Guest guest Posted June 21, 2003 Report Share Posted June 21, 2003 Hi, Graham, and thanks. i will keep everyone informed. sue and gidget Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2003 Report Share Posted June 21, 2003 Terry!!!!!! I am so happy for you!!!!! ;o You Go Boy!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Angel Hugs, Diane May Rainbow Dreams Color Your World With Love, Hope, Peace & Unity Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2003 Report Share Posted June 29, 2003 Great news Prue! Sam has had a good week too Mandi in UK > Harry is going well at the minute. He was moved last Mon to sit with the > other kids in class!! He lasted three days before sensory issues got to him but > they will try again this week. Isn't that great? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2003 Report Share Posted June 29, 2003 how does harry feel about htis three days in the trenches? the rolling fields of england must have seemed a long way away. > Harry is going well at the minute. He was moved last Mon to sit with the other kids in class!! He lasted three days before sensory issues got to him but they will try again this week. Isn't that great? > Prue > AUS > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2003 Report Share Posted July 31, 2003 Congratulations beth. How long have you had AIH? We don't hear often enough about remissions. Keep us posted, we like to know they stay there! Patty [ ] good news I had my Dr. appointment today and wanted to let everybody know the most wonderful news I am now in remission!!! All labs are normal. I know I don't post very often but I read them all every day and am very lucky to have all of you to listen to and to listen to me. SO thank you all , ELisbeth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2003 Report Share Posted July 31, 2003 Congrats Elisbeth!! Trish and Kelsey -- In , " elisbeth27 " <edowless@c...> wrote: > I had my Dr. appointment today and wanted to let everybody know the > most wonderful news I am now in remission!!! All labs are normal. > I know I don't post very often but I read them all every day > and am very lucky to have all of you to listen to and to listen to me. > SO thank you all , ELisbeth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2003 Report Share Posted July 31, 2003 Elisbeth, How wonderful. I'm so happy for you. This is wonderful news. Keep doing what you are doing, because it obviously is working for you. Wonderful news. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2003 Report Share Posted July 31, 2003 ....that is just terrific!!! Thanks for sharing the good news...keep on keeping on!!! love jerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2003 Report Share Posted August 1, 2003 Elisbeth, So glad to hear your good news! That is wonderful! W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2003 Report Share Posted August 12, 2003 > I feel very fortunate to be alive and I'm just trying to enjoy the little things in life and take one day at a time < Way to go, Kenny!! Things sound like they are looking up for you! Vivian H. Vivian H. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2003 Report Share Posted August 13, 2003 Hey Kenney I am so glad to hear you say one day at a time. That is all we can do. I am glad you have found peace within yourself and can put your trust in your new Dr. Injury's can do funny things to people especially when it turns your life around completely. God Bless You and good luck to you in the future. Chris Good news Hi everyone. I had my appointment today at UCLA. The neurologist I saw believes I suffered a spinal cord contusion as a result of my injury, which led to the neuropathy I have been experiencing, but he said I will make a complete recovery eventually. He ordered some bloodwork just to make sure there isn't another cause for the neuropathy, but he expects the tests to be normal. I wasn't ready for my sex life to be over at the age of 25, so this is good news. Like I would like to thank everyone for being supportive and I wish everyone the best. I am taking Celexa for depression and I attend a depression support group once a week. I feel very fortunate to be alive and I'm just trying to enjoy the little things in life and take one day at a time. Love to all, Kenny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2003 Report Share Posted August 13, 2003 Ken - Sometimes getting a doc that cares about you and helps you out is better than anything else in the world. I'm glad you've got some good help goin' on there on the left coast. joe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2003 Report Share Posted September 24, 2003 Great news !! -----Oorspronkelijk bericht----- Van: Weston [mailto:karenw@...] Verzonden: woensdag 24 september 2003 12:12 Aan: " Undisclosed-Recipient:; " @mx1.wanadoo.nl Onderwerp: [ ] good news I got my lab results from Monday and they were great. One of my liver enzymes was slightly elevated (AST was 36 and it should be below 30), but everything else was normal. My GI doc told me that he would start tapering my prednisone down further if my labs were good. He was not in the office on Tuesday but I should be hearing from him today. I am so anxious to begin the process of getting off of the prednisone. My face is beginning to show signs of the typical moon or roundness that goes along with long term prednisone use. My weight was up 10 lbs, although for some reason Tuesday morning it was down 5 lbs from what it had been on Monday. The sudden drop just convinces me all the more that my weight being up is most likely just from the prednisone. I know I shouldn't really complain because I've really been lucky to have as few side effects as I've had from the prednisone. However, I will be glad to be rid of it. Of course, it will be several months before I can get off of it completely but it will feel so wonderful to be moving the dose down! I asked my doctor about the Imuran and whether he would take me off of it sometime down the road if my liver enzymes stayed normal once I was totally off of prednisone. He told me that I will have to stay on the Imuran for life even if my liver enzymes are never elevated again. I am on a low dose, just 50 mg a day. He said he'd really like for me to be on 100 mg a day but he dropped it to 50 in mid August when I had my last attack of acute pancreatitis that landed me in the hospital. I suspect that if I can go a few months without a bad pancreatitis attack, he may raise the Imuran. Anyway, just wanted to share my good news. W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2003 Report Share Posted September 24, 2003 Dear , Congratulations on your recent blood test results. It is always nice to read when someone has good news to report!!! You take care and good luck on weaning off the Prednisone. Shirlee (wa state) ----- Original Message ----- From: West Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2003 Report Share Posted September 24, 2003 , That is good news indeed! I'm happy for you. Judy (the other Alabamian) [ ] good news I got my lab results from Monday and they were great. One of my liver enzymes was slightly elevated (AST was 36 and it should be below 30), but everything else was normal. My GI doc told me that he would start tapering my prednisone down further if my labs were good. He was not in the office on Tuesday but I should be hearing from him today. I am so anxious to begin the process of getting off of the prednisone. My face is beginning to show signs of the typical moon or roundness that goes along with long term prednisone use. My weight was up 10 lbs, although for some reason Tuesday morning it was down 5 lbs from what it had been on Monday. The sudden drop just convinces me all the more that my weight being up is most likely just from the prednisone. I know I shouldn't really complain because I've really been lucky to have as few side effects as I've had from the prednisone. However, I will be glad to be rid of it. Of course, it will be several months before I can get off of it completely but it will feel so wonderful to be moving the dose down! I asked my doctor about the Imuran and whether he would take me off of it sometime down the road if my liver enzymes stayed normal once I was totally off of prednisone. He told me that I will have to stay on the Imuran for life even if my liver enzymes are never elevated again. I am on a low dose, just 50 mg a day. He said he'd really like for me to be on 100 mg a day but he dropped it to 50 in mid August when I had my last attack of acute pancreatitis that landed me in the hospital. I suspect that if I can go a few months without a bad pancreatitis attack, he may raise the Imuran. Anyway, just wanted to share my good news. W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2003 Report Share Posted September 29, 2003 , this is wonderful news! Keep up the good work! Debby [ ] good news I got my lab results from Monday and they were great. One of my liver enzymes was slightly elevated (AST was 36 and it should be below 30), but everything else was normal. My GI doc told me that he would start tapering my prednisone down further if my labs were good. He was not in the office on Tuesday but I should be hearing from him today. I am so anxious to begin the process of getting off of the prednisone. My face is beginning to show signs of the typical moon or roundness that goes along with long term prednisone use. My weight was up 10 lbs, although for some reason Tuesday morning it was down 5 lbs from what it had been on Monday. The sudden drop just convinces me all the more that my weight being up is most likely just from the prednisone. I know I shouldn't really complain because I've really been lucky to have as few side effects as I've had from the prednisone. However, I will be glad to be rid of it. Of course, it will be several months before I can get off of it completely but it will feel so wonderful to be moving the dose down! I asked my doctor about the Imuran and whether he would take me off of it sometime down the road if my liver enzymes stayed normal once I was totally off of prednisone. He told me that I will have to stay on the Imuran for life even if my liver enzymes are never elevated again. I am on a low dose, just 50 mg a day. He said he'd really like for me to be on 100 mg a day but he dropped it to 50 in mid August when I had my last attack of acute pancreatitis that landed me in the hospital. I suspect that if I can go a few months without a bad pancreatitis attack, he may raise the Imuran. Anyway, just wanted to share my good news. W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2003 Report Share Posted October 27, 2003 Congratulations!! kindest regards, BobK At 03:01 AM 10/29/2003 -0000, you wrote: >>>> > My 6 month post treatment results are in and I am still > undetectable. For those of you that have followed the goings on > before, during and after my treatment and have been encouraging - > many thanks. > > Grace > geno 1b > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2003 Report Share Posted October 29, 2003 great news, Grace! You go, girl! Blessings! Satya Re: [ ] Good news Congratulations!!kindest regards,BobKAt 03:01 AM 10/29/2003 -0000, you wrote: >>>> My 6 month post treatment results are in and I am still undetectable. For those of you that have followed the goings on before, during and after my treatment and have been encouraging - many thanks.Gracegeno 1b Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2003 Report Share Posted October 29, 2003 Fantastic, Grace! Congratulations! You must feel super! Love & Blessings, Karolyn > My 6 month post treatment results are in and I am still > undetectable. For those of you that have followed the goings on > before, during and after my treatment and have been encouraging - > many thanks. > > Grace > geno 1b Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2003 Report Share Posted October 29, 2003 As Montgomery Burns from the Simpson's would remark... Most excellent! andy > My 6 month post treatment results are in and I am still > undetectable. For those of you that have followed the goings on > before, during and after my treatment and have been encouraging - > many thanks. > > Grace > geno 1b Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2003 Report Share Posted December 1, 2003 Hi Ute, I well remember those days when you were getting started on AP. We exchanged a few posts. It is so exciting to hear how well you are doing. I'm also glad you are one of the ones who, after getting health back, feel obliged and led to carry the torch to others who may not hear about it. Here's to you, Ute! bg > Dear friends, > I'd like to share some good news I received recently. Since I am doing so > well on the AP I mention it frequently to people I come in contact with. I > also let it be known that anyone can give my phone number to arthritis > sufferers who are interested in AP. About a year, or so ago a lady called > me on behalf of her elderly friend who had long standing, severe RA and > nothing worked for her anymore. We talked quite a while on the phone and I > shared what I have learned here on this list and from my own experience. I > also referred them to rheumatic.org for further information. A short while > ago the same lady called me back to let me know that her friend did give AP > a try and responded very well to it. After one year on AP she is > practically pain free. She called to thank me. I felt so happy to get this > feedback. I am so grateful for this treatment and I was so glad to have > been able to help someone. I am so grateful for this list and all you > wonderful people who have helped me over the years. Thank you Ethel and > for hosting this forum so many more people can find relief from their > suffering. > Take care, > Ute Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2003 Report Share Posted December 1, 2003 The best thing anyone can do who suffers from these diseases is pass along the good things that they have found. It is so great that your willingness to share your experience has helped this lady after years of pain. Way to go!!! Keep up the good work. After all none of us would be where we are today if someone else hadn't taken the time to tell us about this treatment. Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2003 Report Share Posted December 1, 2003 Hi Ute, Thats the best news you could ever want.Keep sharing the news! Its what we all need to do..conversion one by one. Love Marge -- In rheumatic , Ute Reeves <nowyoga@e...> wrote: > Dear friends, > I'd like to share some good news I received recently. Since I am doing so > well on the AP I mention it frequently to people I come in contact with. I > also let it be known that anyone can give my phone number to arthritis > sufferers who are interested in AP. About a year, or so ago a lady called > me on behalf of her elderly friend who had long standing, severe RA and > nothing worked for her anymore. We talked quite a while on the phone and I > shared what I have learned here on this list and from my own experience. I > also referred them to rheumatic.org for further information. A short while > ago the same lady called me back to let me know that her friend did give AP > a try and responded very well to it. After one year on AP she is > practically pain free. She called to thank me. I felt so happy to get this > feedback. I am so grateful for this treatment and I was so glad to have > been able to help someone. I am so grateful for this list and all you > wonderful people who have helped me over the years. Thank you Ethel and > for hosting this forum so many more people can find relief from their > suffering. > Take care, > Ute Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2004 Report Share Posted January 6, 2004 Kathy in CA. Great news. I'm so happy for you. I just finished the last round of test for transplant eval yesterday. Marathon day at the hospital. I will go back on Tuesday the 13th for review and meet with the whole transplant team to find out if I passed or failed. I'm being worked up for live donor surgery. Probably 1-2 years away he said at last visit. I have not responded as well as some and it is so nice to hear of those who have good results. I'm so happy and excited for you. Keep up the good work. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2004 Report Share Posted January 6, 2004 I am glad to hear the good news. Sorry about the blood pressure though. I have not had a problem with high blood pressure because they put me on HCZT prior to my diagnosis because I was retaining so much fluid and never too me off of it. That would keep the blood pressure down. I would believe anything about the meds but we have to take them, it beats the alternative. Hope everything continues to go well for you and they get the b/p down. Quote Link to comment Share on other sites More sharing options...
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