Lab results

[Guest guest]

In a message dated 11/27/2005 1:27:31 P.M. Eastern Standard Time,

millie_miller@... writes:

Hello Group,

I just got coppies of my Lab work from Igenex back from my LLMD. He wrote

the results are positive for Lyme by his and Igenex findings. If we relied on

CDC it would be.

Thank God for Igenex and LLMDs.

Millie

Hi Millie

Are you ok ? Even though we KNOW we have it ...there is always that shred of

hope that lingers ...did for me anyway ? Although it is GOO D to have a

final diagnosis its still difficult . I hope that you are alright and wanted to

let you know if you need to ...email ....hang in there ...Kat

ps ...I want to throw this out to the board ...this morning I woke up

feeling my usual tired self , came down to make coffee and when I put my hands

in

my bathrobe pockets I realized that my entire left thumb more so on the top

....IS TOTALLY NUMB ...so I thought maybe I had slept on it ....now it feels

swollen and just as numb ...it didn't loosen up as the day went on ...hurts in

the joints ...but numb ...like novocaine numb ? ANY THOUGHTS ? Just another

neuro lyme experience ? Very scary ....sometimes I think that one day EVERY

single part of me will be this way ...just frozen , numb BUT still hurting ?

Make sense ? Go figure Good grief ! Thanks Kat

[Guest guest]

Millie I am new to this group. About 1 and one half years ago. I got a tick off

that had been on long enough to make me itch before I knew I had a seed tick.

When i scratched it off head came with it. I got the bulls eye rash. The Dr

gave me 100 mig of vantin 2xa day by mouth for 2 weeks. I cannot take

Doxylcycline I am not good speller. To make story short that same rash has

come back on my legs my neck my arm now it is getting om stomach. My doctor

does not think it is tick related. I ordered a ignex tick test but i dont

believe she will order it or take blood to send to them. I live in Tenn. About

55 miles from Nashville Tenn. Does any one on this list have rash from their

previous infection with tick. Thank you for listening. Lynda C

[ ] Re: Lab Results

Hello Group,

I just got coppies of my Lab work from Igenex back from my LLMD. He wrote the

results are positive for Lyme by his and Igenex findings. If we relied on CDC

it would be.

Thank God for Igenex and LLMDs.

Millie

[Guest guest]

In a message dated 11/29/2005 5:08:58 P.M. Eastern Standard Time,

millie_miller@... writes:

Millie I am new to this group. About 1 and one half years ago. I got a tick

off that had been on long enough to make me itch before I knew I had a seed

tick. When i scratched it off head came with it. I got the bulls eye rash.

The Dr gave me 100 mig of vantin 2xa day by mouth for 2 weeks. I cannot

take Doxylcycline I am not good speller. To make story short that same rash

has come back on my legs my neck my arm now it is getting om stomach. My

doctor does not think it is tick related. I ordered a ignex tick test but i

dont believe she will order it or take blood to send to them. I live in Tenn.

About 55 miles from Nashville Tenn. Does any one on this list have rash from

their previous infection with tick. Thank you for listening. Lynda C

Hi Lynda

I posted a week or so ago about a pamphlet my doc gave to me. Its says 'if

you have a rash you HAVE LYME DISEASE' Its called Lyme Disease and associated

diseases (THE BASICS) ..a plain-language introduction to tick borne

diseases. It was published by the Lyme Disease Association of Southeastern

Pennsylvania Inc. They have a web address _www.LymePa.org_

(http://www.LymePa.org)

....why don't you write and see if you can get a copy ..then maybe you will want

to look for a LLMD in your area. Most normal pcps don't have a tiny little

clue about it ...hope you feel better ...k

[Guest guest]

Dear Lynda,

I have been waiting for someone from this group with expertise to respond to

your post.

I don't have the expertise to comment on this.

I have put it back out into cyberspace here so It is not lost.

Igenex is the best. Personal openion.

God bless.

Lynda Chunn <lchunn1@...> wrote:

Millie I am new to this group. About 1 and one half years ago. I got a tick off

that had been on long enough to make me itch before I knew I had a seed tick.

When i scratched it off head came with it. I got the bulls eye rash. The Dr

gave me 100 mig of vantin 2xa day by mouth for 2 weeks. I cannot take

Doxylcycline I am not good speller. To make story short that same rash has

come back on my legs my neck my arm now it is getting om stomach. My doctor

does not think it is tick related. I ordered a ignex tick test but i dont

believe she will order it or take blood to send to them. I live in Tenn. About

55 miles from Nashville Tenn. Does any one on this list have rash from their

previous infection with tick. Thank you for listening. Lynda C

[Guest guest]

your numbers are low. what were your FSH and LH levels as a good endo should be

checking for these numbers. also, did your endo get a prolactin level test done

to see if you possibly have anything going on with your pituatory gland.

hopefully you'll get some answers.

Jack <myhormonez@...> wrote:

Hello all well got some of my lab result from the other day and the

results are as follows don't know what to make of it now except I am

going to see a specialist to try to get HcG becouse my endo said No

last time but with this numbers???????????

Testosterone, FREE 46.5 range is 35.0-155.o pg/ml

Total testosterone 367ng/dl range is 250 - 1100 ng/dl

I also did urine test and all was okay but...

Calcium per day 320.0 mg/d range is 100 -300 mg/d

Also creatinine 114.6 mg/dl they also wrote unable to calculate

becouse unknown body weight...this and all is driving me crazy I have

been secondary hypo since 3 or 4 years ago I should never have to come

to this even though I changed endos so please shed some insight to all

this thanks in advance . Jack

[Guest guest]

Jack I believe your last post said your levels were to high and the Dr. lowed

you gels dose. I asked if you put on the gel before the blood test and you said

no you did not. I can't see how you can be to high on the gels and now you way

to low. How do you feel. I forgot what starte are you in. Did you ask this

new Dr. you going to see if he sees a lot of men with low T. And if he treats

men that are secondary with HCG you can be going from one bad Dr. to another

one. What are you doing for your T meds now.

Phil

Jack <myhormonez@...> wrote:

Hello all well got some of my lab result from the other day and the

results are as follows don't know what to make of it now except I am

going to see a specialist to try to get HcG becouse my endo said No

last time but with this numbers???????????

Testosterone, FREE 46.5 range is 35.0-155.o pg/ml

Total testosterone 367ng/dl range is 250 - 1100 ng/dl

I also did urine test and all was okay but...

Calcium per day 320.0 mg/d range is 100 -300 mg/d

Also creatinine 114.6 mg/dl they also wrote unable to calculate

becouse unknown body weight...this and all is driving me crazy I have

been secondary hypo since 3 or 4 years ago I should never have to come

to this even though I changed endos so please shed some insight to all

this thanks in advance . Jack

[Guest guest]

why would a Dr be a bad one if he treats Secondary Hypogonadism patients with

HCG? if your testes are working than all you need is something to increase your

LH to produce your own T. i guess there are some that say TRT should also be

added but once you take TRT u shut down your own body's T prod'n. so in essence

you add exogenous T and shut down your own T....which is odd cuz your taking HCG

to product your own T.

philip georgian <pmgamer18@...> wrote: Jack I believe your last post said

your levels were to high and the Dr. lowed you gels dose. I asked if you put on

the gel before the blood test and you said no you did not. I can't see how you

can be to high on the gels and now you way to low. How do you feel. I forgot

what starte are you in. Did you ask this new Dr. you going to see if he sees a

lot of men with low T. And if he treats men that are secondary with HCG you can

be going from one bad Dr. to another one. What are you doing for your T meds

now.

Phil

Jack <myhormonez@...> wrote:

Hello all well got some of my lab result from the other day and the

results are as follows don't know what to make of it now except I am

going to see a specialist to try to get HcG becouse my endo said No

last time but with this numbers???????????

Testosterone, FREE 46.5 range is 35.0-155.o pg/ml

Total testosterone 367ng/dl range is 250 - 1100 ng/dl

I also did urine test and all was okay but...

Calcium per day 320.0 mg/d range is 100 -300 mg/d

Also creatinine 114.6 mg/dl they also wrote unable to calculate

becouse unknown body weight...this and all is driving me crazy I have

been secondary hypo since 3 or 4 years ago I should never have to come

to this even though I changed endos so please shed some insight to all

this thanks in advance . Jack

[Guest guest]

Hi jack thankyou for the idea. I know they checked it long

time ago they were in the normal range then...but lately they have

gone dramatically low may zero now last time was

about .86 ...something like that you see some one here also told me

that when you are on trt Androgel LH and Fsh get to be low is that

right well please guide me how to approch the new specialist I am

going to see I know I am all over the places I am going to take AACE

guide show them like if they don't know anyways I am out as

mentalfog is getting the best out of me.............

> your numbers are low. what were your FSH and LH levels as a good

endo should be checking for these numbers. also, did your endo get

a prolactin level test done to see if you possibly have anything

going on with your pituatory gland.

>

> hopefully you'll get some answers.

>

> Jack <myhormonez@y...> wrote:

> Hello all well got some of my lab result from the other day and

the

> results are as follows don't know what to make of it now except I

am

> going to see a specialist to try to get HcG becouse my endo said

No

> last time but with this numbers???????????

> Testosterone, FREE 46.5 range is 35.0-155.o pg/ml

> Total testosterone 367ng/dl range is 250 - 1100 ng/dl

>

> I also did urine test and all was okay but...

> Calcium per day 320.0 mg/d range is 100 -300 mg/d

> Also creatinine 114.6 mg/dl they also wrote unable to

calculate

> becouse unknown body weight...this and all is driving me crazy I

have

> been secondary hypo since 3 or 4 years ago I should never have to

come

> to this even though I changed endos so please shed some insight to

all

> this thanks in advance . Jack

>

>

>

>

>

>

>

[Guest guest]

Sorry for all the typo's in that post. Jacks Dr. will not give him HCG I was

telling him to ask this new Dr. if he treats Secondary Hyp. with HCG if not then

he is going from one Dr. that will not use HCG to the other that may not use it.

Phil

Jack <rockin813@...> wrote:

why would a Dr be a bad one if he treats Secondary Hypogonadism patients with

HCG? if your testes are working than all you need is something to increase your

LH to produce your own T. i guess there are some that say TRT should also be

added but once you take TRT u shut down your own body's T prod'n. so in essence

you add exogenous T and shut down your own T....which is odd cuz your taking HCG

to product your own T.

philip georgian

wrote: Jack I believe your last post said your levels were to high and the Dr.

lowed you gels dose. I asked if you put on the gel before the blood test and you

said no you did not. I can't see how you can be to high on the gels and now you

way to low. How do you feel. I forgot what starte are you in. Did you ask this

new Dr. you going to see if he sees a lot of men with low T. And if he treats

men that are secondary with HCG you can be going from one bad Dr. to another

one. What are you doing for your T meds now.

Phil

Jack wrote:

Hello all well got some of my lab result from the other day and the

results are as follows don't know what to make of it now except I am

going to see a specialist to try to get HcG becouse my endo said No

last time but with this numbers???????????

Testosterone, FREE 46.5 range is 35.0-155.o pg/ml

Total testosterone 367ng/dl range is 250 - 1100 ng/dl

I also did urine test and all was okay but...

Calcium per day 320.0 mg/d range is 100 -300 mg/d

Also creatinine 114.6 mg/dl they also wrote unable to calculate

becouse unknown body weight...this and all is driving me crazy I have

been secondary hypo since 3 or 4 years ago I should never have to come

to this even though I changed endos so please shed some insight to all

this thanks in advance . Jack

[Guest guest]

Jack 1/3 would be around 600 to 650 you need to be on more T. I was on gels and

my joints and muscles got dam sore so bad I had such bad back pain I had a hard

time walking. Went on shots started at 100 mgs. and in now time my pain was a

lot less. Your LH and FSH will go down on TRT it is a given. Your brain sees

the T meds and stops sending the LH and FSH messages to the testis. What ever

your taking to bring down your E2 Zinc, DIM stop. Your getting to low.

Phil

Jack <myhormonez@...> wrote:

Hello ppl

Just confuses the heck out of me now I got these results. let me

give you some background my

FSH 0.37 range !.00

LH 0.20 range 2.00- 12.00

Total Testosterone is 306 ng/dl range 185-800 ng/dl

please help me the math here what persentage or what is the upper

1/3 of the normal range?

I am on 5gram of Androgel now or I have been for a while now I have

many many questions but even the doc I went to last time said no HCG

but order some more lab works for E2 is __14__, It used to be 30

then 20 now 14 this and all the fsh,lh are not makeing any sense to

me please some one shed some ligt to all this issues. Also I had

bone minearl density test the result is also bad how bad is that I

don't know all I know it said that,

Impression ; The lumbar spine is 1.0 Standard deviation below the

mean for the young normal reference population.meeing criteria for

osteopenia.

At the femoral neck is also 1.8 below the mean for the young

person Adequate calcium and vitamin D intake should be ensured and

weight bearing exercise maintaines is Appropriate. wow that all I

had to say becouse I have got a hold of my doc either endo or GP yet

mind you I exersice regularly eat well most of the time but this

result is puting me down. how bad is it? what should I do also is it

reversable? I thank you inadvance. Jack

[Guest guest]

Excellent suggestion. I do the same. I have a medical file at home; never know

when it comes in handy.

<kyrik@...> wrote:

> The next time you have lab done ask the tech to mail you a copy of the

> results at your home address. I have my lab checked at the local hospital and

I

> always do this as does my husband. (They usually have me sign a release of

> information first.) Then I have copies of my own lab and I will know if it is

> abnormal.

I'm definitely going to do this. My bloods were checked (liver, et al)

for the first time after about 5-6 weeks on Arava and the results never

got from my PCP to my rh! And now I've had to quit Arava because of

severe stomach pain so I think he and I both need to know what the

results were. Plus, I got a bunch more done yest at the same PCP office.

I'll be calling and pestering them tomorrow

[Guest guest]

>

> Testosterone, Total 127 Range 250-1100

> Testosterone,Free% 2.37 Range 1.00-3.10

> Free Testosterone 30.1 Range 35.0-155.0

>

I forgot to add

FSH 2.2 Range 1.6-8.0

LH 2.0 Range 1.5-9.3

Prolactin 10.7 Range 2.0-18.0

Cortisol Total 17.4 Range 4.0-22.0

[Guest guest]

If your not on TRT have your LH and FSH tested so as to tell if your Primary or

Secondary.

http://www.aace.com/pub/pdf/guidelines/hypogonadism.pdf

Phil

ogarchamplin <gripperm@...> wrote:

Testosterone, Total 127 Range 250-1100

Testosterone,Free% 2.37 Range 1.00-3.10

Free Testosterone 30.1 Range 35.0-155.0

[Guest guest]

Hi Diane -

The ASO titer is fine - that means that even if he's

had strep (appears he has), then the antibodies have

fallen back down, the infection resolved, and all is

well. It's when they go over 240 (or whatever range -

varies per lab, etc) and they don't come down that you

have concerns. It's good to check w/ issues, and

can result in OCD symptoms, etc, and some kids do have

problems, so it's best to screen for it. You're good

there (I mean, your child is!lol).

I don't understand the eosinophils. I only understand

them according to percentages... ? Like on a CBC

w/differential, and that they should be 1.5%. This

may be a different test than I know about...

HTH-

--- djwakely789 <djwakely@...> wrote:

> Hi everyone,

> I've been a member here for several months, but

> mostly lurking. We

> finally were able to complete all the bloodwork for

> Dr. and

> received results. I just had some questions about

> specific lab values

> and their importance. My understanding is that ASO

> titers and levels

> of eosinophils should be below a certain level. The

> ASO result was <55

> with a reference range of 0-240 (no specific

> quantitative level was

> given). The eosinophils level was apparently tested

> at three separate

> times and was reported as 20, 40, and 120 (three

> different days). Can

> anyone give me any feedback on these levels? Also,

> I've been reading

> some posts about mycoplasma. Is there a specific

> test for this?

> Thanks for any help you can give.

> Diane

>

>

>

>

__________________________________________________

[Guest guest]

Eosiniphils can be expressed as both a % of the total white cell count or as

an absolute quantity.

For percentages, the reference range is usually 0-6% for normal in healthy

people. Dr Goldberg likes to see the kids under 2%. Some people have

expressions in the 10 - 20%'s consistently and in these cases may have a

condition known as eosinophilia.

For Absolute counts the actual number value used depends on the 'power' used

in the expression..

For example an EOS count of 0.350 x 10^9/L against a total white cell count

of 7.0 x 10^9/L is how our lab expresses the result - which is 5%.

I've heard Dr Goldberg talk of white cell counts in terms of larger numbers

- so he might say the white cell count is 7,000 and the EOS was 350 (I guess

the lab would express the power a 10^6/L in this case). The percentage is

the same.

So if in Diane's case the lab expressed the result in full numbers , then

20, 40 and 120 aren't that high.however these must be compared to the full

white cell count from the same blood draw to be meaningful. If this lab

moves the 10 power by one and the results are 200, 400 and 1200 - then the

last result 1200 would be considered high - but again you will need to

compare these to the total white cell count.

Hope this helps,

_____

From: [mailto: ] On Behalf Of

Sent: Thursday, September 28, 2006 5:55 AM

Subject: Re: Lab Results

Hi Diane -

The ASO titer is fine - that means that even if he's

had strep (appears he has), then the antibodies have

fallen back down, the infection resolved, and all is

well. It's when they go over 240 (or whatever range -

varies per lab, etc) and they don't come down that you

have concerns. It's good to check w/ issues, and

can result in OCD symptoms, etc, and some kids do have

problems, so it's best to screen for it. You're good

there (I mean, your child is!lol).

I don't understand the eosinophils. I only understand

them according to percentages... ? Like on a CBC

w/differential, and that they should be 1.5%. This

may be a different test than I know about...

HTH-

--- djwakely789 <djwakelyprodigy (DOT) <mailto:djwakely%40prodigy.net> net>

wrote:

> Hi everyone,

> I've been a member here for several months, but

> mostly lurking. We

> finally were able to complete all the bloodwork for

> Dr. and

> received results. I just had some questions about

> specific lab values

> and their importance. My understanding is that ASO

> titers and levels

> of eosinophils should be below a certain level. The

> ASO result was <55

> with a reference range of 0-240 (no specific

> quantitative level was

> given). The eosinophils level was apparently tested

> at three separate

> times and was reported as 20, 40, and 120 (three

> different days). Can

> anyone give me any feedback on these levels? Also,

> I've been reading

> some posts about mycoplasma. Is there a specific

> test for this?

> Thanks for any help you can give.

> Diane

>

>

>

>

__________________________________________________

[Guest guest]

the power of the immune system varies under many influences, including

planetary (yeah, i'm one of those).

the hep-c numbers are known for going all over the place for various

reasons, or no apparent reason (doesn't mean there isn't one).

it's been reiterated recently there's no cure, no known of anyone being

cured, just remission. this might be true, but some individuals have

cleared with no therapy or effort on their part. some have stayed that way.

we're all so different, the HCV is so small & gets into so many places, so

it's hard to tell if anyone has actually ever completely eradicated the

virus from their innards. if one completely eliminates existence of a

single virus how would we ever know? the antibodies never leave, do they?

so maybe we should define cure as being undetectable, symptom free, liver

damage reversed, after some time period like 10 years?

i think that for most of us to have those kind of results requires forever

after commitment to many & certain lifestyle changes. never going back to

the old ways just because we're doing well, even for a treat. it also takes

luck & divine help. god most commmonly helps those who help themselves and

others, & chance favors the prepared mind and body.

cheers,

bobL

myspace: http://www.myspace.com/bob021147

ebay: http://stores.ebay.com/bobLs-fine-flotsam

homepage: http://www.toad.net/~blarson/

> Lab results

>

>

> I was told that I tested positive for Hep C then the second set of

> blood work showed no active infection. The doc said it could show up

> again at anytime? What kind of answer is that? My regular doc was

> out sick, so waiting for a follow-up from her. The only thing that is

> still positive is my ANA count suggesting Lupus, but even this did not

> sound like a straight answer. Could one mimic the other? My liver and

> kidney functions tested normal. I guess I am just not understanding

> these results much. Looking for opinions while I wait for my next

> appointment.

> Thanks.

> Gracey

>

>

>

>

>

[Guest guest]

Sounds like an " autoimmune " situation..there are cases of autoimmune

hepatitis.

This occurs they will tell you for no apparent reason..and it results in your

immune

cells attacking your own cells. Lupus is also in this category, and the

immune cells

attack connective tissue as though it were a foreign entity.

My opinion on the subject of autimmune disease is that is brought about by

administering vaccines to babies...a time when the immune system still does

not

fully understand " self " from " non self " .

The result of autoimmune disease is chronic inflammation that is difficult or

impossible

to control.

[Guest guest]

Hi Cheryl -

I believe that HHV6 titer is at or close to what is

generally believed to be indicative of active

infection. You may be able to find that on the site

by the HHV6 foundation if I remember correctly.

Sometimes you'll see this manifest AFTER being on

antivirals, as being on the meds helps " flush it out

of hiding " ... so to speak. Since HHV6 can hide from

the immune system, titers rising after antivirals can

be a pretty good sign, too. It happened w/my son...

it was initially 1:10 (the lowest to be considered

positive), then shot up to 1:320 after about a year...

we switched from Valtrex to Famvir because that titer

wasn't coming up and Dr G was so sure that my son was

" classic HHV6 " . How he knew, I don't know, but I bet

it's a combination of T- & B-cell numbers and a bunch

of other stuff.

That EBV titer is really really high, too. In my

understanding (which is vague I admit) that doesn't

necessarily mean he has a severe EBV infection in the

sense of being life-threatening or even necessarily

high numbers of the virus present, but it does

indicate that the immune system is highly activated

against that virus. So treating it would surely be

something to very much look forward to because that

child should absolutely have some serious benefit from

treatment.

I hope you see great benefits ahead!

How long has your child been w/Dr G?

--- Cheryl Lowrance <c.lowrance@...> wrote:

> Can anyone help me figure out what the lab results

> mean? I don't

> have another appointment with Dr. G until the 27th

> and I'm incredibly

> anxious to know what it means. I can look them up

> on FPnotebook (and

> I have) but I don't know what they mean *together*.

> I don't expect

> anyone to have the real answer but maybe a little

> insight would be

> nice. I've always felt like my son was viral and

> now I *think* I

> should feel pretty vindicated after having dr's poo

> poo me. Thanks

> in advance.

>

> EBV Ab VCA, IgG 3337 (h)

> HHV-6 IgG 1:320 (h)

>

> CBC Results:

>

> WBC 4.7 (L)

> MCV 78.7 (L)

> Lymphocytes % 54.4 (h)

> Neutrophil % 45 (L)

> Lymphocyte% 53 (h)

> Monocyte% 2 (L)

> Eosinophil % 0 (L)

> ALB 4.3 (h)

> Calcium 10 (h)

>

__________________________________________________

[Guest guest]

On Dec 17, 2006, at 7:56 PM, wrote:

> Hi Cheryl -

>

> I believe that HHV6 titer is at or close to what is

> generally believed to be indicative of active

> infection. You may be able to find that on the site

> by the HHV6 foundation if I remember correctly.

It is *at* active infection levels.

>

> Sometimes you'll see this manifest AFTER being on

> antivirals, as being on the meds helps " flush it out

> of hiding " ... so to speak. Since HHV6 can hide from

> the immune system, titers rising after antivirals can

> be a pretty good sign, too. It happened w/my son...

> it was initially 1:10 (the lowest to be considered

> positive), then shot up to 1:320 after about a year...

> we switched from Valtrex to Famvir because that titer

> wasn't coming up and Dr G was so sure that my son was

> " classic HHV6 " . How he knew, I don't know, but I bet

> it's a combination of T- & B-cell numbers and a bunch

> of other stuff.

So would it be fair to assume that these levels will rise with

Valtrex before they fall?

>

> That EBV titer is really really high, too. In my

> understanding (which is vague I admit) that doesn't

> necessarily mean he has a severe EBV infection in the

> sense of being life-threatening or even necessarily

> high numbers of the virus present, but it does

> indicate that the immune system is highly activated

> against that virus. So treating it would surely be

> something to very much look forward to because that

> child should absolutely have some serious benefit from

> treatment.

I thought there was no treatment for EBV, is that not true? Will the

Valtrex treat it?

>

> I hope you see great benefits ahead!

Thank you, I'm very excited!

> How long has your child been w/Dr G?

About 2 weeks. And we've been there 3 times already. The first was

our initial appointment where he also prescribed an antibiotic to

help him get over the last of whatever it was he had and then we went

back when he spiked a fever a few days later while on meds. He

switched meds and we came back when he seemed to be coughing more

(and my baby and I were both seen by him since we are sick, too, now

we're all on antibiotics!). Now he's doing better and I just sent an

e-mail to Dr. G to see if I can start the Valtrex. We've had a very

busy time with him considering how little time we've had with him!

Thanks so much for the help.

Cheryl

[Guest guest]

The 1:320 HHV6 is definitely an issue and this is where my own son

was at when we started on the meds in August of this year. With his

last testing it was down to 1:20 so no..not with all kids does it go

up and then back down. I believe 1:320 is over 4x where the count

would be to be considered normal. That's really the only number I

know and can help with as I don't really understand the other

numbers.

K

>

> > Hi Cheryl -

> >

> > I believe that HHV6 titer is at or close to what is

> > generally believed to be indicative of active

> > infection. You may be able to find that on the site

> > by the HHV6 foundation if I remember correctly.

>

> It is *at* active infection levels.

> >

> > Sometimes you'll see this manifest AFTER being on

> > antivirals, as being on the meds helps " flush it out

> > of hiding " ... so to speak. Since HHV6 can hide from

> > the immune system, titers rising after antivirals can

> > be a pretty good sign, too. It happened w/my son...

> > it was initially 1:10 (the lowest to be considered

> > positive), then shot up to 1:320 after about a year...

> > we switched from Valtrex to Famvir because that titer

> > wasn't coming up and Dr G was so sure that my son was

> > " classic HHV6 " . How he knew, I don't know, but I bet

> > it's a combination of T- & B-cell numbers and a bunch

> > of other stuff.

> So would it be fair to assume that these levels will rise with

> Valtrex before they fall?

> >

> > That EBV titer is really really high, too. In my

> > understanding (which is vague I admit) that doesn't

> > necessarily mean he has a severe EBV infection in the

> > sense of being life-threatening or even necessarily

> > high numbers of the virus present, but it does

> > indicate that the immune system is highly activated

> > against that virus. So treating it would surely be

> > something to very much look forward to because that

> > child should absolutely have some serious benefit from

> > treatment.

> I thought there was no treatment for EBV, is that not true? Will

the

> Valtrex treat it?

> >

> > I hope you see great benefits ahead!

> Thank you, I'm very excited!

> > How long has your child been w/Dr G?

> About 2 weeks. And we've been there 3 times already. The first

was

> our initial appointment where he also prescribed an antibiotic to

> help him get over the last of whatever it was he had and then we

went

> back when he spiked a fever a few days later while on meds. He

> switched meds and we came back when he seemed to be coughing more

> (and my baby and I were both seen by him since we are sick, too,

now

> we're all on antibiotics!). Now he's doing better and I just sent

an

> e-mail to Dr. G to see if I can start the Valtrex. We've had a

very

> busy time with him considering how little time we've had with him!

>

> Thanks so much for the help.

> Cheryl

>

[Guest guest]

Is this the tests ordered by Dr. your tests look like your secondary to me.

The Urine test will tell the ture story.

vaiisking1026 <vaiisking@...> wrote:

Guys,

I send off the 24 hour urine test tomorrow for the hormone panel.

However, I had blood drawn this past Wednesday and here are the results:

Testosterone 185 (205-781 ng/dl)

Prolactin 9.46 (2.64-13.13 ng/dl)

LH 4.81 (1.24-8.62 mIU/ml)

FSH 2.83 (1.27-19.26 mIU/ml)

E2 32 (20-75 pg/ml)

This was drawn around 3:30 PM.

God Bless,

Chris

Co-Moderator " Don't believe anything you hear and only half of what you see. "

Phil

---------------------------------

Ready for the edge of your seat? Check out tonight's top picks on TV.

[Guest guest]

Philip: What are the relative merits of the blood test vs. the urine

test??

> Guys,

> I send off the 24 hour urine test tomorrow for the hormone panel.

> However, I had blood drawn this past Wednesday and here are the results:

>

> Testosterone 185 (205-781 ng/dl)

>

> Prolactin 9.46 (2.64-13.13 ng/dl)

>

> LH 4.81 (1.24-8.62 mIU/ml)

>

> FSH 2.83 (1.27-19.26 mIU/ml)

>

> E2 32 (20-75 pg/ml)

>

> This was drawn around 3:30 PM.

>

> God Bless,

> Chris

>

>

>

>

>

>

> Co-Moderator " Don't believe anything you hear and only half of what

you see. "

> Phil

>

> ---------------------------------

> Ready for the edge of your seat? Check out tonight's top picks on

TV.

>

>

[Guest guest]

Here is a cut and past about it.

============================================================

Re: Dr. nco, Urine more accurate then Blood?

---------------------------------

Quote:

Originally Posted by TylerR

Hi Dr. nco,

Are you saying Urine Test is more accurate then Blood Test?

I'm confused, I have tried both, and from my results of the urine test I don't

have any problems, however my blood work shows something is definatly wrong?

My Blood Test show my T levels are are mid range, and E is high. It also shows I

have high DHT.

However my Urine Test shows that my T level is in the upper third of the range,

and my estrogens are normal, with low DHT numbers. So I'm really confused on

which is accurate.

I have had over 5 blood test with the same results, and I've only had one urine

test so far.

I know have a lot of fat around my stomach and suffer from some ed, and

absolutely no libido.

I'm wondering could there have been an error in the urine sampling? Is it

possible that they measured an area of my urine that had more T and balanced

hormones?

I'm just confused on which method is accurate.

Please let me know your thoughts.

Also has anyone else had blood test that differed from their urine tests?

How does one go about lowering Estrone levels?

Thank you!!!

Ty

It is not whether or not one is more " accurate " than the other. Both are

" accurate " in what they do.

The question is what test will give one the information one seeks.

Interpreting urine tests of hormones and their metabolites is not as simple as

looking at the lab ranges and telling if the level is within that range.

It requires the physician reading the test to know the various steroid pathways

in order to interpret what is happening.

A blood test is a snapshot of one moment in time.

A urine test of hormones and metabolites tells one what is happening over an

entire day.

Thus both have different purposes.

A blood test showing Testosterone in the mid-range, while the urine test shows

it is in the upper range may mean several things.

For example, if a person has a hyperexcretion syndrome, then perhaps

testosterone is being excreted too quickly.

Urine testosterone is free testosterone, by the way.

If testosterone in the urine is high, then perhaps it isn't being used - thus

the metabolites of testosterone can be low.

One has to look at all the interactions and the big picture to interpret a urine

test. It is, however, the only test which can give one an idea of what is

happening to the hormones - e.g. what pathways a particular hormone or

medication is influencing.

For example, if one takes Finasteride to lower DHT, then some people on a

24-hour urine test will show that not only is DHT being lowered, but Estrone is

being increased. This is because blocking 5-alpha-reductase with Finasteride

forces testosterone down some other paths - some of which may not be desired.

As another example, if one takes Pregnenolone - some people will end up with no

change in their hormones using 24-hour urine tests, some will end up with more

DHEA, and some will end up with more estrogens. The pathways an individual takes

will vary. But which pathway an individual takes is more clearly seen on a

24-hour urine test.

Unfortunately, this test is quite expensive - about $400 each time it is run.

And it is not paid for by insurance - thus one has to pay out of pocket - ouch.

Watching an expert - such as , MD - who has done this for over 20

years and his staff - read a 24-hour urine test can be breathtaking by the

amount of detail he can extract from the test. Luckily, he and his staff help

others are very happy to help other physicians interpret their lab tests.

__________________

Any statement I make on this site is for educational purposes only and will

change as medical knowledge progresses. It does not constitute medical advice,

does not substitute for proper medical evaluation from physician, does not

create a doctor/patient relationship or liability. If you would like medical

advice, please make an appointment. Thank you.

---------------------------------

Last edited by marianco : 02-20-2007 at 11:49 PM.

brian7470 <briancull@...> wrote:

Philip: What are the relative merits of the blood test vs. the urine

test??

> Guys,

> I send off the 24 hour urine test tomorrow for the hormone panel.

> However, I had blood drawn this past Wednesday and here are the results:

>

> Testosterone 185 (205-781 ng/dl)

>

> Prolactin 9.46 (2.64-13.13 ng/dl)

>

> LH 4.81 (1.24-8.62 mIU/ml)

>

> FSH 2.83 (1.27-19.26 mIU/ml)

>

> E2 32 (20-75 pg/ml)

>

> This was drawn around 3:30 PM.

>

> God Bless,

> Chris

>

>

>

>

>

>

> Co-Moderator " Don't believe anything you hear and only half of what

you see. "

> Phil

>

> ---------------------------------

> Ready for the edge of your seat? Check out tonight's top picks on

TV.

>

>

[Guest guest]

>

> Is this the tests ordered by Dr. your tests look like your

secondary to me. The Urine test will tell the ture story.

Yes , this is the one ordered by Dr. . I am just waiting

now for the specimen to get to the lab and him to get the results, and

his secretary to send me some notification...very impatiently

God Bless,

Chris

[Guest guest]

When I was being tested for primary/secondary, part of my examination included a

MRI to look for a tumor (adenoma). Supposedly, these tumors are identified by

their size, location and hormone they interfere with. Testosterone is supposed

to be a hormone subsidary to Prolactin so if you have a tumor preventing the

production of Prolactin (A Prolactinoma) you will inevitably produce low

testosterone as a result.

Or at least that's how I thought it worked.

What would be revealed in a urine exam that would serve as an indicator of

secondary? It's possible I may have taken one before. I don't remember. However,

that would have been very early in my diagnosis when my doctors were telling me

very little, .....well less than very little.

vaiisking1026 <vaiisking@...> wrote:

>

> Is this the tests ordered by Dr. your tests look like your

secondary to me. The Urine test will tell the ture story.

Yes , this is the one ordered by Dr. . I am just waiting

now for the specimen to get to the lab and him to get the results, and

his secretary to send me some notification...very impatiently

God Bless,

Chris

---------------------------------

Got a little couch potato?

Check out fun summer activities for kids.