

> the

> > > group because I really did not know anyone.

> > >

> > > I would like to start that up again, but

> with your

> > input/suggestions.

> > >

> > >

> > > So of you are probably wondering who am I?

> > >

> > > I was a test engineer, systems engineer,

> project manager with the

> > > federal government in DC, managing projects

> $10-$65 million. I

> have

> > > experience in bringing people together to

> achieve goals. For the

> > > past 12 years, I have learned and

> experienced the government

> > > bureaucracy so I know how the game is

> played. I guess that I am

> in a

> > > different place because I have been a

> " VICTIM " for a majority of

> my

> > > life. Yes, I am a VICTIM, but I do not

> allow that to defy me or

> stop

> > > me from achieving my goals. Another

> definition is " one who is

> harmed

> > > by or made to suffer from an

> act,circumstances, agency, or

> > > condition.' I also own a event management

> company so I have

> > > experience in dealing with the media and

> getting in print and on

> the

> > > radio station in the DC area.

> > >

> > > I hate what was done to me and to you. I

> can not sit here and let

> > > this issue continue without a fight. I have

> a purpose for being

> here

> > > and I want to do something good for others.

> Yes, it will be a long

> > > and hard battle, but I have been fighting

> all of my life. I have

> > > been put here for a reason. I have so many

> ideas that I would like

> > > to share. I want to help, but I can't do it

> without others. I need

> > > your support.

> > >

> > > First, we must be the same page working

> together to achieve the

> same

> > > goals:

> > >

> > > I am looking for a small team of people who

> want to go to the next

> > > step.

> > >

> > > Let's work on solving the problem together.

> A small group is more

> > > effective than 1 or 2 people.

> > >

> > >

> > > If anyone is interested, I will have a

> conference call on

> Saturday,

> > > August 5 at 9:00 p.m. Eastern time.

> > > You can call 712-432-3000 Bridge No. 121019

> Please announce your

> > > name upon entering. Please mark your

> calendars. If that time is

> not

> > > good for you, but you can't join, please

> call or email me. Bring

> > > your ideas with you or send me an email.

> > >

> > > I want to leave you with 2 quotes:

> > >

> > > Vision without execution is daydreaming.

> Bill Gates

> > >

> > > Venting is problem identification, not

> problem solving. Harry E.

> > > Chambers

> > >

> > >

> > > There's a lot of good energy on this group

> so that channel it

> > > outward so others can see us.

> > >

> > > Please send your emails offline to me at

> mold_activist@

> > > I do not want to burden KC/Sharon with a

> lot of emails.

> > >

> > > Please feel free to call me at

> 301-466-1805.

> > >

> > > Letitia s

> > >

> > > P.S. I will not be available tonight after

> 9:00 p.m. Eastern

> > tonight.

> > > I have asked my friends,family,co-workers,

> and associates to join

> me

> > > in prayer for mold victims.

> > > You are all invited to call 712-432-3000

> Bridge No. 121019.

> > > 9:00 -9:30 p.m. or 10:00 - 10:30 p.m, or

> 11:00 - 11:30 p.m. or

> > > 11:35 - midnight. All times are Eastern

> times. Tomorrow, I will

> > > start a 40 day prayer/fasting for mold

> victims and some of my

> > > friends are joining me. This prayer service

> is open to all

> > religions.

> > >

> >

> >

> >

> >

> >

> >

> > [Non-text portions of this message have been

> removed]

> >

>

>

>

>

>

>

>

>

[Guest guest]

EXACTLY my point. ;-) Pity does not = help. Yes!

I actually think the Katrina folks will end up telling their grandchildren

that they are Katrina survivors, but you would have guessed that I think so...

;-)

Yeah, it's good when folks feel strong enough that they can reach out and help

others. ;-)

~Haley

who <jeaninem660@...> wrote:

Haley, I didn't know I made reference to your health, I was thinking

about Katrina victims as they are called, and they got a lot of " pity "

but many still wait for help. I was thinking about someone older on

this board that may be to ill to help herself and really needs help.

I was thinking about some here that are just to ill to maybe offer

Letita help even though they would like to, and some that may not

even have enough energy to post. and yes, we have to take care of

ourself first and if, along the way we can do something to help

others it's great. what you are doing is great, it all gets us a step

closer. we all just do what we can, some have the means to do more

than others, some are still victims. maybe if the only ones that fell

up to helping Letita dont consider their self a victim it should be

changed, but isn't the whole purpose to help the victims? or is it

something else. Im a victim of mold, and I've never been a weak

minded person,I have worked right along with men my whole life, and

raised my childen alone. I am known to be so strong minded that my

family assumes that I can get through anything and I usually do.

Im so bullhead and set in my ways that I dont want a man in my life

if it means i have to give up anything of who i am. even if one came

around that didn't stink,lol's. I am angery and fusterated at haveing

this exposure at the hands of others evilways, its compounded by

the lack of understanding, lack of proper medical help, lack of

knowledge by science. there are some sicker than me, there are some

not as sick. thats not the point. the only point I was trying to make

is that we are all victims of mold and we allways will be, no matter

how we adjust. Katrina victims will always be Katrina victims, when

they tell their grandchildren their storys, wont they say'I was a

Katrina victim'? than they will tell them how they overcame the

strugle. dont you think theres a difference in how the public

precieves the word 'victim' and how the victim precieves it?

have I rolled over and let it take me, no, neither have you, but we

still are mold victims.

>

> Hey Jeanine-

>

> About 'wanting attention' - when I have enough

> strength, I do counseling with health patients,

> and I have a very high tolerance for people

> feeling all kinds of frustration while they're

> coming to terms with limitations and pain and

> figuring out how to live with them. It's a

> natural stage of contending with ignorance and

> intolerance of people who don't understand what

> it is to go through the struggle. But most

> people get past that stage to a place where they

> are able to take steps to find at least SOME

> doctors and friends who understand and can help

> us make the best of the challenge. Our best

> isn't always good enough - I've been there and

> done that, as most of us have.

>

> Yes, there IS a difference between pity and

> compassion, and no, I don't think anyone wants

> pity - it rarely gets one what they need -

> someone who pities can only listen for so long

> before their eyes glaze over. They are likely to

> tell you to think about how things are going to

> get better without helping you visualize how to

> get from here to there. Someone who has

> compassion about your situation is going to

> listen better and and answer thoughtfully, and

> will hold your hand when you lose your grip, as

> all of us may.

>

> BTW: cancer 'survivers' are not necessarily

> cancer-free... they're simply folks who have made

> it across an obstacle course to where they are,

> and generally there are no promises. Some are

> cancer free, some in remission, some just not

> actively dying at a clip, and there are many

> variations in between. So, perhaps we don't

> understand the plight of cancer patients the way

> others misunderstand our experience?

>

> I came to the mold 'game,' if you will, after a

> number of other stuff, much of which I have under

> control and livable but could become

> life-threatening at the drop of a hat... I'm

> still trying to get to the bottom of my mold

> stuff, but having watched my neighbor deteriorate

> and DIE from his exposure has me understanding

> just how serious it is. I've been working hand

> in glove with his mother to address the neglect

> that happened and learning more about my own

> situation as I go along.

>

> I TRULY understand about people who struggle when

> their doctors and family and friends don't have

> the first clue as to what they are struggling

> with... actually, I lost my closest friend at

> work after complications with one of my early

> open heart surgeries - it blew here mind to get

> to know someone her own age nearly die in surgery

> and then have the kinds of troubles I did

> subsequently. Big deal, perhaps, but then my

> marriage fell apart when my ex husband wasn't

> able to communicate with me after my miscarriage

> the following year and an emergency redo on the

> valve surgery, this time after being in

> congestive heart failure and v-fib, very messy

> stuff - He didn't know how to communicate with

> me.

>

> You question about MY health comes across as a

> bit personal - I'm not looking to get competitive

> with everyone - we each have our own challenges

> or we wouldn't have sought out other folks to see

> what they've learned. My exposure very nearly

> killed me two years ago when it contributed to my

> bleeding-out after a *minor* surgery - they split

> me down the middle and pumped 3 liters of blood

> out of my abdomen so I could heal. My exposure

> also triggered progression of a previously

> unknown congenital kidney disease. My renal

> function is now under 50% - as you may know, one

> doesn't get on the transplant list until the low

> 20s or start dialysis until about 12, neither of

> which I'm likely to survive given my history of

> complications and trouble with bloodthinners

> because of my artificial heart valve. While I

> have a lot of kidney now, my function did plummet

> over 10 percentage points in the last six months,

> which I find very spooky. My peripheral

> neuropathy and positional hypotension (which

> typically runs 85/55) are pretty minor compared

> to the dizzy spells and exhertion fatigue in

> terms of daily challenges. My situation may not

> be what yours is, but I've been round the block.

>

>

> We each have our wn experiences...

>

> ~Haley

>

> --- who <jeaninem660@...> wrote:

>

> > Haley,

> > does the word " victim " mean that that person is

> > asking you to pity

> > them or does it mean that they have been hurt

> > and need help.

> > I personally dont think there is such a thing

> > as pity, you either

> > care or you dont,what you think is someone

> > wanting pity may just be

> > someone wanting help and getting aggervated

> > because they cant get

> > any. theres also a big difference in someone

> > looking for pity

> > " attention " and someone going through a hard

> > time and just needing

> > someone to listin while they vent for what ever

> > is bothering them.

> > does mold suviver give the impression like

> > canser suviver(meaning all

> > better now)? do you know if your all better now

> > or is there a very

> > good possability that you will keep the illness

> > that mold has givin

> > you.

> >

> > >

> > > Ah, Jeanine -

> > >

> > > Part of it comes from what we want back

> > from folks we are

> > attempting to teach. The #2 definition I've

> > got in Webster's

> > is " dupe. "

> > >

> > > Well, I'm no dupe anymore, and daily you

> > work tirelessly to

> > educate yourself and those around you about the

> > severity of the

> > problems that to date are invisible to most

> > others.

> > >

> > > What is it we want: do we want to educate

> > so others can work

> > with us and advance understanding of prevention

> > and healing or do we

> > want pity? In my experience, it still takes a

> > buck along with pity

> > to get a cuppa joe -

> > >

> > > To my mind, you're been seriously

> > victimized but you aren't a

> > victim, and if we're not all there yet

> > ourselves, that's the goal in

> > order to really start finding what will work

> > for us for healing.

> > I've been working on health and disability

> > issues for decades prior

> > to bumping into the catastophe of mold - the

> > way we define ourselves

> > has a GREAT deal to do with how others will see

> > us and feel about

> > us. To claim victimhood is generally not

> > effective in getting

> > support from others - they may throw enough

> > money at it to assuage

> > their guilt, but they won't often engage in

> > supporting us toward

> > wholescale understanding, prevention,

> > remediation and healing.

> > >

> > > ~Haley

> > >

> > > who <jeaninem660@> wrote:

> > > " letitia0514 "

> > > THANK YOU SO MUCH FOR WHAT YOU ARE DOING! I

> > think 'victims " is a

> > fine

> > > word, it's your deal, you do it the way you

> > want. just the fact

> > that

> > > your ill and trying to do what you can to

> > help other victims is

> > great.

> > > and yes, we are all victims, that doesn't

> > mean we are not fighters.

> > > some are more ill than others.and if their

> > family is amoung the non-

> > > believers than they have even more right to

> > fell like a victim.

> > > this is a most horrible deal to go through

> > and it may be easy for

> > > some who are not as ill to forget or not

> > understand how ill others

> > > may truely be. not all of us can afford to

> > get any medical help or

> > > cannot find it even if we could afford it. we

> > all do what we can

> > even

> > > if that just means only being able to try to

> > help ourselfs some how.

> > > some dont have enough energy to even do that.

> > theres times I fell

> > so

> > > bad i consider righting a plee post just

> > begging for someone to

> > help

> > > me get through this, but my pride stops me

> > from doing so. some have

> > > and my heart goes out to them because I know

> > the place that they

> > are

> > > in. all I can do is say a prayer for them to

> > get some help.

> > > everyone that goes through this starts out as

> > a victim, some get

> > > better, some dont. I think we all need to

> > keep this in our minds.

> > > we are victims and many of us need help, if

> > we are unlaibled as

> > > victims, what does that really say to the

> > public? is it not bad

> > > enough that those who do not understand just

> > how this can devastate

> > > your life may not see us as victims?

> > >

> > > >

> > > > Hello all:

> > > >

> > > > i have been reading the e-mails and a lot

> > has been said about the

> > > > word " victims " , which is the name that I

> > called the conference

> > > > calls, which can be CHANGED. If you look up

> > the word victim, it

> > > > means " a person who suffers injury, loss or

> > death " . We have all

> > > > suffer in one of more of these categories.

> > Is that true? I do

> > > > appreciate your comments and the name of

> > the Conference

> > Calls/Videos

> > > > can be CHANGED. Maybe, I should have left

> > the previous name " The

> > > > Mold Buddies Support Group Conference

> > Calls. " I do like the

> > > > name " Mold Survivors " as well. I don't know

> > about using Mold

> > > > Warriors, because there maybe a trademark

> > issue and I don't want

> > to

> > > > get into that.

> > > >

> > > > What is mindboggling to me is that I have

> > seen more emails about

> > > > the " languaging " than people wanting to

> > help or participate.

> > > > Actually one person out of 1800 people sent

> > me an email saying

> > that

> > > > she wanted to help with putting together

> > the media kit and wanted

> > to

> > > > participate in the conference calls because

> > she was new to the

> > > > group. Thank you, " Ms. D " .

> > > >

> > > > I would like to focus on the bigger

> > picture, what can we do to

> > make

> > > > a change/impact that the mycotoxins from

> > mold exposures can cause

> > > > devastating health effects on people's

> > lives, even cause death. It

> > > > is us against the " SYSTEM " . Let's put our

> > efforts towards uniting

> > to

> > > > do this.

> > > >

> > > > I know everyone is at a different place

> > financially and health

> > wise

> > > > and I am aware of that. You can only do

> > with what you can. I would

> > > > never expect anyone to do what they can't

> > do.

> > > >

> > > > I thought that the conference calls would

> > be another way for us to

> > > > communicate verbally, especially for the

> > newbies of the group.

> > Yes,

> > > > I was disappointed by the turnout

> > previously. I also thought it

> > was

> > > > great to share information among ourselves

> > and also take some of

> > the

> > > > burden off of KC who has been instrumental

> > in supporting all

> > > > 1800+ of us 7 days a week. (This is me

> > talking

> > > > not KC/Sharon.) Sometimes it is easier to

> > explain things verbally

> > > > than in writing. Wouldn't you agree?

> > > >

> > > > It was great talking to people and actually

> > putting a voice to the

> > > > emails. As a resut, one of my highlights

> > was actually meeting, Sue

> > > > from land. We talked for hours and

> > meeting a fellow " mold

> > buddy "

> > > > was awesome.

> > > >

> > > > It was decided that Saturdays were perfect,

> > because people

> > > > have " FREE " minutes on the weekend and 8:00

> > p.m. Eastern time was

> > > > the time. The previous conference call was

> > non-structured, without

> > > > an agenda, but this one will be structured

> > with an agenda. I did

> > > > that purposely because I wanted to get a

> > feel of the dynamics of

> > the

> > > > group because I really did not know anyone.

> > > >

> > > > I would like to start that up again, but

> > with your

> > > input/suggestions.

> > > >

> > > >

> > > > So of you are probably wondering who am I?

> > > >

> > > > I was a test engineer, systems engineer,

> > project manager with the

> > > > federal government in DC, managing projects

> > $10-$65 million. I

> > have

> > > > experience in bringing people together to

> > achieve goals. For the

> > > > past 12 years, I have learned and

> > experienced the government

> > > > bureaucracy so I know how the game is

> > played. I guess that I am

> > in a

> > > > different place because I have been a

> > " VICTIM " for a majority of

> > my

> > > > life. Yes, I am a VICTIM, but I do not

> > allow that to defy me or

> > stop

> > > > me from achieving my goals. Another

> > definition is " one who is

> > harmed

> > > > by or made to suffer from an

> > act,circumstances, agency, or

> > > > condition.' I also own a event management

> > company so I have

> > > > experience in dealing with the media and

> > getting in print and on

> > the

> > > > radio station in the DC area.

> > > >

> > > > I hate what was done to me and to you. I

> > can not sit here and let

> > > > this issue continue without a fight. I have

> > a purpose for being

> > here

> > > > and I want to do something good for others.

> > Yes, it will be a long

> > > > and hard battle, but I have been fighting

> > all of my life. I have

> > > > been put here for a reason. I have so many

> > ideas that I would like

> > > > to share. I want to help, but I can't do it

> > without others. I need

> > > > your support.

> > > >

> > > > First, we must be the same page working

> > together to achieve the

> > same

> > > > goals:

> > > >

> > > > I am looking for a small team of people who

> > want to go to the next

> > > > step.

> > > >

> > > > Let's work on solving the problem together.

> > A small group is more

> > > > effective than 1 or 2 people.

> > > >

> > > >

> > > > If anyone is interested, I will have a

> > conference call on

> > Saturday,

> > > > August 5 at 9:00 p.m. Eastern time.

> > > > You can call 712-432-3000 Bridge No. 121019

> > Please announce your

> > > > name upon entering. Please mark your

> > calendars. If that time is

> > not

> > > > good for you, but you can't join, please

> > call or email me. Bring

> > > > your ideas with you or send me an email.

> > > >

> > > > I want to leave you with 2 quotes:

> > > >

> > > > Vision without execution is daydreaming.

> > Bill Gates

> > > >

> > > > Venting is problem identification, not

> > problem solving. Harry E.

> > > > Chambers

> > > >

> > > >

> > > > There's a lot of good energy on this group

> > so that channel it

> > > > outward so others can see us.

> > > >

> > > > Please send your emails offline to me at

> > mold_activist@

> > > > I do not want to burden KC/Sharon with a

> > lot of emails.

> > > >

> > > > Please feel free to call me at

> > 301-466-1805.

> > > >

> > > > Letitia s

> > > >

> > > > P.S. I will not be available tonight after

> > 9:00 p.m. Eastern

> > > tonight.

> > > > I have asked my friends,family,co-workers,

> > and associates to join

> > me

> > > > in prayer for mold victims.

> > > > You are all invited to call 712-432-3000

> > Bridge No. 121019.

> > > > 9:00 -9:30 p.m. or 10:00 - 10:30 p.m, or

> > 11:00 - 11:30 p.m. or

> > > > 11:35 - midnight. All times are Eastern

> > times. Tomorrow, I will

> > > > start a 40 day prayer/fasting for mold

> > victims and some of my

> > > > friends are joining me. This prayer service

> > is open to all

> > > religions.

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > [Non-text portions of this message have been

> > removed]

> > >

> >

> >

> >

> >

> >

> >

> >

> >

>

~Haley