Good News

[Guest guest]

Roxanne

Thats great news keep it up !!!

Mark G

[ ] good news

>

>

> > From: CREE8V1@...

> >

> > I just got back from my liver doc and my enzymes are still normal. I

have

> > now been off the prednisone for three months and am only on 50mgs of

> > azathioprine. For the first time in years, I actually feel " normal " . I

> > still need my daily nap but otherwise I feel good. My doctor and I

hugged

> > each other and we both feel really optimistic about my prognosis.

> >

> > Also, I wanted to share with you all that my husband, who is a video and

> film

> > producer, is volunteering to produce a documentary for the Midwest Organ

> > Donation Organization. He shot the first segment on Saturday

interviewing

> > four soft tissue organ recipients. I am very proud of his efforts.

> >

> > Thank you to all of you who have helped me through this tough couple of

> years

> > to help me reach this point. The information and emotional outreach on

> this

> > list has really been my therapy for coping.

> >

> > Love, Roxanne

> >

> > ---------------------------

[Guest guest]

----------

Roxanne,

What a legend you are. I think that is the sentence we are all looking to

write, a better future. Well done. I am so pleased for you.

SueB.

[Guest guest]

In a message dated 09/06/1999 6:26:09 AM Eastern Daylight Time,

spangs@... writes:

<<

Another question: Those of you who bruise easily, does this happen when

you're

otherwise in remission? For awhile I bruised if I bumped lightly into

anything

then the problem seemed to stop. Now it's back. We just got back from a

driving vacation and something so minor as leaning hard on the car seat to

get

something on the seat behind me would result in a bruise. I look like a

battered wife and it's embarassing. Is this from Prednisone, Imuran, or

both,

or what? If anyone knows for sure, I'd like reassurance that it doesn't mean

anything!

Take care,

Geri >>

Hi Geri..I am glad to meet you. You are a wealth of knowledge and I hope to

glean from your wisdom. About 2 years ago I learned of these dragons (AIH,

PBC, HBP) I have. And have been to doctor after doctor. And for some reason

they don't think I will benefit from Prednisone or Imuran. But I do have the

brusing and for no reason. I can go to sleep at night and wake up looking

like I had been in a fight and lost. LOL. I ask the doctor and was told,

" Joan, it is all part of the diseases you have. Just be careful. " Sometimes

I get tired of hearing that. I am in Stage one of Cirrhosis.

Is this similar to the fatigue you feel? I go to bed tired, wake up

tired, stayed tired all day. I do get up as soon as I wake, function until

about noon then crash. I take a nap and am fine, well as fine as someone

with all this can be, then by 10 I am exhausted. I have full care of my

husband who is a parapalegic. We have learned to schedule his needs around

me energy. I have a cleaning man who does the housework for me, so I am

lucky there.

Looking forward to hearing more from you.

Have a good day, and remember...Laughter is the music of a happy heart, love

is it's sustenance. Sooooo...laugh a lot, it is healing.

Joan, AIH, PBC, HBP

Florida

[Guest guest]

In a message dated 09/06/1999 6:26:09 AM Eastern Daylight Time,

spangs@... writes:

<<

Another question: Those of you who bruise easily, does this happen when

you're

otherwise in remission? For awhile I bruised if I bumped lightly into

anything

then the problem seemed to stop. Now it's back. We just got back from a

driving vacation and something so minor as leaning hard on the car seat to

get

something on the seat behind me would result in a bruise. I look like a

battered wife and it's embarassing. Is this from Prednisone, Imuran, or

both,

or what? If anyone knows for sure, I'd like reassurance that it doesn't mean

anything!

Take care,

Geri >>

Hi Geri..I am glad to meet you. You are a wealth of knowledge and I hope to

glean from your wisdom. About 2 years ago I learned of these dragons (AIH,

PBC, HBP) I have. And have been to doctor after doctor. And for some reason

they don't think I will benefit from Prednisone or Imuran. But I do have the

brusing and for no reason. I can go to sleep at night and wake up looking

like I had been in a fight and lost. LOL. I ask the doctor and was told,

" Joan, it is all part of the diseases you have. Just be careful. " Sometimes

I get tired of hearing that. I am in Stage one of Cirrhosis.

Is this similar to the fatigue you feel? I go to bed tired, wake up

tired, stayed tired all day. I do get up as soon as I wake, function until

about noon then crash. I take a nap and am fine, well as fine as someone

with all this can be, then by 10 I am exhausted. I have full care of my

husband who is a parapalegic. We have learned to schedule his needs around

me energy. I have a cleaning man who does the housework for me, so I am

lucky there.

Looking forward to hearing more from you.

Have a good day, and remember...Laughter is the music of a happy heart, love

is it's sustenance. Sooooo...laugh a lot, it is healing.

Joan, AIH, PBC, HBP

Florida

[Guest guest]

Hi Geri,

Your fatigue problem sound exactly like mine, I'm really starting to dislike

mornings! On the weekend I take naps, which is bad cause I lose so much of

" my " time, but my body just stops me from doing anything other than nap. I

feel like I need to build up all the strength I can to face the work week.

I too bruise very easily, but I have all my life. My arms and legs

especially look like someone has been beating on me.

Glad to have you back from vacation, your letters are very informative!

Take care,

(AIH)

Florida

[Guest guest]

Hi Geri,

Your fatigue problem sound exactly like mine, I'm really starting to dislike

mornings! On the weekend I take naps, which is bad cause I lose so much of

" my " time, but my body just stops me from doing anything other than nap. I

feel like I need to build up all the strength I can to face the work week.

I too bruise very easily, but I have all my life. My arms and legs

especially look like someone has been beating on me.

Glad to have you back from vacation, your letters are very informative!

Take care,

(AIH)

Florida

[Guest guest]

Roxanne,

Congratulations on the good news! How long were your enzymes normal before you

stopped taking Prednisone? Mine have been mostly normal for more than a year

though there have been some blood abnormalities and a few problems. But, it

didn't work for me to go off Prednisone. I'd love to go off the stuff, but

I've heard that relapse within 6 months of stopping Prednisone is a

possibility. Did your doctor mention that possibility?

I'm thinking that they reach many conclusions about how things will work

according to the initial reaction to the immunosuppressants. Those of us who

have a vigorously positive response to the meds most likely are the lucky

ones. My labs have never gone up, but they didn't drop down overnight either.

They just gradually declined over a period of months until they stabilized

about where they are now. I'm now considered in remission and my doctors seem

to think I'll continue this way indefinitely. I hope they're right!

But, about fatigue, I have some questions. I'm having considerably more

fatigue than I was having. It's almost like someone pushes a button and I

simply run down and don't recover until I've had 8-9 hours of sleep. I rarely

nap though I sometimes fall asleep if I sit and relax to watch a video or

read. Is this the meds? I've been taking them for so long, without even a

change in dosage for months, but the fatigue is worse than it was. Also, I

have a very difficult time getting up and around when I first wake up. In

fact, I don't even try to get out of bed until about an hour after I wake

because I feel too tired and weak. Then, gradually, it's like my system starts

working again and I'm up and feeling fine. Is this similar to the fatigue you

feel?

Another question: Those of you who bruise easily, does this happen when you're

otherwise in remission? For awhile I bruised if I bumped lightly into anything

then the problem seemed to stop. Now it's back. We just got back from a

driving vacation and something so minor as leaning hard on the car seat to get

something on the seat behind me would result in a bruise. I look like a

battered wife and it's embarassing. Is this from Prednisone, Imuran, or both,

or what? If anyone knows for sure, I'd like reassurance that it doesn't mean

anything!

Take care,

Geri

[Guest guest]

Geri Spang wrote:

>

> From: Geri Spang <spangs@...>

>

> But, about fatigue, I have some questions. I'm having considerably more

> fatigue than I was having. It's almost like someone pushes a button and I

> simply run down and don't recover until I've had 8-9 hours of sleep. I

rarely

> nap though I sometimes fall asleep if I sit and relax to watch a video or

> read. Is this the meds? I've been taking them for so long, without even a

> change in dosage for months, but the fatigue is worse than it was. Also, I

> have a very difficult time getting up and around when I first wake up. In

> fact, I don't even try to get out of bed until about an hour after I wake

> because I feel too tired and weak. Then, gradually, it's like my system

starts

> working again and I'm up and feeling fine. Is this similar to the fatigue you

> feel?

>

I used to love to get up early in the morning, drink a cup of coffee,

listen to the birds, and sit outside in the morning cool air. Now it is

more like you describe. I get up, eat my breakfast, read part of the

newspaper, and then take a nap for another hour or so if I don't have

anything I have to do in the morning.

A couple things that I found that helped:

- I try to go to bed and to sleep at a regular time. I have trouble

sleeping sometimes and take Ambien. This way I get a good night's rest.

I also try to avoid long naps as this also hurts my ability to sleep

well at night.

- I also have worked at not overdoing it. I tend to push myself and then

collapse. When I came back from a strenuous vacation this summer, I

slept for about 20 hours per day for a week. If I don't overdo it and

get overly tired, I can avoid the blitzed feeling.

> Another question: Those of you who bruise easily, does this happen when

you're

> otherwise in remission? For awhile I bruised if I bumped lightly into

anything

> then the problem seemed to stop. Now it's back. We just got back from a

> driving vacation and something so minor as leaning hard on the car seat to get

> something on the seat behind me would result in a bruise. I look like a

> battered wife and it's embarassing. Is this from Prednisone, Imuran, or both,

> or what? If anyone knows for sure, I'd like reassurance that it doesn't mean

> anything!

I can relate to the battered wife look, even though I am not married.

I too bruise easily and have for years. Now I think this might have been

an early sign of the liver disease, but when I asked my doctor at the

time, I was told " Some people just bruise easily. "

My doctor was very concerned when I was first diagnosed with AIH about

my blood clotting ability. Since I am an active cyclist, he was

concerned that I could lose a lot of blood in what would be a minor

injury for someone else. One of the lab tests he orders for my normal

labs is INR. This also gives a protime which relates to the clotting

time I think.

I think the bruises are related to the blood clotting ability. When I

injure myself internally, normally the body would seal off the wound

quickly and no blood would be lost. But for us, this is not the case. I

think the liver produces the blood clotting factor. I also think that

Imuran reduces the production of the clotting factor, for sure it

reduces the platlets and white blood cell counts - that's what the

warning about not using warfarin (sp?) in conjunction with Imuran

relates to I think. Warfarin is a blood thinner and is used to reduce

clotting. So, it seems the poor blood clotting comes from two places -

Imuran and a liver that is no longer working at full capacity.

Even though my INR and protimes are normal, I still bruise easily.

I do not take aspirin because it too reduces the blood clotting.

[Guest guest]

I thought I was loosing my mind for a while. I have been fatigued sooo

easily. I am good for a few hours, then it's like I need a nap to get

through the day.

[Guest guest]

Good Morning MD,

No Sweetie your not loosing your mind. With this albatross ya go bed tired,

wake up tired, stay tired. The important thing is to not let your mind get

tired. That will help keep you going.

Have a good day, and remember...Laughter is the music of a happy heart, love

is it's sustenance. Sooooo...laugh a lot, it is healing.

Joan, AIH, PBC, HBP

Florida

[Guest guest]

HI,

Glad to hear from you again. Saw you online last night, but had so much

mail to go through, that by the time I was done , you were gone. Thanks for

the kind words.

The tiredness is worse after working nights, and not sleeping well. Yes, I

actually get paid for trying to sleep at night. (I take care of an elderly

lady, who is in no danger at night, and I'm a light sleeper). The next day

though after not sleeping well because of work, I'm wiped out the whole next

day.

Part of the job, though. This job will be ending any day now.

Thanks for all your support.

[Guest guest]

Geri,

Does itching go away with prednisone treatment? Woke up today with terrible

attack of itching. Usually itching is worse at night. At night I can take

benedryl for it and the side effect of sleepiness from benedryl is welcome.

But it is morning now and I can see that whole day will be shot because

taking benedryl in daytime.

J

>From: Geri Spang <spangs@...>

>Reply- onelist

> onelist

>Subject: Re: [ ] good news

>Date: Wed, 08 Sep 1999 03:44:43 -0700

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>From: Geri Spang <spangs@...>

>

>Hi Joan,

>Curious that your doctors have decided that you have autoimmune diseases

>yet

>won't benefit from immunosuppressive drugs. Curious, but not surprising.

>GI

>doctors understand liver disease but they don't necessarily understand

>autoimmunity. My first GI doctor, lucky for me, admitted freely that he

>had no

>idea how to treat AIH and prescribed NOTHING until I could see a

>Hepatologist

>who travels from San Francisco to Las Vegas once a month to see liver

>transplant candidates.

>

>Have you seen a Hepatologist or mainly GI docs? Ever asked your doctors if

>they've treated anyone else with an autoimmune liver disease? Prednisone

>and/or Azathioprine are absolutely the primary treatment for autoimmune

>liver

>diseases if they can be tolerated.

>

>I've gone from end stage liver disease with stage IV cirrhosis to my

>current

>remission. It wasn't a miraculous overnight wonder, but my labs gradually

>subsided over a period of months to where I am now, at a level where I'm

>basically out of the woods. My Prednisone was reduced from the initial 40

>mgs

>to the current 5 mgs. with great caution and supposedly I'll continue

>taking

>Prednisone for life. I've known from the onset that I'd take Imuran for

>life.

>I won't argue with success. The meds surely are what brought on the

>remission

>because I didn't pray and I didn't change my lifestyle except as much as

>was

>physically unavoidable. The fact that your docs aren't giving you

>immunosuppressive drugs for an autoimmune disease sounds worrisome. Have

>you

>asked them why they think you won't benefit from the proven treatment for

>this

>condition? If you haven't already and if it's possible, I'd certainly

>recommend that you at least have a consultation with a Hepatologist at a

>major

>medical center that does liver transplants and treats people with

>autoimmune

>liver diseases. There's a frightening amount of medical ignorance out

>there,

>especially when it comes to treating rare diseases. It's our lives they

>are

>playing with and why should they make us pay for their mistakes or failed

>judgements about treatment?

>

>Even a brief rest or nap can be remarkably rejuvenating, I've found. I was

>really dragging by the time we sat down to dinner tonight, but an hour

>later I

>felt okay again. Just that little bit of rest made a world of difference.

>I

>suppose I should rest more but I'm not good at taking it easy. You have

>a

>rough situation on your hands, taking care of your husband. My husband had

>back surgery just awhile before I was diagnosed and again last September.

>At

>one point he and I wondered what we would do with both of us virtually

>immobilized. But, he's gotten better and I've gotten worse as far as

>fatigue

>and pain goes, so life has a way of rounding things out, I guess.

>

>Take care,

>Geri

>

>

>

>

>---------------------------

[Guest guest]

Hi Geri..

I have a doctors appointment next week...I am going to tell him I need to see

a Hepatologist . Insurance is the deciding factor on referrals. The doctor

don't make as much money off you when you see a lot of doctors. But from

what I read here more should be done then what is being done and by dang it

will be done. They tell me I have two life threatening diseases. I tell them

life challenging. They tell me to keep thinking like that. Well, they can

see the glass half empty, I prefer to see it half full. Why should I give up

just because they are such numb dumbs.

Hi J.. I took Mevacore for about 2 years for cholesterol. It did

nothing for me. The doctors finally decided because of my Italian heritage it

was high. I eat so healthy it isn't funny.

On the herbs, again I stress, please check with your doctors. There are

several good sites that deal with herbs and the benefits from them. I have

found most stores that specialize in selling them are very informative and

usually have written information on each herb. The library is another place

to find infor on Herbs as an alternative medicine. It is working for me but

what works for me might not work for everyone else..

Have a good day, and remember...Laughter is the music of a happy heart, love

is it's sustenance. Sooooo...laugh a lot, it is healing.

Joan, AIH, PBC, HBP

Florida

[Guest guest]

Hi Joan,

Curious that your doctors have decided that you have autoimmune diseases yet

won't benefit from immunosuppressive drugs. Curious, but not surprising. GI

doctors understand liver disease but they don't necessarily understand

autoimmunity. My first GI doctor, lucky for me, admitted freely that he had no

idea how to treat AIH and prescribed NOTHING until I could see a Hepatologist

who travels from San Francisco to Las Vegas once a month to see liver

transplant candidates.

Have you seen a Hepatologist or mainly GI docs? Ever asked your doctors if

they've treated anyone else with an autoimmune liver disease? Prednisone

and/or Azathioprine are absolutely the primary treatment for autoimmune liver

diseases if they can be tolerated.

I've gone from end stage liver disease with stage IV cirrhosis to my current

remission. It wasn't a miraculous overnight wonder, but my labs gradually

subsided over a period of months to where I am now, at a level where I'm

basically out of the woods. My Prednisone was reduced from the initial 40 mgs

to the current 5 mgs. with great caution and supposedly I'll continue taking

Prednisone for life. I've known from the onset that I'd take Imuran for life.

I won't argue with success. The meds surely are what brought on the remission

because I didn't pray and I didn't change my lifestyle except as much as was

physically unavoidable. The fact that your docs aren't giving you

immunosuppressive drugs for an autoimmune disease sounds worrisome. Have you

asked them why they think you won't benefit from the proven treatment for this

condition? If you haven't already and if it's possible, I'd certainly

recommend that you at least have a consultation with a Hepatologist at a major

medical center that does liver transplants and treats people with autoimmune

liver diseases. There's a frightening amount of medical ignorance out there,

especially when it comes to treating rare diseases. It's our lives they are

playing with and why should they make us pay for their mistakes or failed

judgements about treatment?

Even a brief rest or nap can be remarkably rejuvenating, I've found. I was

really dragging by the time we sat down to dinner tonight, but an hour later I

felt okay again. Just that little bit of rest made a world of difference. I

suppose I should rest more but I'm not good at taking it easy. You have a

rough situation on your hands, taking care of your husband. My husband had

back surgery just awhile before I was diagnosed and again last September. At

one point he and I wondered what we would do with both of us virtually

immobilized. But, he's gotten better and I've gotten worse as far as fatigue

and pain goes, so life has a way of rounding things out, I guess.

Take care,

Geri

[Guest guest]

Have you had your playlets checked...Tyler and I have both had low

playlets...Mine were so low that I bruised where the bandaid was (from lab

work0..of course there was a bruise at the actual site of test also...If you

just touched Ty's arm,leg etc he would get bruises...sometimes little

sometimes huge...

Hope this has helped...The docs just seemed to watch counts...mine is a

little higher but Ty's is still low...

Luanne Ty's mom

[Guest guest]

Barbara,

I also love mornings. This is crazy, but during the summer months I get a

great deal of pleasure out of stepping outside just after daylight, putting

some seed in the bird feeder and watching the birds. But, I rarely see morning

except when I've been up all night or if I have an unavoidable early

appointment. I wish I could nap more easily. If I'd just sit down and let it

happen, I probably could. I tend to doze off evenings after dinner when I'm

trying to watch a TV show or a video or catch up on reading. At least I don't

have insomnia anymore. By the time I get to bed I'm already half " out " and

fall asleep, usually, within minutes.

I tried Ambien but it didn't work for me when I was having major insomnia

problems. Nothing did. I was also given Trazadone and Benadryl was

suggested. I found that the Hydroxyzine I was taking for itching knocked me

out but I didn't like the way it made me feel - too groggy, even in the mildest

form. Actually, the insomnia that many of us get from liver disease seems to

be resistant to everything. It was a nightmare I don't want to go through

again.

We do definitely pay for overdoing things. I thought I felt good during our

vacation and certainly it wasn't an effort to ride in the car and share some of

the driving, but just unpacking seemed to have the effect of a week of hard

labor. I was totally wiped out for the first day. Now I'm back to " normal " ,

whatever that is.

The bruises are puzzling. I have them in places where I know I haven't bumped

into anything. Recently I just pinched my wrist fastening my watchband and

ended up with a small purple bruise for a week. I also notice that scars last

longer. I used to heal very rapidly and scars would disappear remarkably

fast. No more. Scars from my lung biopsy are finally fading after more than a

year. Have to wonder what's going on inside if the exterior is so fragile.

Great answer you got from your doctor about the reason you're bruising. Sure,

some people " just bruise easily " . But the question is, " Why???? " Either they

think we're too dumb to understand complex answers or they don't want to take

the time to tell us. I hate to think they don't know.

I had an incident of severe bleeding almost a year before AIH diagnosis. A

sharp butcher knife fell from the knife holder and cut a finger. Blood flew

all over the kitchen. My poor husband ran around trying to mop up the blood

and I finally yelled at him, " the hell with the floor, get something to stop

the bleeding! " I didn't realize a finger could bleed that much. A year later,

post AIH I slammed our deck door on a finger and the same thing happened.

Blood everywhere. In the past I've been one of those people who rarely needed

a Band-Aid, my blood clotted so quickly. Now even a thorn from our rose bushes

causes way too much bleeding. Good thing I don't have a basically risky

lifestyle. However, I'm in too much of a rush much of the time and tend to

slam into doorways and tables, causing bumps, bruises and cuts that aren't

necessary. I had an INR test (prothrombin time) a few months ago. I'm high

normal. I don't know what's considered " high " but when my protime hit over 14

minutes (?) the hospital defrosted 5 units of plasma before they'd do my liver

biopsy.

One of the risks of Imuran is leukemia. I just re-read an article I'd

downloaded about it, explaining why no one should be on more than 50 mgs. if

possible. I suppose this would tie in with easy bleeding. I don't know what

the leukemia risk factor is and I'd as soon not know. Without Imuran there

were no odds in my favor, so any cancer risk is worth it to me. I take maybe 2

Bufferin a week, sometimes less often than that. Only if I have a headache.

My husband had to have blood tests one time before they'd do a scheduled

procedure because he had taken aspirin during the week prior. Think of all the

generations that didn't know about the aspirin and bleeding risk!

Take care,

Geri

[Guest guest]

Joan,

HMO doctors hate to do referrals. Sometimes the doctor's hands are tied and

they risk being dropped from the HMO if they do too many referrals. Scary,

isn't it? However, you have a rare and potentially life threatening condition

that requires highly specialized care and there is pending legislation that

will require a referral in a case like yours. In fact, laws might already

exist in your state. You definitely need to see a Hepatologist who has treated

AIH patients. Hold your ground until you get exactly what you need and be sure

to verify that whoever you see has treated AIH.

Take care,

Geri

[Guest guest]

,

I think that Prednisone does help the itching. My itching stopped a couple of

months after I started taking it but definitely not right away. Either the

Prednisone stopped the itching or the fact that my labs were improving caused

the itching to end. We had a cat who had a severe flea allergy and our vet

used to give him Prednisone for itching. Without it, the poor little guy was

miserable all of the time.

Sometimes I take Benadryl for hives. I still tend to have minor attacks of

hives but easily controlled. If they start to spread, I take a Benadryl and I

don't get sleepy if I take it during the day. For me, at least, it doesn't

make me sleepy if I'm up and around. I hope the itching lets up for you.

There seem to be a large variety of meds you can take to relieve it. Have you

talked to your doctor about it?

Take care,

Geri

[Guest guest]

Joan,

You go girl! Go tell that doctor just what the hog weighs! Get him all

straightened up! Then come over here and get mine!!!!

Love ya,

(AIH)

[Guest guest]

Joan,

I am so impressed with your light hearted manner with all that you are

dealing with. You take care of your husband and deal with the fatigue.

I don't understand why the docs would not start you on some meds. Are your

enzymes elevated?

Roxanne

[Guest guest]

In a message dated 09/09/1999 10:53:25 PM Eastern Daylight Time,

CREE8V1@... writes:

<< I don't understand why the docs would not start you on some meds. Are

your

enzymes elevated? >>

Hi...

Thank you for your kind words. As I have said before, watching my husband

die of cancer and how he never complained or whined thru 5 years of pure

" hello " he he he...I learned what was most important in this life. I try to

see the good in everyone and everything.

My enzyemes are 511, they were at 1299. My other counts are coming down

too..I don't have the test results right here. But I will look them up...and

post them.

I am tired now, gonna hit the sheets and dream of something wonderful..

Have a good day, and remember...Laughter is the music of a happy heart, love

is it's sustenance. Sooooo...laugh a lot, it is healing.

Joan, AIH, PBC, HBP

Florida

[Guest guest]

Hello,

I have a weird question to ask. Has anyone ever noticed their urine smelling

funny during a time when they are in a flare up?

Thanks

Athie AIH

Re: [ ] good news

> From: FOXDIANA@...

>

> In a message dated 09/09/1999 10:53:25 PM Eastern Daylight Time,

> CREE8V1@... writes:

>

> << I don't understand why the docs would not start you on some meds. Are

> your

> enzymes elevated? >>

> Hi...

> Thank you for your kind words. As I have said before, watching my husband

> die of cancer and how he never complained or whined thru 5 years of pure

> " hello " he he he...I learned what was most important in this life. I try

to

> see the good in everyone and everything.

>

> My enzyemes are 511, they were at 1299. My other counts are coming down

> too..I don't have the test results right here. But I will look them

up...and

> post them.

>

> I am tired now, gonna hit the sheets and dream of something wonderful..

>

> Have a good day, and remember...Laughter is the music of a happy heart,

love

> is it's sustenance. Sooooo...laugh a lot, it is healing.

>

> Joan, AIH, PBC, HBP

> Florida

>

> ---------------------------

[Guest guest]

Yes, from the bilirubin.

[Guest guest]

Mine was strong and dark almost like tea. But that only lasted for a short

while. Another reason I had on my list to go see the Dr. about before i was

diagnosed. Lynn aih

S Pickrel wrote:

> From: " S Pickrel " <PICKREL@...>

>

> Hello,

> I have a weird question to ask. Has anyone ever noticed their urine smelling

> funny during a time when they are in a flare up?

> Thanks

> Athie AIH

> Re: [ ] good news

>

> > From: FOXDIANA@...

> >

> > In a message dated 09/09/1999 10:53:25 PM Eastern Daylight Time,

> > CREE8V1@... writes:

> >

> > << I don't understand why the docs would not start you on some meds. Are

> > your

> > enzymes elevated? >>

> > Hi...

> > Thank you for your kind words. As I have said before, watching my husband

> > die of cancer and how he never complained or whined thru 5 years of pure

> > " hello " he he he...I learned what was most important in this life. I try

> to

> > see the good in everyone and everything.

> >

> > My enzyemes are 511, they were at 1299. My other counts are coming down

> > too..I don't have the test results right here. But I will look them

> up...and

> > post them.

> >

> > I am tired now, gonna hit the sheets and dream of something wonderful..

> >

> > Have a good day, and remember...Laughter is the music of a happy heart,

> love

> > is it's sustenance. Sooooo...laugh a lot, it is healing.

> >

> > Joan, AIH, PBC, HBP

> > Florida

> >

> > ---------------------------

[Guest guest]

Mine was strong and dark almost like tea. But that only lasted for a short

while. Another reason I had on my list to go see the Dr. about before i was

diagnosed. Also that is not a weird question. We were talking about that the

other day. Pee and poop watching. One of the first ways you can tell something

is wrong. With animals too. We raise dachshund dogs, and have raised other

animals. That is one thing you check all the time to make sure everything is

running smoothly! Lynn aih

S Pickrel wrote:

> From: " S Pickrel " <PICKREL@...>

>

> Hello,

> I have a weird question to ask. Has anyone ever noticed their urine smelling

> funny during a time when they are in a flare up?

> Thanks

> Athie AIH

> Re: [ ] good news

>

> > From: FOXDIANA@...

> >

> > In a message dated 09/09/1999 10:53:25 PM Eastern Daylight Time,

> > CREE8V1@... writes:

> >

> > << I don't understand why the docs would not start you on some meds. Are

> > your

> > enzymes elevated? >>

> > Hi...

> > Thank you for your kind words. As I have said before, watching my husband

> > die of cancer and how he never complained or whined thru 5 years of pure

> > " hello " he he he...I learned what was most important in this life. I try

> to

> > see the good in everyone and everything.

> >

> > My enzyemes are 511, they were at 1299. My other counts are coming down

> > too..I don't have the test results right here. But I will look them

> up...and

> > post them.

> >

> > I am tired now, gonna hit the sheets and dream of something wonderful..

> >

> > Have a good day, and remember...Laughter is the music of a happy heart,

> love

> > is it's sustenance. Sooooo...laugh a lot, it is healing.

> >

> > Joan, AIH, PBC, HBP

> > Florida

> >

> > ---------------------------