RE: Starting on supplements - Need advice.

[Guest guest]

Hi ,

We are using biomedical interventions with our son. I can't claim that I

understand them all, but there is a website that you can join and get a lot

of information from parents who are using biomed interventions. To join,

your son has to be under the care of a DAN doctor, which he is. it is

chelatingkids2/

Also,

you might want to get a copy of Dr. MCandless book " children with starving

brains "

" 2nd edition " / She also has website and a group.

http://www.autism-rxguidebook.com/forums/

As far as the supplements, you should start with thing at a time with a

fraction of the dosage and slowly increase to full dosage.

You might want to ask Dr. Rao the order of supplements to start, but

remember one thing the doctors themselves are learning themselves as well.

Educate yourself as much as you can.

Good luck,

Starting on supplements - Need advice.

> After getting all of our test results back from the Great

> Plains

> Lab., we visited with Dr. Rao in Carrollton, this morning.

> Towards the end of our session, when we were discussing the

> plan

> of action, he started to get a bit rushed, and didn't spend

> enough time explaining why we were doing what we were doing.

>

> Test results showed that our son has a high copper-to-zinc

> ratio, though his zinc serum levels aren't especially low. One

> of the supplements we got was Zinc (1 - 20 mg capsule daily),

> which was supposed to help bring down the copper levels, as I

> understood him to say. Not sure about the logic of this, but

> given that Zinc is a good anti-oxidant, and we're talking about

> a rather low dose, I don't see any harm in this approach

> either.

>

> The Organic Acid Profile showed high aconitic & citric acid

> levels, as well as low pyroglutmic levels. This indicates a

> glutathione deficiency. Aribinose was also high, which is

> typically the result of too much yeast in the bowel. Since

> glutathione can also disrupt the conversion of sugars into

> aribinose, and aribinose is associated w/ a slew of negative

> effects on the body & brain, I can definitely see good cause

> for

> glutathione supplements. The strange thing is that yeast was

> rare in both stool tests, while Beneficial flora were in good

> supply. However, Lysozyme was also abnormally high. Dr. Rao

> explained that Lysozyme fights infections in the bowel, so high

> lysozyme indicates that there is something wrong in the bowel.

>

> Food IgA tests showed that our son had high antigen levels for

> just about everything under the sun, including some things he's

> never eaten (Clam, for example was off the charts). Dr. Rao

> said these results were extremely abnormal even compared to

> other Autistic children he's seen. For those of you who don't

> know, Dr. Rao is an Allergy & Immunology specialist. He

> suspects that these abnormal results are due to " leaky gut " ,

> and

> his scientific explanation of this made sense.

>

> Hair sample tests turned up exceptionally high levels of lead.

> Dr. Rao is having us send in samples from our son's 1 yr hair

> cut (which my wife kept for sentimental reasons), to test, so

> that we can compare the results with the results of the recent

> sample.

>

> Back to the plan of action. He said the 1st thing we needed to

> do was fix the yeast over-growth in the bowel, while starting

> on

> a mild chelation trial.

>

> He gave us two creams to rub into our son's feet, for the

> chelation trial: Glutathione-P, & Allithiamine-P . We're to

> apply one to each foot, then cover the feet w/ a sock. The 1st

> week, we're to do this before bedtime. The next week, we're to

> apply the creams before bed, and again before sending our son

> off to school. In the mean time, we're to give him Selenium (1

> - 100 mcg capsule, daily) and Taurine (1 - 1000 mg capsule,

> twice a day) mineral supplements. At the end of the 2 weeks,

> we're to collect a 24 hour urine sample, and send it in for

> testing.

>

> We were told that for the yeast over-growth, we would use 1

> probiotic supplement, and Nystatin. However, we didn't get a

> Nystatin prescription, and weren't given a probiotic supplement

> (my wife is out buying one from the drug store now, since our

> son is currently taking an antibiotic).

>

> What we were given was N-Acetyl Cysteine (1 - 600 mg capsule,

> twice a day), which is a glutathione precursor, and

> Acetyl-L-Carnitine (1 - 500 mg capsule, daily), which is

> supposed to enhance mental quickness.

>

> I'm not really certain why we're supposed to give our son the

> Selenium, and Taurine. Furthermore, if we see positive

> results,

> how will we know which supplement is doing the trick if we

> start

> them all at once? Worse yet, if he has a negative reaction,

> how

> will we know which supplement caused it? we want our son to

> get

> better as quickly as possible, since he has a lot of catching

> up

> to do, once he is bio-chemically " normalized " . However, we

> don't want to keep shelling out for supplements that aren't

> doing him any good. So, we want to know which one's are

> working

> and which aren't.

>

> I intend to call Dr. Rao's office about these questions

> tomorrow, but I also wanted to get the advice of some of you in

> the group who have more experience with this sort of thing.

>

> I appreciate any help or advice you can offer. Thank you for

> your time.

>

> Blessed be,

> :-)

>

>

> ________________________________________________

> Get your own " 800 " number

> Voicemail, fax, email, and a lot more

> http://www.ureach.com/reg/tag

>

>

>

> Unlocking Autism

> www.UnlockingAutism.org

>

> Autism-Awareness-Action

> Worldwide internet group for parents who have a

> child with AUTISM.

>

> SeekingJoyinDisability - Prayer support for those touched by Disability:

> SeekingJoyinDisability/

>

>

>

[Guest guest]

Is Dr. Rao a DAN! doctor ? I didn't know that!

Re: Starting on supplements - Need

advice.

Hi ,

We are using biomedical interventions with our son. I can't claim that

I understand them all, but there is a website that you can join and get

a lot of information from parents who are using biomed interventions.

To join, your son has to be under the care of a DAN doctor, which he is.

it is chelatingkids2/

Also,

you might want to get a copy of Dr. MCandless book " children with

starving brains " " 2nd edition " / She also has website and a

group. http://www.autism-rxguidebook.com/forums/

As far as the supplements, you should start with thing at a time with a

fraction of the dosage and slowly increase to full dosage. You might

want to ask Dr. Rao the order of supplements to start, but remember one

thing the doctors themselves are learning themselves as well. Educate

yourself as much as you can.

Good luck,

Starting on supplements - Need advice.

> After getting all of our test results back from the Great Plains

> Lab., we visited with Dr. Rao in Carrollton, this morning.

> Towards the end of our session, when we were discussing the

> plan

> of action, he started to get a bit rushed, and didn't spend

> enough time explaining why we were doing what we were doing.

>

> Test results showed that our son has a high copper-to-zinc ratio,

> though his zinc serum levels aren't especially low. One of the

> supplements we got was Zinc (1 - 20 mg capsule daily), which was

> supposed to help bring down the copper levels, as I understood him to

> say. Not sure about the logic of this, but given that Zinc is a good

> anti-oxidant, and we're talking about a rather low dose, I don't see

> any harm in this approach either.

>

> The Organic Acid Profile showed high aconitic & citric acid levels, as

> well as low pyroglutmic levels. This indicates a glutathione

> deficiency. Aribinose was also high, which is typically the result of

> too much yeast in the bowel. Since glutathione can also disrupt the

> conversion of sugars into aribinose, and aribinose is associated w/ a

> slew of negative effects on the body & brain, I can definitely see

> good cause for

> glutathione supplements. The strange thing is that yeast was

> rare in both stool tests, while Beneficial flora were in good

> supply. However, Lysozyme was also abnormally high. Dr. Rao

> explained that Lysozyme fights infections in the bowel, so high

> lysozyme indicates that there is something wrong in the bowel.

>

> Food IgA tests showed that our son had high antigen levels for just

> about everything under the sun, including some things he's never eaten

> (Clam, for example was off the charts). Dr. Rao said these results

> were extremely abnormal even compared to other Autistic children he's

> seen. For those of you who don't know, Dr. Rao is an Allergy &

> Immunology specialist. He suspects that these abnormal results are

> due to " leaky gut " , and

> his scientific explanation of this made sense.

>

> Hair sample tests turned up exceptionally high levels of lead. Dr. Rao

> is having us send in samples from our son's 1 yr hair cut (which my

> wife kept for sentimental reasons), to test, so that we can compare

> the results with the results of the recent sample.

>

> Back to the plan of action. He said the 1st thing we needed to do was

> fix the yeast over-growth in the bowel, while starting on

> a mild chelation trial.

>

> He gave us two creams to rub into our son's feet, for the chelation

> trial: Glutathione-P, & Allithiamine-P . We're to apply one to each

> foot, then cover the feet w/ a sock. The 1st week, we're to do this

> before bedtime. The next week, we're to apply the creams before bed,

> and again before sending our son off to school. In the mean time,

> we're to give him Selenium (1

> - 100 mcg capsule, daily) and Taurine (1 - 1000 mg capsule, twice a

> day) mineral supplements. At the end of the 2 weeks, we're to collect

> a 24 hour urine sample, and send it in for testing.

>

> We were told that for the yeast over-growth, we would use 1 probiotic

> supplement, and Nystatin. However, we didn't get a Nystatin

> prescription, and weren't given a probiotic supplement (my wife is out

> buying one from the drug store now, since our son is currently taking

> an antibiotic).

>

> What we were given was N-Acetyl Cysteine (1 - 600 mg capsule, twice a

> day), which is a glutathione precursor, and Acetyl-L-Carnitine (1 -

> 500 mg capsule, daily), which is supposed to enhance mental quickness.

>

> I'm not really certain why we're supposed to give our son the

> Selenium, and Taurine. Furthermore, if we see positive results,

> how will we know which supplement is doing the trick if we

> start

> them all at once? Worse yet, if he has a negative reaction,

> how

> will we know which supplement caused it? we want our son to

> get

> better as quickly as possible, since he has a lot of catching

> up

> to do, once he is bio-chemically " normalized " . However, we

> don't want to keep shelling out for supplements that aren't

> doing him any good. So, we want to know which one's are

> working

> and which aren't.

>

> I intend to call Dr. Rao's office about these questions tomorrow, but

> I also wanted to get the advice of some of you in the group who have

> more experience with this sort of thing.

>

> I appreciate any help or advice you can offer. Thank you for your

> time.

>

> Blessed be,

> :-)

>

>

> ________________________________________________

> Get your own " 800 " number

> Voicemail, fax, email, and a lot more http://www.ureach.com/reg/tag

>

>

>

> Unlocking Autism

> www.UnlockingAutism.org

>

> Autism-Awareness-Action

> Worldwide internet group for parents who have a

> child with AUTISM.

>

> SeekingJoyinDisability - Prayer support for those touched by

Disability:

> SeekingJoyinDisability/

>

>

>

[Guest guest]

I am not sure whether he is or not, but he uses the DAN protocol or at least

biomedical interventions.

Starting on supplements - Need advice.

>

>

> > After getting all of our test results back from the Great Plains

> > Lab., we visited with Dr. Rao in Carrollton, this morning.

> > Towards the end of our session, when we were discussing the

> > plan

> > of action, he started to get a bit rushed, and didn't spend

> > enough time explaining why we were doing what we were doing.

> >

> > Test results showed that our son has a high copper-to-zinc ratio,

> > though his zinc serum levels aren't especially low. One of the

> > supplements we got was Zinc (1 - 20 mg capsule daily), which was

> > supposed to help bring down the copper levels, as I understood him to

> > say. Not sure about the logic of this, but given that Zinc is a good

> > anti-oxidant, and we're talking about a rather low dose, I don't see

> > any harm in this approach either.

> >

> > The Organic Acid Profile showed high aconitic & citric acid levels, as

>

> > well as low pyroglutmic levels. This indicates a glutathione

> > deficiency. Aribinose was also high, which is typically the result of

>

> > too much yeast in the bowel. Since glutathione can also disrupt the

> > conversion of sugars into aribinose, and aribinose is associated w/ a

> > slew of negative effects on the body & brain, I can definitely see

> > good cause for

> > glutathione supplements. The strange thing is that yeast was

> > rare in both stool tests, while Beneficial flora were in good

> > supply. However, Lysozyme was also abnormally high. Dr. Rao

> > explained that Lysozyme fights infections in the bowel, so high

> > lysozyme indicates that there is something wrong in the bowel.

> >

> > Food IgA tests showed that our son had high antigen levels for just

> > about everything under the sun, including some things he's never eaten

>

> > (Clam, for example was off the charts). Dr. Rao said these results

> > were extremely abnormal even compared to other Autistic children he's

> > seen. For those of you who don't know, Dr. Rao is an Allergy &

> > Immunology specialist. He suspects that these abnormal results are

> > due to " leaky gut " , and

> > his scientific explanation of this made sense.

> >

> > Hair sample tests turned up exceptionally high levels of lead. Dr. Rao

>

> > is having us send in samples from our son's 1 yr hair cut (which my

> > wife kept for sentimental reasons), to test, so that we can compare

> > the results with the results of the recent sample.

> >

> > Back to the plan of action. He said the 1st thing we needed to do was

>

> > fix the yeast over-growth in the bowel, while starting on

> > a mild chelation trial.

> >

> > He gave us two creams to rub into our son's feet, for the chelation

> > trial: Glutathione-P, & Allithiamine-P . We're to apply one to each

> > foot, then cover the feet w/ a sock. The 1st week, we're to do this

> > before bedtime. The next week, we're to apply the creams before bed,

> > and again before sending our son off to school. In the mean time,

> > we're to give him Selenium (1

> > - 100 mcg capsule, daily) and Taurine (1 - 1000 mg capsule, twice a

> > day) mineral supplements. At the end of the 2 weeks, we're to collect

>

> > a 24 hour urine sample, and send it in for testing.

> >

> > We were told that for the yeast over-growth, we would use 1 probiotic

> > supplement, and Nystatin. However, we didn't get a Nystatin

> > prescription, and weren't given a probiotic supplement (my wife is out

>

> > buying one from the drug store now, since our son is currently taking

> > an antibiotic).

> >

> > What we were given was N-Acetyl Cysteine (1 - 600 mg capsule, twice a

> > day), which is a glutathione precursor, and Acetyl-L-Carnitine (1 -

> > 500 mg capsule, daily), which is supposed to enhance mental quickness.

> >

> > I'm not really certain why we're supposed to give our son the

> > Selenium, and Taurine. Furthermore, if we see positive results,

> > how will we know which supplement is doing the trick if we

> > start

> > them all at once? Worse yet, if he has a negative reaction,

> > how

> > will we know which supplement caused it? we want our son to

> > get

> > better as quickly as possible, since he has a lot of catching

> > up

> > to do, once he is bio-chemically " normalized " . However, we

> > don't want to keep shelling out for supplements that aren't

> > doing him any good. So, we want to know which one's are

> > working

> > and which aren't.

> >

> > I intend to call Dr. Rao's office about these questions tomorrow, but

> > I also wanted to get the advice of some of you in the group who have

> > more experience with this sort of thing.

> >

> > I appreciate any help or advice you can offer. Thank you for your

> > time.

> >

> > Blessed be,

> > :-)

> >

> >

> > ________________________________________________

> > Get your own " 800 " number

> > Voicemail, fax, email, and a lot more http://www.ureach.com/reg/tag

> >

> >

> >

> > Unlocking Autism

> > www.UnlockingAutism.org

> >

> > Autism-Awareness-Action

> > Worldwide internet group for parents who have a

> > child with AUTISM.

> >

> > SeekingJoyinDisability - Prayer support for those touched by

> Disability:

> > SeekingJoyinDisability/

> >

> >

> >

[Guest guest]

My son sees Dr. Rao also. After his first visit we started 4 things

and had positive results. After the second visit we started a ton more

stuff and my son vomitted for 4 days. He also has reflux for which he

takes Prilosec so sometimes the continuation of vomiting can be related

to the reflux. We stopped everything new and started back slowly, one

at a time, as per Dr. Rao's advice. It has taken a month to get

everything started and we still have one thing left to include.

We are taking many of the same things you have mentioned.

Beth

Starting on supplements - Need

advice.

> After getting all of our test results back from the Great Plains

> Lab., we visited with Dr. Rao in Carrollton, this morning.

> Towards the end of our session, when we were discussing the

> plan

> of action, he started to get a bit rushed, and didn't spend

> enough time explaining why we were doing what we were doing.

>

> Test results showed that our son has a high copper-to-zinc ratio,

> though his zinc serum levels aren't especially low. One of the

> supplements we got was Zinc (1 - 20 mg capsule daily), which was

> supposed to help bring down the copper levels, as I understood him to

> say. Not sure about the logic of this, but given that Zinc is a good

> anti-oxidant, and we're talking about a rather low dose, I don't see

> any harm in this approach either.

>

> The Organic Acid Profile showed high aconitic & citric acid levels,

as

> well as low pyroglutmic levels. This indicates a glutathione

> deficiency. Aribinose was also high, which is typically the result

of

> too much yeast in the bowel. Since glutathione can also disrupt the

> conversion of sugars into aribinose, and aribinose is associated w/ a

> slew of negative effects on the body & brain, I can definitely see

> good cause for

> glutathione supplements. The strange thing is that yeast was

> rare in both stool tests, while Beneficial flora were in good

> supply. However, Lysozyme was also abnormally high. Dr. Rao

> explained that Lysozyme fights infections in the bowel, so high

> lysozyme indicates that there is something wrong in the bowel.

>

> Food IgA tests showed that our son had high antigen levels for just

> about everything under the sun, including some things he's never

eaten

> (Clam, for example was off the charts). Dr. Rao said these results

> were extremely abnormal even compared to other Autistic children he's

> seen. For those of you who don't know, Dr. Rao is an Allergy &

> Immunology specialist. He suspects that these abnormal results are

> due to " leaky gut " , and

> his scientific explanation of this made sense.

>

> Hair sample tests turned up exceptionally high levels of lead. Dr.

Rao

> is having us send in samples from our son's 1 yr hair cut (which my

> wife kept for sentimental reasons), to test, so that we can compare

> the results with the results of the recent sample.

>

> Back to the plan of action. He said the 1st thing we needed to do

was

> fix the yeast over-growth in the bowel, while starting on

> a mild chelation trial.

>

> He gave us two creams to rub into our son's feet, for the chelation

> trial: Glutathione-P, & Allithiamine-P . We're to apply one to each

> foot, then cover the feet w/ a sock. The 1st week, we're to do this

> before bedtime. The next week, we're to apply the creams before bed,

> and again before sending our son off to school. In the mean time,

> we're to give him Selenium (1

> - 100 mcg capsule, daily) and Taurine (1 - 1000 mg capsule, twice a

> day) mineral supplements. At the end of the 2 weeks, we're to

collect

> a 24 hour urine sample, and send it in for testing.

>

> We were told that for the yeast over-growth, we would use 1 probiotic

> supplement, and Nystatin. However, we didn't get a Nystatin

> prescription, and weren't given a probiotic supplement (my wife is

out

> buying one from the drug store now, since our son is currently taking

> an antibiotic).

>

> What we were given was N-Acetyl Cysteine (1 - 600 mg capsule, twice a

> day), which is a glutathione precursor, and Acetyl-L-Carnitine (1 -

> 500 mg capsule, daily), which is supposed to enhance mental

quickness.

>

> I'm not really certain why we're supposed to give our son the

> Selenium, and Taurine. Furthermore, if we see positive results,

> how will we know which supplement is doing the trick if we

> start

> them all at once? Worse yet, if he has a negative reaction,

> how

> will we know which supplement caused it? we want our son to

> get

> better as quickly as possible, since he has a lot of catching

> up

> to do, once he is bio-chemically " normalized " . However, we

> don't want to keep shelling out for supplements that aren't

> doing him any good. So, we want to know which one's are

> working

> and which aren't.

>

> I intend to call Dr. Rao's office about these questions tomorrow, but

> I also wanted to get the advice of some of you in the group who have

> more experience with this sort of thing.

>

> I appreciate any help or advice you can offer. Thank you for your

> time.

>

> Blessed be,

> :-)

>

>

> ________________________________________________

> Get your own " 800 " number

> Voicemail, fax, email, and a lot more http://www.ureach.com/reg/tag

>

>

>

> Unlocking Autism

> www.UnlockingAutism.org

>

> Autism-Awareness-Action

> Worldwide internet group for parents who have a

> child with AUTISM.

>

> SeekingJoyinDisability - Prayer support for those touched by

Disability:

> SeekingJoyinDisability/

>

>

>