disability

[Guest guest]

Dixie

If you are SSDI you do get a 9 month trial period. I am on SSDI also and

have tried to work-I only have 3 months left on my trial period though. My

doctors think I'm obsessed with going back to work! I hate being off work.

[Guest guest]

Geri

I know what you mean yearning to go back to work. I used to be a

planner/estimator for Colwell General and I use to estimate for both our

Indiana plant and our California plant and occassionally assist with projects

being done down in Mexico. I have a 14 year background in printing so I

would also get to do some traveling to do press checks in MI and Chicago and

that was always fun-pick up a Blackhawks hockey game and make my son the

goalie jealous. I know a lot of people are trying to get on disability. In

my case, you know my history, it was a piece a cake for me-just apply and you

got it. They even took me back 6 months. The company I work for was great

but I just couldn't do it anymore. I was on and off work for over a year and

then my doctor told me to apply and I just cried. But at work I could not

remember the equations or I would be lost right in the middle of one! I

could no longer comprehend verbal instructions for a re-estimate-I would just

stand there and cry. Of course I was also under a lot of stress too-my now

ex husband had gotten a friend of both of our pregnant and I was filing for a

divorce! That was when I first discovered I had elevated liver enzymes-at

that time I did not know of the liver disease. BUt now of course like you my

biopsy said cirrhosis. It's amazing how much we deal with with this disease

and how it plays havoc with our mind.

Susie

[Guest guest]

Geri:

They gave me pain pills last week in the ER but the last two nights I took

two and it didn't help.

Last night answering my e-mails I was in such pain. Going in for blood tests

today so I going to ask about something or have them do something for me.

Thrush is talked about alot. Can someone tell me about it?

Sue AIH

Wisconsin

[Guest guest]

Geri:

I know about working, I have been in the rat race since I was 16 years old

and I just don't know how to handle the change of not getting the 40 hour

paycheck yet and I feel like an useless price of dog poop.

Will be picking up things about SSI and etc just to get ahead of the game.

I think if I didn't working, the house would be clean and the family could

sit down and eat together We do that so seldom now a days.

Sue AIH

Wisconsin

[Guest guest]

Geri:

Thanks for the information. I hope to hear about the insurance soon. I hope

they pay me back to when the short term insurance stop. We will wait and see.

Sue AIH

Wisconsin

[Guest guest]

I clinch my teeth and sometimes in the morning I have big lumps on the inside

of my checks where I have bit myself during the night,

Sue AIH

Wisconsin

[Guest guest]

I am on SSI disability due to other health problems, so I am not one that is

currently working.

New Jersey

>From: Roselle50@...

>Reply- onelist

> onelist

>Subject: Re: [ ] disability

>Date: Fri, 9 Jul 1999 00:01:25 EDT

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>From: Roselle50@...

>

>Don:

>

>Thanks for the answer. I was told today that I probably would know in a

>couple of days if I can have long term disability. I also was told that I

>probably will be on long term disability full time. This is what the boss

>I

>have said but he won't be my boss much longer. He was replaced and he has

>no

>idea what he will be doing.

>

>Question: HOW MANY OF OUR GROUP WORK?

>

>Sue AIH

>Wisconsin

>

>---------------------------

[Guest guest]

:

Thanks for the answer. I only work four hours a day and some days it is

really hard for me. I have a claim in for long term disability but when I

called today they said they are still working on the medical part of it.

They told me to call next week. Also I have only get a small paycheck and I

not happy with that.

I just wonder how long it will be before I will not be able to work at all.

My sister and I were talking the other night, she has the autoimmune

attacking her large intestines and I said I always wanted to be a stay at

home Mom when was little and now I probably will be a sick stay at home

or a dead stay at home Mom.

Sue AIH

Wisconsin

[Guest guest]

:

Thanks for the answer. I only work four hours a day and some days it is

really hard for me. I have a claim in for long term disability but when I

called today they said they are still working on the medical part of it.

They told me to call next week. Also I have only get a small paycheck and I

not happy with that.

I just wonder how long it will be before I will not be able to work at all.

My sister and I were talking the other night, she has the autoimmune

attacking her large intestines and I said I always wanted to be a stay at

home Mom when was little and now I probably will be a sick stay at home

or a dead stay at home Mom.

Sue AIH

Wisconsin

[Guest guest]

Sue,

Keep your chin up.

SueB.

----------

> From: Roselle50@...

> onelist

> Subject: Re: [ ] disability

> Date: Thursday, 15 July 1999 14:39

>

> From: Roselle50@...

>

> :

>

> Thanks for the answer. I only work four hours a day and some days it is

> really hard for me. I have a claim in for long term disability but when

I

> called today they said they are still working on the medical part of it.

> They told me to call next week. Also I have only get a small paycheck

and I

> not happy with that.

>

> I just wonder how long it will be before I will not be able to work at

all.

> My sister and I were talking the other night, she has the autoimmune

> attacking her large intestines and I said I always wanted to be a stay at

> home Mom when was little and now I probably will be a sick stay at

home

> or a dead stay at home Mom.

>

> Sue AIH

> Wisconsin

>

> ---------------------------

[Guest guest]

Actually you need to appeal first, 88% of those who appeal usually get on

SSI. Those are SSI statistics.

Karin

Disability

>From: btokar@...

>

>If you are turned down reapply immediately. You have 60 days to reapply.

>

>

>---------------------------

[Guest guest]

Thank you, Carol. We need to do this and next week he has an appt. Irish

[Guest guest]

Sounds like the answer is yes. Is it just as hard as it is for example with

people with the CFS diagnosis?

Anyone know if people with things like MS, AIDS, etc. also have a hard to

getting it or not? Just curious.

Christy

In a message dated 6/4/00 2:48:32 PM Pacific Daylight Time,

CHarr15375@... writes:

<< Subj: Re: [ ] disability

Date: 6/4/00 2:48:32 PM Pacific Daylight Time

From: CHarr15375@... ( on)

Reply-to: lyme-aidegroups

lyme-aidegroups

as hard as it is to get a great doc be prepared for the disability walk

with lymes been over a year for me hire a lawyer let them do the work

cindy in mich [ ] disability

> Hi. I am wondering if it is hard for lyme patients to get disability.

>

> Thanks,

>

> Christy >>

[Guest guest]

i bet if you have 'fibromyalgia' or chronic fatugue lables you can get

disablitiy...

In a message dated 6/4/00 2:48:32 PM, CHarr15375@... writes:

<<as hard as it is to get a great doc be prepared for the disability walk

with lymes been over a year for me hire a lawyer let them do the work

cindy in mich >>

[Guest guest]

In a message dated 6/7/00 6:23:21 PM Central Daylight Time, InfoNymfo@...

writes:

<< i bet if you have 'fibromyalgia' or chronic fatugue lables you can get

disablitiy... >>

it's no different than Lyme Disease I believe. I think you would have a

better chance with Lyme Disease in the Northeast where it is seen more often

than here in Texas. My SS attorney decided to go the CFIDS route as he

didn't feel that the SS here would know anything about Lyme. And he was

right.

[Guest guest]

<<<<

<< i bet if you have 'fibromyalgia' or chronic fatugue lables you can get

disablitiy... >>

it's no different than Lyme Disease I believe. I think you would have a

better chance with Lyme Disease in the Northeast where it is seen more

often than here in Texas. My SS attorney decided to go the CFIDS route as

he didn't feel that the SS here would know anything about Lyme. And he

was right. >>>>

Unfortunately, the attitude up here in the north is basically that lyme is

simple, cause really its so common, and the vast majority are easily

treated (believe it or not). For my interview the SS person said " Lyme

disease, that's IT?? That's what you want SS for??? " SO, I threw out the

other 500 diagnoses I received. They insist that the diagnosis is not

what matters, that they only look at the level of how it affect the

individual. But, I wont go on rambling about what a load of crap that is

in my experience.

So anyway, can't win either way, whether they " know " about it or not.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

I'm not crazy, I'm burgdorferied!

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

[Guest guest]

cheryl......i receive ssd due to a lyme dx.....the key is like everything

else to educate them about our disease.....the lawyer that finally oked me

from ss( prior to a hearing due to a new process and alot of pressure put on

them by my congressman commented to my lawyer how much she learned about lyme

while reviewing my records.......everything and anything i could find i lyme

i sent them......it made a differance....we are close to being put on

their " offical illness list " ...the more we educate them the better off we will

be....i feel that going for ssd using a differant illness when u suffer from

lyme is a diservice to the lyme community.....just my thoughts......we must

and our finally showing people this is a real disease......

Reid

[Guest guest]

once is nothing roe......expect to have to go to the third step....its not

just lyme but most ssd cases......90% denied on first consideration....80%

denied on reconsideration......80 approved on 3rd step......plus it is not a

local thing but national criteris...like i said the more paper work and

documentation u provide the better u r...also get ur congresmmans office

inolved...ss hates anyone looking over their shoulder....my file was over

1200 pages i know cause they lost it and we had to copy everything ( my

lawyer was a little pissed)....much of it lyme info submitted by me....also

expect to be sent to ur state labor board for an interview....what a

joke....the girl said maybe on my good days i could be a home based

telemarketer...

some days i don't know my name like i could sell u something....rite.....my

shrink and ss's said no way i do not have the capacity to do that .....keep

fighting,,,,like the dead said " what a long strange trip its been "

Reid

[Guest guest]

Roe,

if you have another disability, ssa will accept it first. I applied for

benefits cuz of lyme disease and the idiots accepted me cuz of deafness which

wasn't an issue at all. I kept my mouth shut. Moral: you have better chances

of being accepted if you have other disabilities.. Stupid SSA people

elizabeth

[Guest guest]

-

>

> he

> didn't feel that the SS here would know anything about Lyme. And he

> was

> right

SS doesnt know anything about lyme in NY State either! Denied once so

far in NY

roe

>

__________________________________________________

[Guest guest]

roe....

guess alot of us " old hippies " have lyme...and the word of those songs meen

differant things to us know......in my younger days i paid alot of money for

a foggy feeling ....now i get it for nothing.....besides music life has a

differant meaning for me know...before i became disabled i " chased my tail

alot... " working 7 days a week to make the allmighty $$$$$ which i thought

would make me happy.....what a fool.....it took this illness for me to find

the real meaning of life......good friends.....family.....the small things

that mean something....living with lyme and without any $$$ for a few years

made me realize many things......i still would love to have more $$$$ but i

know am getting ssd and a pension....plus my wife got a job with

benifits...which is nice....we survive.....god gives us what we need not what

we want....by not being able to work i am able to do things i really

enjoy....activities with my kids being involved in their school and sports

programs.....and doing charitie work for a group that raises money for

chuil;drens charities....while many times i have to force myself to do this

stuff i get real satisfaction from it.....not $$$$$ but personal good

feelings...that are priceless.....plus lyme activism controlling my own

destiny and trying to change things......so lyme is a dual edge sword it has

robbed me of many things .....but i have chosen to make the best of

it.....and continue on.....tho many daysn it is the hardest thing i have ever

had to do.......peace and love to all

Reid

[Guest guest]

Roe,

I agree.. I won't want to be accepted for mental illness when it is caused by

lyme disease, especially when it will interfere with the long term disability

insurance!! just that the SSA people are idiots. good luck and you will win

the case,, just keep fighting.

elizabeth

In a message dated 6/15/00 5:46:24 PM Eastern Daylight Time,

roe0325@... writes:

<<

Thanks , but lyme is it. I can go for mental illness i guess,

but that would cut in half my long term disab. payments. By the way, i

just got a call from them today. they are sending me to a phycologist.

Guess its because of the memory problems.

>>

[Guest guest]

--- shasus@... wrote:

> Roe,

>

>

> deafness which

> wasn't an issue at all. I kept my mouth shut. Moral: you have better

> chances

> of being accepted if you have other disabilities.. Stupid SSA people

>

> elizabeth

>

__________________________________________________

[Guest guest]

,,,,like the dead said " what a long strange trip its been "

Reid

Reid, that song is the opening paragraph on my web page. Sometimes the

lights all shining on me, other times i can barely see, lately it

occurs to me, What a long strange trip its been. cant help but wonder

if Jerry garcia had lyme. I also feel like i've gone to the " dark side

of the moon " and have " brain damage " (theres someone in my head but its

not me). Well now you know, i am a middle aged hippie!

roe

__________________________________________________

[Guest guest]

f you have another disability, ssa will accept it first. I applied for

benefits cuz of lyme disease and the idiots accepted me cuz of deafness

Thanks , but lyme is it. I can go for mental illness i guess,

but that would cut in half my long term disab. payments. By the way, i

just got a call from them today. they are sending me to a phycologist.

Guess its because of the memory problems.

roe

__________________________________________________