Good News

October 28, 2002

Hi Esme,

I am near Aachen! and use the Houston Enzymes. I buy a lot of my food supps in

Venlo.

Re: good news

WOW!!! You brought tears to my eyes!! I am so thrilled for you!! What

enzymes are you using? I see improvements w/o the use of enzymes in my

son

lately (he did wonderful at our church fair today!!) but I want to try

some

that may help develop his speech more. I would appreciate your

response.

Thanks in advance!

Lori

October 29, 2002

Hi,

Can you tell me witch kind of enzymes and supps do you use? What kind of

brand do you buy in Venlo.

Esme

Re: good news

Hi Esme,

I am near Aachen! and use the Houston Enzymes. I buy a lot of my food

supps in Venlo.

October 29, 2002

I get the carnosine, tyrosine, taurine, vit/minerals etc at Venlo.

The Houston and DMSA I get from the States through " private " means. I have been

told DMSA is illegal here but that is word of mouth. I shall look into this

later when I am finished with the detox because it is a scandal if this is true.

I don't want to jeopardise the therapy yet so I will wait a while.

Best regards,

Re: good news

Hi Esme,

I am near Aachen! and use the Houston Enzymes. I buy a lot of my food

supps in Venlo.

November 22, 2002

great news lisa, well done, just don't go and over do it now!

Debbie

November 22, 2002

> Hello all, would like to share with you my docs words to me

> yesterday. Actually one word.....REMISSION. I am to finish 20 days

of

> 1 mg pred and return in 3 months for more blood work, if everything

> is still ok return after that in 6 months will do a biopsy and then

> If all is well will taper Imuran. In the mean time I am to

Aggresivly

> seek to lose more weight.Please keep fingers crossed and pray that

> all goes well. If anyone has ever been in this situation I would

like

> to know from you what to expect next and what are the chances of

> staying in remission.

> Thank you all for being here, and for being sooo very

> informative. I don't converse much be do read all posts and am with

> you all in my heart.

>

> hugs and sunshine,

> B.

Dear ,

Yes, I have been in remission 3 times. Each time I was able to

go off Imuran and Prednisone for significant time periods: 1-1/2

years, 2 years, and 7 years. The important thing to remember though,

is that your bloodwork needs to be checked regularly because if your

LFTs start to rise, they will want to begin treatment again. That's

what happened to me this summer. My LFTs were elevated after 7 years

of being in the normal range. So the hepatologist put me on Actigall

and he is watching to see how the liver functions respond. I'm

seeing him in January, and I guess he will then decide whether I will

need the other medications. Good luck to you.

Sharon

November 22, 2002

,

Congrats to you!! I am just curious how long you have been on treatment for?

[ ] Good news

Hello all, would like to share with you my docs words to me

yesterday. Actually one word.....REMISSION. I am to finish 20 days of

1 mg pred and return in 3 months for more blood work, if everything

is still ok return after that in 6 months will do a biopsy and then

If all is well will taper Imuran. In the mean time I am to Aggresivly

seek to lose more weight.Please keep fingers crossed and pray that

all goes well. If anyone has ever been in this situation I would like

to know from you what to expect next and what are the chances of

staying in remission.

Thank you all for being here, and for being sooo very

informative. I don't converse much be do read all posts and am with

you all in my heart.

hugs and sunshine,

B.

November 22, 2002

FANTASTIC. It is always nice to near such great news. Cheers!

> Hello all, would like to share with you my docs words to me

> yesterday. Actually one word.....REMISSION. I am to finish 20 days

of

> 1 mg pred and return in 3 months for more blood work, if everything

> is still ok return after that in 6 months will do a biopsy and then

> If all is well will taper Imuran. In the mean time I am to

Aggresivly

> seek to lose more weight.Please keep fingers crossed and pray that

> all goes well. If anyone has ever been in this situation I would

like

> to know from you what to expect next and what are the chances of

> staying in remission.

> Thank you all for being here, and for being sooo very

> informative. I don't converse much be do read all posts and am with

> you all in my heart.

>

> hugs and sunshine,

> B.

November 22, 2002

B.

What wonderful news. Hang in there and good luck with the weight loss. Can't help you with the remission question as I haven't been lucky enough to get there but I'm sure others can.

Again, what great news.

November 22, 2002

congratulations on the remission! This is totally awesome and how happy you

must be! Just keep up the great work at staying well!

debby

[ ] Good news

> Hello all, would like to share with you my docs words to me

> yesterday. Actually one word.....REMISSION. I am to finish 20 days of

> 1 mg pred and return in 3 months for more blood work, if everything

> is still ok return after that in 6 months will do a biopsy and then

> If all is well will taper Imuran. In the mean time I am to Aggresivly

> seek to lose more weight.Please keep fingers crossed and pray that

> all goes well. If anyone has ever been in this situation I would like

> to know from you what to expect next and what are the chances of

> staying in remission.

> Thank you all for being here, and for being sooo very

> informative. I don't converse much be do read all posts and am with

> you all in my heart.

>

> hugs and sunshine,

> B.

>

November 23, 2002

Dear ,

Great news....hope those number stay in check.

Cheryl & Randy

December 23, 2002

Several weeks back someone posted about my friend Dan, azspaz, who had made wonderfiul progress in recovery, then suffered a terrible set back, during the RBC fraud when he was no longer getting the authentic Flanagan Silica Hydride, without his knowledge. They used his suffering and set back in an attempt to perpetuate the RBC fraud and discourage others from using Active H-.

Dan started getting the real stuff again in September, after not having any of Flanagan's Silica Hydride for nearly a year!!! & having suffered terrible damage to his liver. It was a very a tough road back, and I was afraid for awhile we might bury another one of Clinton 's victims.

Anyway, I am posting his latest, for the person who attempted to discredit both Dan & me and Flanagan's Silica Hydride, Active H- by posting a private letter from Dan's wife, expressing private concerns for her husband's life to a freind. So, for Dan, and everyone who was discouraged by the accuser who exploited the RBC fraud, the covert denial of Flanagan's SH which nearly cost my friend his life, here's Dan's post from a couple weeks ago. Write him at azspaz@....

He is back to work and life again, so be patient for his reply.

Peace, Jeanine

http://hepchelp.homestead.com

From: azspaz

Hey folks!

After being told I had 3 weeks to live a couple of months ago and processed my pity party. I have upped my active H to 4-5 a day along with a product called liver enhancer http://www.herbasway.com and I'm back on my feet and not only that I started working 2 weeks ago as a Work Incentives Coordinator for the disabled at an Independent Living Center. I'm also training to be a Benefits Planning Specialist, which enable's me to decipher all the Social Security rules and guidelines to our consumers. I am so happy to have the energy to work again, I'm at 20 hrs. a week for now with benefits and good pay. Not all is perfect, still dealing with joint pain and I'm wiped out after work, but hey! I'm back in the game!!!!!!!!!!

Never give up!!!!!!! Never lose faith!!!!!!!!!!!!!!! Never!!!! Never!!!!!!!!!!

Never!!!!!!!!!!!!!!!!!!

Thank God for folks like Jeanine who always tells us to keep fighthing and keep reasearching about our illness...............................................

3 months FREE*.

December 24, 2002

I second the motion Azspac...thankyou Jeanine. Please enjoy the Holidays...in

good health of course, All of you. Margie.

Re: [ ] Good News

Several weeks back someone posted about my friend Dan, azspaz, who had made wonderfiul progress in recovery, then suffered a terrible set back, during the RBC fraud when he was no longer getting the authentic Flanagan Silica Hydride, without his knowledge. They used his suffering and set back in an attempt to perpetuate the RBC fraud and discourage others from using Active H-.

Dan started getting the real stuff again in September, after not having any of Flanagan's Silica Hydride for nearly a year!!! & having suffered terrible damage to his liver. It was a very a tough road back, and I was afraid for awhile we might bury another one of Clinton 's victims.

Anyway, I am posting his latest, for the person who attempted to discredit both Dan & me and Flanagan's Silica Hydride, Active H- by posting a private letter from Dan's wife, expressing private concerns for her husband's life to a freind. So, for Dan, and everyone who was discouraged by the accuser who exploited the RBC fraud, the covert denial of Flanagan's SH which nearly cost my friend his life, here's Dan's post from a couple weeks ago. Write him at azspaz@....

He is back to work and life again, so be patient for his reply.

Peace, Jeanine

http://hepchelp.homestead.com

From: azspaz

Hey folks!

After being told I had 3 weeks to live a couple of months ago and processed my pity party. I have upped my active H to 4-5 a day along with a product called liver enhancer http://www.herbasway.com and I'm back on my feet and not only that I started working 2 weeks ago as a Work Incentives Coordinator for the disabled at an Independent Living Center. I'm also training to be a Benefits Planning Specialist, which enable's me to decipher all the Social Security rules and guidelines to our consumers. I am so happy to have the energy to work again, I'm at 20 hrs. a week for now with benefits and good pay. Not all is perfect, still dealing with joint pain and I'm wiped out after work, but hey! I'm back in the game!!!!!!!!!!

Never give up!!!!!!! Never lose faith!!!!!!!!!!!!!!! Never!!!! Never!!!!!!!!!!

Never!!!!!!!!!!!!!!!!!!

Thank God for folks like Jeanine who always tells us to keep fighthing and keep reasearching about our illness...............................................

3 months FREE*.

January 27, 2003

,

That's wonderful news. I go on Wednesday to see my Hepatologist, so I can talk to you about the drive. I hope my news is as good as yours.

Sleep well.

January 27, 2003

That is so wonderful! I wish you well!

P.S. your enzymes sure came down fast!

[ ] good news

I got very good news today when I saw my GI doc. I had labs done

Saturday so I would already have the results when I saw him today.

My liver enzymes are almost back to normal after only 2 1/2 weeks on

prednisone. The AST was in the normal range and the ALT was just

above normal. This was down from an AST of 337 and an ALT of 177 on

Jan 11th. My GI was absolutely thrilled with my labs. He said if

my liver enzymes continue to be this good, they may be able to cut

the prednisone down to 10 mg a day in just a few weeks. He said I

would most likely need to be on 10 mg a day for about 2 years.

After that, if my liver enzymes are normal, they usually taper you

off the prednisone and watch you very closely.

My GI said that he thinks it is entirely possible that much of my

RUQ abdominal pain is coming from my liver and not the pancreas/bile

duct. He said it's not common to have a lot of pain with liver

disease but it is definitely possible. He suggested that I hold off

on having the celiac plexus block for the pancreatitis pain because

he thinks once my liver has had a few months on prednisone to allow

the inflammation to settle down my pain may stop.

I weighed this morning (and again this evening) and I am down a

pound since beginning prednisone. I'm down to my lowest weight in

probably 22 years. It appears that at least for now, the prednisone

is not going to make me gain weight.

Hope everyone had as good a day as I had. Of course, I am exhausted

from the two hour drive. I think I will sleep well tonight.

W

January 27, 2003

.....we always love to hear good news, thanks. God bless you.

love jerry

January 28, 2003

> That is so wonderful! I wish you well!

>

> P.S. your enzymes sure came down fast!

>

,

Thanks. According to my GI, that is exactly what they hope - that

after about two weeks on prednisone, the liver enzymes will come

down drastically and you will feel much better than you have been

feeling. Of course, I may be in a false sense of security since

there have been a couple of times that my liver enzymes have been

normal over the last several months - before we knew about the AIH.

However, now that I think about it, I have been on a medrol dose

pack and had at least two cortisone injections in the last several

months. It would be interesting to see if the times my enzymes were

normal correspond with other short term doses of prednisone.

W

January 28, 2003

> ,

>

> That's wonderful news. I go on Wednesday to see my Hepatologist,

so I can

> talk to you about the drive. I hope my news is as good as yours.

>

> Sleep well.

>

,

Thanks. I, too, hope your news on Wed is as good as mine. I am up

and at em bright and early this a.m. I'm out the door for work in

about 5 minutes.

W

April 2, 2003

Yes!!! I hope you feel the Enbrel working soon, too, Sue.

[ ] Good news

> I had a CBC yesterday to see if my white blood cell count has improved

since

> giving up Arava a little over a month ago. It has! It went from 2.2 up

to

> 3.6. Still a little below normal, but at least it's changed its

direction

> from down to up. Everything else was in the normal range.

>

> Sue

April 2, 2003

That's great news, Sue! You're on the right track.

Love and hugs,

Carol

[ ] Good news

I had a CBC yesterday to see if my white blood cell count has improved

since

giving up Arava a little over a month ago. It has! It went from 2.2 up

to

3.6. Still a little below normal, but at least it's changed its

direction

from down to up. Everything else was in the normal range.

Sue

April 5, 2003

Great news Sue! As the Arava leaves your system, hopefully your counts will

continue to rise.

a

> I had a CBC yesterday to see if my white blood cell count has improved since

> giving up Arava a little over a month ago. It has! It went from 2.2 up to

> 3.6. Still a little below normal, but at least it's changed its direction

> from down to up. Everything else was in the normal range.

>

> Sue

>

May 16, 2003

My X-ray yesterday showed a very straight, well-healed back, & even my

untutored eyes could tell that T6 had healed nicely yet my L1 will never be

the same. (Too much bone gone.) My doc will be checking me weekly for any

L1 instability. Things are fine so far on day 2. I feel so free, for I

only have to wear my brace an hour at a time & when I'm driving. In fact, I

just drove my son to his baseball game! But couldn't stay to watch as I can

't sit upright for long. I even get to sleep without this hot brace!!! The

pain is livable. I walked at the beach today, and it felt strange &

wonderful to feel the wind on my torso. I ran into some friends walking

their dogs, & we all cried, hugging, glad that I'm out and about. I'm so

thankful to be walking. Now it's time to drive my daughter to swimming.

Did I mention I'm so happy to be driving? So many friends drove my kids

everywhere for months. It's good to be independent again.

sonia :-)

May 16, 2003

Thats wonderful !

RE: Good News