Re: Re: Stares

[Guest guest]

our son wore his bike helmet for 1 hour to see if he could relate to olivia.

[Guest guest]

Ha! I know about stares, and you may get used to them where you don't even

notice anymore.. my dad has had osteoporosis as long as I can remember and

people would always point and stare wherever we'd go and say look at

the hunchback! for the most part they are just curious and don't mean any

harm...It seems I would just assume it was a bicycle helmet or something like

that and the kid likes to wear it and it's not worth the fight

telling him/her no! ; ) diane

Dawn wrote:

> BelindaIt makes me mad too when you catch someone staring and whispering.

Iwould much rather them come up and ask instead of trying to assume. I think

youd be doing the right thing by contacting the manager. Dawn

>

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[Guest guest]

Hi Everyone

The reason people look and stare is that they are uneducated on the problem.

I prospose a national rally day where we go to our local city hall with

posters to inform the public of this Great American Tragedy that is taking

place all across America.

We could rally across America on the same day, at the same time. It takes

all of us coming together to stop this lie. The " Back to Sleep " brochure

states that there are " no other problems " other than possible choking on

spit. This is a lie. We must set the record straight. I love babies and it

pains me to think the American Academy of Pediatrics can let this continue.

How could I trust them? Just look at their track record. I should have

known. They recommended circumcision (sp?). Now they recommend back

sleeping. They don't know what they are doing. They make me sick.

We must rally peacefully. We must inform the public. No one else is doing

it. No one else will do it.

Do you care about babies? Do you want to see this lie continue? I have

nothing against bringing the SIDS rate down. But let's not lie about the

side effects of backing sleeping.

Judy

[Guest guest]

I am new here Judy but I agree 100% that is what CAPS is starting to do and I have talked with and and hope to have all of you join our campaign to help better inform the doctors out there. That is why I am here to better understand what brought all of you to this point and if the doctors were helpful or not? Thanks Pitchke

-----Original Message-----From: rmissirian@... [mailto:rmissirian@...]Sent: Wednesday, April 12, 2000 1:52 PMPlagiocephalyegroupsSubject: Re: Re: stares Hi EveryoneThe reason people look and stare is that they are uneducated on the problem. I prospose a national rally day where we go to our local city hall with posters to inform the public of this Great American Tragedy that is taking place all across America.We could rally across America on the same day, at the same time. It takes all of us coming together to stop this lie. The "Back to Sleep" brochure states that there are "no other problems" other than possible choking on spit. This is a lie. We must set the record straight. I love babies and it pains me to think the American Academy of Pediatrics can let this continue. How could I trust them? Just look at their track record. I should have known. They recommended circumcision (sp?). Now they recommend back sleeping. They don't know what they are doing. They make me sick.We must rally peacefully. We must inform the public. No one else is doing it. No one else will do it. Do you care about babies? Do you want to see this lie continue? I have nothing against bringing the SIDS rate down. But let's not lie about the side effects of backing sleeping.Judy

[Guest guest]

I think that's a really good idea, . It would be non-combative, educational and stress relieving for you

C./subscribe/Plagiocephaly

----- Original Message -----

From: Kali

Plagiocephalyegroups

Sent: Thursday, May 11, 2000 7:24 PM

Subject: RE: Re: Stares

you know - I'm thinking of having cards made up with a little explanation ofplagiocephaly, and the plagiocephal.org website just to hand out with asmile in such cases... I'm not sure how I would react yet, (on a soapbox dayI could really go off!) -- but I sure do want to educate. I know mostpeople would be embarrassed at being caught and will probably throw itaway... but at least it'll be something proactive I can do... I don'tknow.... thoughts?? I am hoping to get Quinn casted for the DOC band theweek of the 24th.... if the stupid letter of necessity ever arrives!!-----Original Message-----From: jenpin1@... [mailto:jenpin1@...]Sent: Tuesday, April 11, 2000 11:52 PMPlagiocephalyegroupsSubject: Re: StaresBelinda:The stares were the absolute worst part of my daughter wearing theDOC Band--much worse than the casting or wearing it all the time. Itreally infuriated me!!! The closer she got to growing out of it, themore enraged I became when people stared. One lady, as we werewalking into the grocery stored, stared so long as we passed by thatI thought she'd break her neck as she strained it to continuestaring. I know exactly where you've been, but never had thesatisfaction of confronting any of those rude people. Pinkerton--- In Plagiocephalyegroups, "belinda ivetich" <bgles2@a...>wrote:> Hi All, I just needed to share this with someone. Thisafternoon> my mom, the kids and I went shopping. We went in search of Easter> clothes for my son at a store that I have visited before. It is ina> predominantly white middle and upper class area. I don't know ifthis> was racially related or what! I am Mexican but I have been mistaken> for other races. My daughter has dark hair and eyes but fair. Myson> has blonde hair blue eyes. Anyway, no clerk had approached us. Then> the clerk passed us as if we were invisible, to help out a womanthat> entered after us. OK we blew her off!!! As I walked around therack,> the other customer and the clerk totally turned around and staredat> my son. We immidiately became the topic of conversation!!!! Theclerk> was very obvious...making faces, scrunching nose and the whole bit.I> guess she did not realize I had turned to watch their reaction. We> made eye contact and she froze!!! I was HOT....I asked if she had a> question. She turned redder than a lobster and said "oh, I was just> saying that I had never seen anything like that before!!" I did not> know how to react, mixed feelings kicked in. Luckily, my daughterwas> with us, otherwise, I may have either punched her or said some very> rotten things to her. I plan on calling to complain in a.m. unless> she is the manager. Now I know how kids feel when they are picked> on. Sorry this is sooo long...I just cannot believe this> happened. Belinda (Indiana)

[Guest guest]

that is a great idea i like it and might do that myself..lol... jenna picks

up her helmet friday.that is if the guy who makes them comes back from sick

leave, we are used to stares though with twins and all the stupid ?s too

.....lol... like are they id when they are b/g twins

christi

-----Original Message-----

From: Kali <tnt@...>

Plagiocephalyegroups <Plagiocephalyegroups>

Date: Wednesday, April 12, 2000 5:20 PM

Subject: RE: Re: Stares

>you know - I'm thinking of having cards made up with a little explanation

of

>plagiocephaly, and the plagiocephal.org website just to hand out with a

>smile in such cases... I'm not sure how I would react yet, (on a soapbox

day

>I could really go off!) -- but I sure do want to educate. I know most

>people would be embarrassed at being caught and will probably throw it

>away... but at least it'll be something proactive I can do... I don't

>know.... thoughts?? I am hoping to get Quinn casted for the DOC band the

>week of the 24th.... if the stupid letter of necessity ever arrives!!

>

>

>

>

>-----Original Message-----

>From: jenpin1@... [mailto:jenpin1@...]

>Sent: Tuesday, April 11, 2000 11:52 PM

>Plagiocephalyegroups

>Subject: Re: Stares

>

>

>Belinda:

>The stares were the absolute worst part of my daughter wearing the

>DOC Band--much worse than the casting or wearing it all the time. It

>really infuriated me!!! The closer she got to growing out of it, the

>more enraged I became when people stared. One lady, as we were

>walking into the grocery stored, stared so long as we passed by that

>I thought she'd break her neck as she strained it to continue

>staring. I know exactly where you've been, but never had the

>satisfaction of confronting any of those rude people.

>

> Pinkerton

>

>--- In Plagiocephalyegroups, " belinda ivetich " <bgles2@a...>

>wrote:

>> Hi All, I just needed to share this with someone. This

>afternoon

>> my mom, the kids and I went shopping. We went in search of Easter

>> clothes for my son at a store that I have visited before. It is in

>a

>> predominantly white middle and upper class area. I don't know if

>this

>> was racially related or what! I am Mexican but I have been mistaken

>> for other races. My daughter has dark hair and eyes but fair. My

>son

>> has blonde hair blue eyes. Anyway, no clerk had approached us. Then

>> the clerk passed us as if we were invisible, to help out a woman

>that

>> entered after us. OK we blew her off!!! As I walked around the

>rack,

>> the other customer and the clerk totally turned around and stared

>at

>> my son. We immidiately became the topic of conversation!!!! The

>clerk

>> was very obvious...making faces, scrunching nose and the whole bit.

>I

>> guess she did not realize I had turned to watch their reaction. We

>> made eye contact and she froze!!! I was HOT....I asked if she had a

>> question. She turned redder than a lobster and said " oh, I was just

>> saying that I had never seen anything like that before!! " I did not

>> know how to react, mixed feelings kicked in. Luckily, my daughter

>was

>> with us, otherwise, I may have either punched her or said some very

>> rotten things to her. I plan on calling to complain in a.m. unless

>> she is the manager. Now I know how kids feel when they are picked

>> on. Sorry this is sooo long...I just cannot believe this

>> happened. Belinda (Indiana)

>

>

>

>

>

>

>

>

[Guest guest]

today we started playing baseball.both of the boys had games so livie spent

ALOT of time at the park today.lots of stares,lots of whispering,lots of

comments.it's hard because i'm not her mom and i grew up in the same town i

live in now.so all the kids i went to school with have kids who go to school

with my kids.my sister lives in the same town(that's livie's mom) so everyone

knows what happened and us having custody.so olivia gets stares not only for

her helmet but for her reason for being with us.i've found that if i explain

to the little kids (ages 3-4) that she wears this hat to help round out her

head and that they can touch it if they want they seem more comfortable with

it and her.she just smiles and babbles at the kids and doesn't know any

different.lucky little girl.one of the mom's was listening as i explained her

story to her daughter and said that she thought i did a good job explaining

olivia's reason for wearing the helmet and the mom is going to nursing

school.i'm sure she'll mention it monday morning in school(the mom that

is...).

thanks for listening.

lynne

[Guest guest]

Hey Lynne-

You've got a lot on your plate, don't you. Trust in the fact Livie doesn't give one hoot about anyone staring at her. She probably is overjoyed at all the attention she's receiving. That poor baby needs so much loving right now. I hope the people around you realize that.

I have noticed that once you respond to the kids' comments and questions (because they are oftentimes the ones to approach you), the parent's will come up and start talking and asking. Sometimes under the guise of "teaching" their child. As soon as the kids and parents see you talking about it like it's "no big deal" and see that it doesn't hurt the baby, they really loosen up and get down to the business of admiring the baby underneath the helmet!

C./subscribe/Plagiocephaly

----- Original Message -----

From: LYJOJOST2@...

Plagiocephalyegroups

Sent: Saturday, April 15, 2000 8:29 PM

Subject: Re: Re: Stares

today we started playing baseball.both of the boys had games so livie spent ALOT of time at the park today.lots of stares,lots of whispering,lots of comments.it's hard because i'm not her mom and i grew up in the same town i live in now.so all the kids i went to school with have kids who go to school with my kids.my sister lives in the same town(that's livie's mom) so everyone knows what happened and us having custody.so olivia gets stares not only for her helmet but for her reason for being with us.i've found that if i explain to the little kids (ages 3-4) that she wears this hat to help round out her head and that they can touch it if they want they seem more comfortable with it and her.she just smiles and babbles at the kids and doesn't know any different.lucky little girl.one of the mom's was listening as i explained her story to her daughter and said that she thought i did a good job explaining olivia's reason for wearing the helmet and the mom is going to nursing school.i'm sure she'll mention it monday morning in school(the mom that is...).thanks for listening.lynne

[Guest guest]

angela,yes our plates are pretty full these days but i thank god i've able to

give livie all she needs.and that just seems to be a full warm belly,a clean

diaper and someone to pay attention to her and LOVE her.she truly is a

blessing.thanks.

[Guest guest]

you know - I'm thinking of having cards made up with a little explanation of

plagiocephaly, and the plagiocephal.org website just to hand out with a

smile in such cases... I'm not sure how I would react yet, (on a soapbox day

I could really go off!) -- but I sure do want to educate. I know most

people would be embarrassed at being caught and will probably throw it

away... but at least it'll be something proactive I can do... I don't

know.... thoughts?? I am hoping to get Quinn casted for the DOC band the

week of the 24th.... if the stupid letter of necessity ever arrives!!

-----Original Message-----

From: jenpin1@... [mailto:jenpin1@...]

Sent: Tuesday, April 11, 2000 11:52 PM

Plagiocephalyegroups

Subject: Re: Stares

Belinda:

The stares were the absolute worst part of my daughter wearing the

DOC Band--much worse than the casting or wearing it all the time. It

really infuriated me!!! The closer she got to growing out of it, the

more enraged I became when people stared. One lady, as we were

walking into the grocery stored, stared so long as we passed by that

I thought she'd break her neck as she strained it to continue

staring. I know exactly where you've been, but never had the

satisfaction of confronting any of those rude people.

Pinkerton

--- In Plagiocephalyegroups, " belinda ivetich " <bgles2@a...>

wrote:

> Hi All, I just needed to share this with someone. This

afternoon

> my mom, the kids and I went shopping. We went in search of Easter

> clothes for my son at a store that I have visited before. It is in

a

> predominantly white middle and upper class area. I don't know if

this

> was racially related or what! I am Mexican but I have been mistaken

> for other races. My daughter has dark hair and eyes but fair. My

son

> has blonde hair blue eyes. Anyway, no clerk had approached us. Then

> the clerk passed us as if we were invisible, to help out a woman

that

> entered after us. OK we blew her off!!! As I walked around the

rack,

> the other customer and the clerk totally turned around and stared

at

> my son. We immidiately became the topic of conversation!!!! The

clerk

> was very obvious...making faces, scrunching nose and the whole bit.

I

> guess she did not realize I had turned to watch their reaction. We

> made eye contact and she froze!!! I was HOT....I asked if she had a

> question. She turned redder than a lobster and said " oh, I was just

> saying that I had never seen anything like that before!! " I did not

> know how to react, mixed feelings kicked in. Luckily, my daughter

was

> with us, otherwise, I may have either punched her or said some very

> rotten things to her. I plan on calling to complain in a.m. unless

> she is the manager. Now I know how kids feel when they are picked

> on. Sorry this is sooo long...I just cannot believe this

> happened. Belinda (Indiana)