Re: MCS 1998, gots, everything to do with it

[Guest guest]

who wrote:

> http://www.cqs.com/mcs.htm <http://www.cqs.com/mcs.htm>

>

Who keeps posting these great articles. I can't keep up?

This one is excellent. - angela

>

[Guest guest]

> http://www.cqs.com/mcs.htm <http://www.cqs.com/mcs.htm>

Wow. What a coincidence!

It was in 1998 that I told Dr that I was no longer

a " universal reactor " and that my chemical sensitivities had abated

from a strategy of extreme mold avoidance alone.

Much to my amazement, it is the sufferers who denied the

possibility even more vehemently than the doctors who don't believe

MCS even exists.

When I went to CFS support groups, I would find people blazing with

mold cross contamination and complaining of all the same clues that

led me to my conclusions, yet they vigorously denied that mold could

have any such effect.

I didn't expect people looking for anything that might help to

reject the " mycotoxin connection " so swiftly, without even the

slightest consideration that I have no reason for trying to fool

them, but this is what happened.

It's all history now.

-

[Guest guest]

TILT would be better name for MCS as article states, just as CFS needs

a new name, as most people think it means tired, which everyone

experiences. Theory I have read that disease could be explained by

body becoming over loaded with chemicals and therefore not being able

to take any more chemical exposure. We may not know how to rid body

of some of the many new chemicals we are being exposed to. Liver

could be culprit and detox methods for liver may just not 'address'

the chemicals involved. We know how to get rid of lead, mercury,

learning how to get rid of mycotoxins but perhaps these detox agents

do nothing for other chemicals that have become 'stuck' in our

bodies/liver or kidneys.

>

> > http://www.cqs.com/mcs.htm <http://www.cqs.com/mcs.htm>

> >

>

> Who keeps posting these great articles. I can't keep up?

> This one is excellent. - angela

[Guest guest]

" barb1283 " wrote:

> TILT would be better name for MCS as article states, just as CFS

needs a new name, as most people think it means tired, which

everyone experiences.<

TILT would be OK except that it too easily lends itself to derision.

" Tilted " has vague mental implications.

As a prototypical case for " Incline Village disease " , I was

standing in Dr Cheney's office when word came back that the CDC was

going to call our illness " Chronic Fatigue Syndrome " .

I must have given Dr Cheney a funny look, because he instantly

replied that this was only a provisional name to until the CDC had a

chance to determine what the illness was - and what it should be

called: " Probably not more than a month or two " .

And we all know how that turned out.

We completely underestimated how bitterly people fought to deny the

illness and tear us to shreds at every turn.

I'm afraid that these same people would use TILT in a campaign of

scorn and derision, just as was done with CFS.

-

[Guest guest]

Dr. Mikllers credientials are impeccible! From an academic to

government agencies she has sat on and been an adivsor to.

TILT is an accurate name and her research is at the forefront and even NIH

is looking into her abduction and addiction theory. That chemcial injury

avolidance is the opposite side of the coin to say alcoholism.

On Sun, 25 Jun 2006, erikmoldwarrior wrote:

> Date: Sun, 25 Jun 2006 16:32:27 -0000

> From: erikmoldwarrior <erikmoldwarrior@...>

> Reply-

>

> Subject: [] Re: MCS 1998, gots, everything to do with it

>

> " barb1283 " wrote:

>> TILT would be better name for MCS as article states, just as CFS

> needs a new name, as most people think it means tired, which

> everyone experiences.<

>

>

> TILT would be OK except that it too easily lends itself to derision.

> " Tilted " has vague mental implications.

>

> As a prototypical case for " Incline Village disease " , I was

> standing in Dr Cheney's office when word came back that the CDC was

> going to call our illness " Chronic Fatigue Syndrome " .

> I must have given Dr Cheney a funny look, because he instantly

> replied that this was only a provisional name to until the CDC had a

> chance to determine what the illness was - and what it should be

> called: " Probably not more than a month or two " .

>

> And we all know how that turned out.

>

> We completely underestimated how bitterly people fought to deny the

> illness and tear us to shreds at every turn.

> I'm afraid that these same people would use TILT in a campaign of

> scorn and derision, just as was done with CFS.

> -

>

>

>

>

>

>

>

>

>

> FAIR USE NOTICE:

>

>

>

[Guest guest]

Very interesting hypothesis with Dr. Mikllers. Are there any links

to any papers she has written?

I never thought of mold exposure/MCS in this way. Yet it makes perfect

sense. Addiction is considered to be a progressive disease. What is meant by

this is that even if an alcoholic or addict abstains from drugs and or alcohol

for years and picks up a drink and or drug again, the illness of addiction is

exacerbated. This is the very reason that recovering alcoholics even with

20, 30 or more years of sobriety continue to identify as alcoholics. CAT Scans

of the brains of addicts show the neurobiological basis to addiction.

This is exactly what is happening with individuals ill from mold exposure.

The main difference here is that it is becoming more and more challenging to

find environments free from toxic molds and chemical odors. In essence,

making it nearly impossible for those suffering from mold exposure/MSC to fully

recover.

In a message dated 6/26/2006 8:20:57 AM Central Standard Time,

jap2bemc@... writes:

Dr. Mikllers credientials are impeccible! From an academic to

government agencies she has sat on and been an adivsor to.

TILT is an accurate name and her research is at the forefront and even NIH

is looking into her abduction and addiction theory. That chemcial injury

avolidance is the opposite side of the coin to say alcoholism.

On Sun, 25 Jun 2006, erikmoldwarrior wrote:

> Date: Sun, 25 Jun 2006 16:32:27 -0000

> From: erikmoldwarrior <_erikmoldwarrior@erikmoldwaeri_

(mailto:erikmoldwarrior@...) >

> Reply-_@ic_

(mailto: )

> _@ic_ (mailto: )

> Subject: [] Re: MCS 1998, gots, everything to do with it

>

> " barb1283 " wrote:

>> TILT would be better name for MCS as article states, just as CFS

> needs a new name, as most people think it means tired, which

> everyone experiences.<

>

>

> TILT would be OK except that it too easily lends itself to derision.

> " Tilted " has vague mental implications.

>

> As a prototypical case for " Incline Village disease " , I was

> standing in Dr Cheney's office when word came back that the CDC was

> going to call our illness " Chronic Fatigue Syndrome " .

> I must have given Dr Cheney a funny look, because he instantly

> replied that this was only a provisional name to until the CDC had a

> chance to determine what the illness was - and what it should be

> called: " Probably not more than a month or two " .

>

> And we all know how that turned out.

>

> We completely underestimated how bitterly people fought to deny the

> illness and tear us to shreds at every turn.

> I'm afraid that these same people would use TILT in a campaign of

> scorn and derision, just as was done with CFS.

> -

>

>

>

>

>

>

>

>

>

[Guest guest]

> Very interesting hypothesis with Dr. Mikllers. Are there > any links

to any papers she has written?

http://www.safer-world.org/e/disease/MCS/mcs.htm

http://www.pubmedcentral.nih.gov/articlerender.fcgi?artid=1314940

Chemical Exposure: Low Levels and High Stakes, 2nd ed, Ashford and

.

Google " TILT " or " QEESI "

Carl Grimes

Healthy Habitats LLC

[Guest guest]

I may be wrong, but I'm thinking that Dr. A. Constantini first used

the term toxic induced loss of tolerence(tilt). I think in the

70's.

>

> > Very interesting hypothesis with Dr. Mikllers. Are there

> any links to any papers she has written?

>

> http://www.safer-world.org/e/disease/MCS/mcs.htm

>

> http://www.pubmedcentral.nih.gov/articlerender.fcgi?artid=1314940

>

> Chemical Exposure: Low Levels and High Stakes, 2nd ed, Ashford and

> .

>

> Google " TILT " or " QEESI "

>

> Carl Grimes

> Healthy Habitats LLC

>