Guest guest Posted May 15, 2008 Report Share Posted May 15, 2008 Just a p.s. to my own post about this to clarify one thing. I'm not saying to exhaust yourself is the solution. I've been very EXHAUSTED and not been able to even sleep. Many people said 'if your tired enough, you'll sleep'...wasn't so, but specifically just saying try to exercise to point of fatigue your UPPER BODY, to include upper back muscles. Pretend you are throwing a 'punch' and notice that would strongly involved your upper back muscles also. You want to exercise all those muscles because stress and tension settle in there, including your neck also. Swimming is great to relax if you are fortunate to have time and access to a pool. Shooting some hoops is another. Other ball games, even maybe golf?? > > Hi everyone, > Recently some of you have talked about anti anxiety meds and not Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 15, 2008 Report Share Posted May 15, 2008 I can't tolerate the outdoors either Sue. A couple weeks ago I decided to pull a few weeds with gloves on but still got a rash on an ear and side of face. Only out about 15 minutes. I am so allergic to everything. > I was outside last week trimming bushes (wearing a mask) made > me feel good but I paid the next few days with some sore muscles. Raking > leaves, even with a mask, is out for me now. Too much dust and mold spores. > > Sue > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2008 Report Share Posted May 17, 2008 a, you didn't see the mold until it rained one day? > > I wwent throught the same. the house was fine until it rained, we found 26 colonys in a closet. the week before christmas, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2008 Report Share Posted May 17, 2008 you lost in war or accident or mold exposure? > > a, how interesting you mention that. I found out I have lost 1/4 of the left frontal lobe and deal with all you mentioned. I am reminded of a phrase " mood swinging like a wrecking ball, I have a panic attack and it always goes dark before it goes black " That is if I remember it correctly. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2008 Report Share Posted May 21, 2008 I noticed on looking up this topic in list archives, that there have been 96 posts with this in subject line, not counting times it may have been mentioned in body of post, so apparently a very shared symptom from mold itself and/or the stress caused by suffering from something you can't get help from. Anyway, with discussion of meds for anxiety, thought I would post this link to interesting program that was on PBS over the weekend on the lack of science now behind pharmaceutical drugs, written by former New York Times journalist whose job it was to cover the pharmacy industry, then became interested in it off the job and has now written a book on the pharmaceutical industry, called " Our Daily Meds " : http://www.pbs.org/moyers/journal/05162008/profile.html --- In , ssr3351@... wrote: > > Hi everyone, > Recently some of you have talked about anti anxiety meds and not being Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2008 Report Share Posted May 21, 2008 interesting. I thought it was interesting too that the AAAAI article I posted on anaphylaxis also mentions anxiety as a symptom. isn't that weird. In , " barb1283 " <barb1283@...> wrote: > > I noticed on looking up this topic in list archives, that there have > been 96 posts with this in subject line, not counting times it may have > been mentioned in body of post, so apparently a very shared symptom > from mold itself and/or the stress caused by suffering from something > you can't get help from. > > Anyway, with discussion of meds for anxiety, thought I would post this > link to interesting program that was on PBS over the weekend on the > lack of science now behind pharmaceutical drugs, written by former New > York Times journalist whose job it was to cover the pharmacy industry, > then became interested in it off the job and has now written a book on > the pharmaceutical industry, called " Our Daily Meds " : > > http://www.pbs.org/moyers/journal/05162008/profile.html > > --- In , ssr3351@ wrote: > > > > Hi everyone, > > Recently some of you have talked about anti anxiety meds and not > being > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2008 Report Share Posted May 21, 2008 I believe that the stress comes from getting so sick from from an exposure that caused great trauma. Like I said I didn't have the stress right away I was too sick and it took me a yr. to begin feeling better. All I did was sleep and then felt like I was coming out of a coma. When I finally realized how sick I was and what caused it I began to relive it and worry about every place I went. It really is like PTSD. I now know exactly how people feel that return from war or have suffered a horrible experience in their lives. The nightmare just doesn't go away. We live it over and over! Sue I know it's called a neurotoxin, but I think of nerve disease displaying differently than anxiety but alot of people have chimed in on subject of anxiety here. It would be nice to think if you got better from mold illness you would be calm....long time since I have felt calm, wonderful thought. I can barely remember it. **************Get trade secrets for amazing burgers. Watch " Cooking with Tyler Florence " on AOL Food. (http://food.aol.com/tyler-florence?video=4 & ?NCID=aolfod00030000000002) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2008 Report Share Posted May 21, 2008 I know it's called a neurotoxin, but I think of nerve disease displaying differently than anxiety but alot of people have chimed in on subject of anxiety here. It would be nice to think if you got better from mold illness you would be calm....long time since I have felt calm, wonderful thought. I can barely remember it. > > interesting. I thought it was interesting too that the AAAAI article > I posted on anaphylaxis also mentions anxiety as a symptom. > isn't that weird. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2008 Report Share Posted May 21, 2008 me too Barb, I think the physical damage plas a role in how our sytem handles the phychological stress and than theres the bonus of the hypersensitivitys to boot. sure is looking like chemicals/toxins play a hudge roll in moods. In , " barb1283 " <barb1283@...> wrote: > > I know it's called a neurotoxin, but I think of nerve disease > displaying differently than anxiety but alot of people have chimed in > on subject of anxiety here. It would be nice to think if you got > better from mold illness you would be calm....long time since I have > felt calm, wonderful thought. I can barely remember it. > > > > > > interesting. I thought it was interesting too that the AAAAI article > > I posted on anaphylaxis also mentions anxiety as a symptom. > > isn't that weird. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2008 Report Share Posted May 21, 2008 I just know that the cramial nerves and nerves throughout the body are all connected, to me stress causes nerve effects. mood disorders are controled in the limbic system and maybe the fromtal lobes cant remeber. I always thought of anxiety as in anxiety attachs and typed in with the lungs,blood and heart effects and nerves if it's brought on by a chemical/toxic insult up the nose to the brain,? so maybe both. I dont know if agg8tation which is a bad effect I sometimes get from exposure to chemicals which to me fells like a nerve effect more than anything, than I've had a few worse exposures where everynerve in my body was in major pain. the nerves in my nose go crazy with this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2008 Report Share Posted May 21, 2008 Sue, if your reliveing it oner and over in your head thats a pretty good sign of PTSD at it's worst. I went through that during and for several years after exposure, couldn't control my thoughs and it enterfered with me talking it was so bad, never knew what was going to come out of my mouth, what I meant to say or what my brain was thinking. I still have it but not near as bad but I'm pretty sure that a few days out of my safe zone and it would get worse again. have you had brain scans done? In , ssr3351@... wrote: > > > I believe that the stress comes from getting so sick from from an exposure > that caused great trauma. Like I said I didn't have the stress right away I was > too sick and it took me a yr. to begin feeling better. All I did was sleep > and then felt like I was coming out of a coma. When I finally realized how > sick I was and what caused it I began to relive it and worry about every place I > went. It really is like PTSD. I now know exactly how people feel that return > from war or have suffered a horrible experience in their lives. The > nightmare just doesn't go away. We live it over and over! > > Sue > > > > > I know it's called a neurotoxin, but I think of nerve disease > displaying differently than anxiety but alot of people have chimed in > on subject of anxiety here. It would be nice to think if you got > better from mold illness you would be calm....long time since I have > felt calm, wonderful thought. I can barely remember it. > > > > > > > > > > > **************Get trade secrets for amazing burgers. Watch " Cooking with > Tyler Florence " on AOL Food. > (http://food.aol.com/tyler-florence?video=4 & ? NCID=aolfod00030000000002) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2008 Report Share Posted May 22, 2008 > > Sue, if your reliveing it oner and over in your head thats a pretty > good sign of PTSD at it's worst. I went through that during and for > several years after exposure, couldn't control my thoughs and it > enterfered with me talking it was so bad, never knew what was going > to come out of my mouth, what I meant to say or what my brain was > thinking. I still have it but not near as bad but I'm pretty sure > that a few days out of my safe zone and it would get worse again. > have you had brain scans done? The illness itself is bad enough especially if you have chemical issues, candida, but I think the hardest part of this illness is how we have to fight for our rights like this. We are being discriminated against because of money and greed. It is enough to cause anxiety. I don't have panic attacks but I can't get this stuff out of my mind. Especially when mold and water damage seems to follow me and most of my places have cost about 950.00 a month. No reason for being neglected like we are, not like cancer where you receive compassion, etc. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2008 Report Share Posted May 22, 2008 , yes, I've had the MRS done (60 min.long) which showed the permanent loss. I don't have the nightmares and fear as much as 2 summers ago but I still get extremely anxious about leaving my house for any length of time and I HATE rainy days!! I think that because I know I am safe at home I don't want anything to go wrong here. If I even have a drip in the sink I go crazy with fear. I think if I even had a plumbing leak like the washer or something I would die. As you know it is a HUGE worry. I don't think anyone who hasn't been exposed, as we all have, has a clue to the concerns of water damage. There us a commercial on TV (I think it's for house or flood ins.) that I can't even watch. It shows water just pouring out of the house!! > Sue, if your reliveing it oner and over in your head thats a pretty > good sign of PTSD at it's worst. I went through that during and for > several years after exposure, couldn't control my thoughs and it > enterfered with me talking it was so bad, never knew what was going > to come out of my mouth, what I meant to say or what my brain was > thinking. I still have it but not near as bad but I'm pretty sure > that a few days out of my safe zone and it would get worse again. > have you had brain scans done? **************Get trade secrets for amazing burgers. Watch " Cooking with Tyler Florence " on AOL Food. (http://food.aol.com/tyler-florence?video=4 & ?NCID=aolfod00030000000002) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2008 Report Share Posted May 22, 2008 I think the anxiety could come from both avenues: situational is easy to see, fear of something that took our jobs, homes, money, health...what could be worse? However I think anxiety can also be caused by biology of toxins affect on nerves, perhaps a double whammy. I know I felt my house was safe and I had gotten sick from prior mold situation in basement and no reason to fear since it hadn't taken job, home, made me broke, etc but had difficulty with anxiety. Then I discovered house still had a problem. > > > I believe that the stress comes from getting so sick from from an exposure > that caused great trauma. Like I said I didn't have the stress right away I was Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2008 Report Share Posted May 23, 2008 I wonder if the neurological compnonent is a common factor for those with mcs and mold issues. I've noticed with my self and other people I know, some who swear that they've cured themselves who still battle with these tendancies. My sense sometimes, again my own limited opinion as I try to navigate through this myself, is that like others who have disabilities we need to find ways to compensate for them. The panic and fear issues can seem gigantic and I go through it myself. But here is where the conscious mind or self can play a role and I don't think it matters what you're belief system is-- whether it is a belief in your ablilty to use your mind as Nash did or your bent is more spiritual or faith based or meditative. I don't think it matters here, and I don't negate the difficulties involved as man, sometimes I just get nervouse walking down the dang street. But-- whatever one can do to bring in a sense of calm and or objectivity even in the face of these physically induced neurological issues can go a long way to helping balance your response to the feelings you get. I think that is key is learning to not be overwhelmed by the fear, but rather meet it and see it objectivley or compassiontley, whatever your inlination is. Not the remedy-- but an added remedy. Many here are in a real sense all learning to compensate for a missing or damaged part of our physical nature much in the sense that someone with a more visible disability is. The problem here sometimes is that the disability is not so visible and in our culture it gets wrse when those around you even you yourself respond with impatience or frustration. Sorry for going on, just my own limited two-cents. I hope I've described it well enough and if I've mistated something that could be miscinstrued as my having any answers or anything that could be perceived as denigarating, it is inadvertant. Am particularly exhausted today due to health issues and an 18 hour day of doctor visits and travel. One final thought-- imho, I think these symptoms can also be due to severe adrenal fatigue which is in a vicious cycle of stress which keeps worsening the problem. Key here is getting tested and if that is a contributing problem addressing it with a body of support protocols. Be well all, Sam > Sue, if your reliveing it oner and over in your head thats a > pretty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2008 Report Share Posted May 23, 2008 Thanks, Sam, for your wonderful response. I don't think I could have written as much or made more sense. I believe the anxiety is all part of the illness even if we are out of the bad environment. It is part of the neurological damage which is very frustrating and overwhelming. I think it also has to do with the memory loss with contributes to the anxiety which then causes what I call the meltdowns. I am trying my best but it is difficult at times. I have always been an organized person. As a teacher I could do 20 things at once and know it's hard concentrate on one thing. I have to write everything down and think about everything I do. I worry about leaving the iron plugged in, the coffee pot, turning the washer hoses off, etc. I sometimes leave the house and have a panic attack leaving something on. I can be standing in line at the bank and feel like I have to get home. I'm trying and will continue to battle this but I get very angry that I can't be myself and enjoy life as I did before. Life as I knew it has completely changed. I always thought I would be traveling as I always loved to do. I hope someday I'll get the chance to do just that. You're right about the stress being a vicious cycle. The hamster just keeps running round and round and can't stop. Sue I wonder if the neurological compnonent is a common factor for those with mcs and mold issues. I've noticed with my self and other people I know, some who swear that they've cured themselves who still battle with these tendancies. My sense sometimes, again my own limited opinion as I try to navigate through this myself, is that like others who have disabilities we need to find ways to compensate for them. The panic and fear issues can seem gigantic and I go through it myself. But here is where the conscious mind or self can play a role and I don't think it matters what you're belief system is-- whether it is a belief in your ablilty to use your mind as Nash did or your bent is more spiritual or faith based or meditative. I don't think it matters here, and I don't negate the difficulties involved as man, sometimes I just get nervouse walking down the dang street. But-- whatever one can do to bring in a sense of calm and or objectivity even in the face of these physically induced neurological issues can go a long way to helping balance your response to the feelings you get. I think that is key is learning to not be overwhelmed by the fear, but rather meet it and see it objectivley or compassiontley, whatever your inlination is. Not the remedy-- but an added remedy. Many here are in a real sense all learning to compensate for a missing or damaged part of our physical nature much in the sense that someone with a more visible disability is. The problem here sometimes is that the disability is not so visible and in our culture it gets wrse when those around you even you yourself respond with impatience or frustration. Sorry for going on, just my own limited two-cents. I hope I've described it well enough and if I've mistated something that could be miscinstrued as my having any answers or anything that could be perceived as denigarating, it is inadvertant. Am particularly exhausted today due to health issues and an 18 hour day of doctor visits and travel. One final thought-- imho, I think these symptoms can also be due to severe adrenal fatigue which is in a vicious cycle of stress which keeps worsening the problem. Key here is getting tested and if that is a contributing problem addressing it with a body of support protocols. Be well all, Sam **************Get trade secrets for amazing burgers. Watch " Cooking with Tyler Florence " on AOL Food. (http://food.aol.com/tyler-florence?video=4 & ?NCID=aolfod00030000000002) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2008 Report Share Posted May 23, 2008 There is a neurogenic theory of depression that would explain depression in people who were being poisoned by substances that inhibited protein synthesis. Basically, brain cells send out new connections in order to save memories and learn new skills. They also send out new connections in order to integrate new emotional knowledge. If a toxin is preventing the growth of those new connections, not only wont we be able to reapir damage, we also wont be able to integrate new emotional knowledge. We wont be able to adapt to things. That causes depression, just like it causes memory issues and inability to learn. In a growing brain, it may cause issues like autism. Because at that point (infancy and early childhood) the growth of a brain is a physiological necessity. If a toxin prevents that, you can't just remove the toxin later on and have everything straighten itself out. For similar reasons, each cell has a finite number of times it can divide. If damage from toxins causes the cells to need to divide more rapidly to repair damage, the cell will reach its limit of cell divisions sooner. Then the cell can't repair itself and either its life ends, or it becomes cancerous and goes out of control. (cancer cells are, I am pretty sure, 'immortal') Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2008 Report Share Posted May 23, 2008 I always feel that its impossible not to be anxious when you are being poisoned. If your body detects poisonous substances your warning system is going to start up. I use GABA and avoidance of course, My Dr. told me to RUN! She meant away from toxic substances. Alice Sam <yaddayadda53@...> wrote: I wonder if the neurological compnonent is a common factor for those with mcs and mold issues. I've noticed with my self and other people I know, some who swear that they've cured themselves who still battle with these tendancies. My sense sometimes, again my own limited opinion as I try to navigate through this myself, is that like others who have disabilities we need to find ways to compensate for them. The panic and fear issues can seem gigantic and I go through it myself. But here is where the conscious mind or self can play a role and I don't think it matters what you're belief system is-- whether it is a belief in your ablilty to use your mind as Nash did or your bent is more spiritual or faith based or meditative. I don't think it matters here, and I don't negate the difficulties involved as man, sometimes I just get nervouse walking down the dang street. But-- whatever one can do to bring in a sense of calm and or objectivity even in the face of these physically induced neurological issues can go a long way to helping balance your response to the feelings you get. I think that is key is learning to not be overwhelmed by the fear, but rather meet it and see it objectivley or compassiontley, whatever your inlination is. Not the remedy-- but an added remedy. Many here are in a real sense all learning to compensate for a missing or damaged part of our physical nature much in the sense that someone with a more visible disability is. The problem here sometimes is that the disability is not so visible and in our culture it gets wrse when those around you even you yourself respond with impatience or frustration. Sorry for going on, just my own limited two-cents. I hope I've described it well enough and if I've mistated something that could be miscinstrued as my having any answers or anything that could be perceived as denigarating, it is inadvertant. Am particularly exhausted today due to health issues and an 18 hour day of doctor visits and travel. One final thought-- imho, I think these symptoms can also be due to severe adrenal fatigue which is in a vicious cycle of stress which keeps worsening the problem. Key here is getting tested and if that is a contributing problem addressing it with a body of support protocols. Be well all, Sam > Sue, if your reliveing it oner and over in your head thats a > pretty ------------------------------------ FAIR USE NOTICE: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2008 Report Share Posted May 24, 2008 Hi guys, i was reading your posts on anxiety. i have been away from the group for awhile due to my move and feeling so sick. as far as anxiety its hell. I was put on medication for anxiety last year because i had no idea why i was feeling so anxious, but i was. my shrink just put me on a really low dose of seroquil to take at night. like 30 mgs. it really helped. but as the mold got worse i got nuttier. i guess i told you this but i was so depressed about being so sick i wanted to die. i wanted to ram my car into a tree. i told this to my therapast and at the time i couldnt stop crying. i just felt so hopeless. my doctors just couldnt help me. they had no answers except that fibro myalgia and crhronic fatigue blah blah blah. i have lived with that and lyme and other stuff for 10 years - this was different. this was making me want to die. so i guess i was really freaking out and i was admitted into the pshyc ward. it was the worst experience of my life. i cant prove it was from this mold stuff. but i know it was from the mold. i have been down the road of late diagnosed neurological lyme disease and i thought that was hell. and it was but i never thought of killing myself. and my goodness i was a wreck. despite the amount of medication i was on. dispite the help i was getting for all my other problems i was out to lunch. the anxiety was over the edge. my kids got the worst of it. My son found a perfectly good apartment and all i could do was complain about it. cause i was scared. scared to death. i have lost so much. my health my photos my books and all my furniture. how can we not be scared, how can we not be anxious. but even if we lost nothing this stuff does somoething to our brain. JMO. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2008 Report Share Posted May 24, 2008 yep, know those fellings well. mine was really bad too, probably good that I cant drive anymore. I fell so bad because my daughters have had to suffer though my illness, I try and ytu to explain to people that just the smell of their cloths or hair can change my mood and put me in a state effecys that I cant control, they just dont get it. and that just makes me more emotional cause I knoe their thinking I'm just makeing excuses. when it's family it really hurts. I just want to scream at them and chew them out for not careing enough to ask questions and try to understand. years of this and most of my family still just dont get it. had a sister tell me the other day that I needed to get out and come down to her house, I said I get to sick when I get out and it's not helping me any, she said but you need to get out more. I just wanted to go off on her. what the hell are they thinking? like I'm enjoying setting here day after day? is there some problem with them not being able to lay off the damn smelly crap long enough to come spend time with me in my world? I have another sister, the baby of the family and basicly if it's not about her it's not important. she had indoor pets and now has allergies, she's done about everything I told her that would help her, but she has no adversions to the smelly stuff and so thats as far as her understandings go. she carries around a anaphalaxis kit her allergest gives her and goes on about like she's so ill yet she still has a life, drives, shops,ect. my mom is trying to understand, I gave her shoemakers books to read. kind of hard the talk let alone explain anything when your getting zapped by smells so here it is, years later and they still dont get it. I know I get hard to be around, now it's mostly anger all the time because I know to much and and this whole mess just pisses me off. the list of wgo could and should be held responable just grows. nothing like getting treated like crap every which way you turn, clear down to when your trying to help others and people take advantage of what little you have left to give. sometines I just fell cheated because life played a cruel joke and let me live to suffer through this. I keep telling myself theres a reason. anyway, understandong that my moods swings are tottally caused by my illness and that I dont have any control over them and knowing that no, I not crazy, I'm ill, is what I hang on too. and telling myself that some day the rest of the world will know and understand and I can say thanks alot for treating me like crap because of your ignorance. so I guess thats the reason I here and I hope I'm here to tell some certain people one day, you thought you were so smart and already knew it all, but you really dont know jack s####, or kent, or a few other names. you do know your names,I hope you at least know that much. lol's In , " roe " <roe0325@...> wrote: > > Hi guys, i was reading your posts on anxiety. i have been away from > the group for awhile due to my move and feeling so sick. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2008 Report Share Posted May 24, 2008 it is all part of the illness. it was one of the first symptoms I had in my first home, had never had it before, or not like that before. there were other effects with it, like nerves effects,lung attacks, adrenal, heart palpatations. but than it was more pronounced. after the second home and the MCS it's so mixed in with other symptoms to me it's mpt really a seperate idenity anymore. does that make sence? it's like my adrenal is kindof dead as far as kicking in when I get excited or scared, but other things make it go haywire but theres usually other symptoms involved. the anaphalaxis thing. thats why I asked if anyone had anaphalaxis symptoms who does have allergies. we have two brains, the one in our head and the omentum in our stomach.they basicly controll everything in our body. my sinuses and frontal lobes and olfaction is pretty messed up, it's supposed to be rare that anaphalaxis is caused by inhaleing things. I say that bull, or I'm rare and I dont think so. I can understand that some at lessor levels of damage may not actually have MCS but have hypersensitivitys to the mycotoxins and other toxins and chemicals they were exposed too because of the effects to their neurons,receptprs,ect. but I believe that MCS is anaphalaxis from inhalayion of toxins and chemicals and has nothing to do with allergies at all. In , ssr3351@... wrote: > > > Thanks, Sam, for your wonderful response. I don't think I could have written > as much or made more sense. I believe the anxiety is all part of the illness > even if we are out of the bad environment. It is part of the neurological > damage which is very frustrating and overwhelming. I think it also has to do > with the memory loss with contributes to the anxiety which then causes what I > call the meltdowns. I am trying my best but it is difficult at times. I have > always been an organized person. As a teacher I could do 20 things at once and > know it's hard concentrate on one thing. I have to write everything down and > think about everything I do. I worry about leaving the iron plugged in, the > coffee pot, turning the washer hoses off, etc. I sometimes leave the house > and have a panic attack leaving something on. I can be standing in line at the > bank and feel like I have to get home. > I'm trying and will continue to battle this but I get very angry that I > can't be myself and enjoy life as I did before. Life as I knew it has completely > changed. I always thought I would be traveling as I always loved to do. I hope > someday I'll get the chance to do just that. > You're right about the stress being a vicious cycle. The hamster just keeps > running round and round and can't stop. > > Sue > > > > > I wonder if the neurological compnonent is a common factor for those with > mcs and mold issues. I've noticed with my self and other people I know, some > who swear that they've cured themselves who still battle with these tendancies. > My sense sometimes, again my own limited opinion as I try to navigate > through this myself, is that like others who have disabilities we need to find ways > to compensate for them. The panic and fear issues can seem gigantic and I go > through it myself. But here is where the conscious mind or self can play a > role and I don't think it matters what you're belief system is-- whether it is > a belief in your ablilty to use your mind as Nash did or your bent is > more spiritual or faith based or meditative. I don't think it matters here, > and I don't negate the difficulties involved as man, sometimes I just get > nervouse walking down the dang street. But-- whatever one can do to bring in a > sense of calm and or objectivity even in the > face of these physically induced neurological issues can go a long way to > helping balance your response to the feelings you get. I think that is key is > learning to not be overwhelmed by the fear, but rather meet it and see it > objectivley or compassiontley, whatever your inlination is. Not the remedy-- but > an added remedy. Many here are in a real sense all learning to compensate for > a missing or damaged part of our physical nature much in the sense that > someone with a more visible disability is. The problem here sometimes is that the > disability is not so visible and in our culture it gets wrse when those > around you even you yourself respond with impatience or frustration. Sorry for > going on, just my own limited two-cents. I hope I've described it well enough > and if I've mistated something that could be miscinstrued as my having any > answers or anything that could be perceived as denigarating, it is inadvertant. > Am particularly exhausted today due to > health issues and an 18 hour day of doctor visits and travel. > > One final thought-- imho, I think these symptoms can also be due to severe > adrenal fatigue which is in a vicious cycle of stress which keeps worsening > the problem. Key here is getting tested and if that is a contributing problem > addressing it with a body of support protocols. > > Be well all, > Sam > > > > > > > > > > **************Get trade secrets for amazing burgers. Watch " Cooking with > Tyler Florence " on AOL Food. > (http://food.aol.com/tyler-florence?video=4 & ? NCID=aolfod00030000000002) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2008 Report Share Posted May 25, 2008 > > Sue, if your reliveing it oner and over in your head thats a > > pretty > Sam: I may have posted before on Dr Shoemaker's presentation to the Virginia Psychiatric Hospital. It can be found at http://www.biotoxin.info/images/VirginiaPsychiatry.pdf Slide 6 describes some of the chemical abnormalities that can occur due to biotoxin illnesses. One of these abnormalities is the disruption of the glutamate/glutamine ratio. Excess glutamate in the brain can cause anxiety, racing thoughts, panic etc. The amino acid taurine can help to decrease the glutamate, but first the toxins have to be removed from the body. Most of us have used CSM or activated charcoal for this. Taurine works best when combined with anything that increases blood flow to the brain. Blueberry extract, CoQ10, l-arginine are some suggestions. The process of recovery is slow. I am in my third month and have only begun feeling better in the last several weeks. Of course some damage is permanent and I don't know how far this protocol will take me. I am also taking lexapro for anxiety and the combination has made life much better. My illness had progressed to the point that I had acquired coagulase negative staff, so it was very long term. Just some thoughts. Meredith Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2008 Report Share Posted May 25, 2008 Who, I have to agree; don't think it's allergies either. Went for allergy testing..don't have any allergies, but when in my house, I have wheezing, runny nose & ear congestion, all stop when I stay out of the house for the day, on the days I can get out of bed! Never used to be an uptight person or obsessive, but have become one over the constant cleaning & memory loss, too. Cheryl it is all part of the illness. it was one of the first symptoms I had in my first home, had never had it before, or not like that before. there were other effects with it, like nerves effects,lung attacks, adrenal, heart palpatations. but than it was more pronounced. after the second home and the MCS it's so mixed in with other symptoms to me it's mpt really a seperate idenity anymore. does that make sence? it's like my adrenal is kindof dead as far as kicking in when I get excited or scared, but other things make it go haywire but theres usually other symptoms involved. the anaphalaxis thing. thats why I asked if anyone had anaphalaxis symptoms who does have allergies. we have two brains, the one in our head and the omentum in our stomach.they basicly controll everything in our body. my sinuses and frontal lobes and olfaction is pretty messed up, it's supposed to be rare that anaphalaxis is caused by inhaleing things. I say that bull, or I'm rare and I dont think so. I can understand that some at lessor levels of damage may not actually have MCS but have hypersensitivitys to the mycotoxins and other toxins and chemicals they were exposed too because of the effects to their neurons,receptprs,ect. but I believe that MCS is anaphalaxis from inhalayion of toxins and chemicals and has nothing to do with allergies at all. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2008 Report Share Posted May 25, 2008 That makes a lot of sense. Cheryl I always feel that its impossible not to be anxious when you are being poisoned. If your body detects poisonous substances your warning system is going to start up. I use GABA and avoidance of course, My Dr. told me to RUN! She meant away from toxic substances. Alice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2008 Report Share Posted May 25, 2008 Isn't that the truth; do people really think anyone would enjoy laying around in bed all the time b/c your joints & muscles hurt too bad to do anything else & how can they not understand how hard it is to not have your life any more, like it used to be. That " you just need to get out more " is really frustrating. If you felt well enough, you would be out more! Does seem family are the worst at trying to understand & that really does hurt. It's very angering when others either aren't affected by it or can't even smell it. B/c they can't smell it, they act like it doesn't exist. For me, if I loved/cared about someone, I'd want to know as much as I could to help them & to get rid of what is making them so sick; I think it makes the anxiety & anger worse that they don't do those things. You end up being the one cleaning the stuff that's making you sick, when you should be the last person even near it. No one gets it unless they've lived it; that's my experience anyway. Cheryl yep, know those fellings well. mine was really bad too, probably good that I cant drive anymore. I fell so bad because my daughters have had to suffer though my illness, I try and ytu to explain to people that just the smell of their cloths or hair can change my mood and put me in a state effecys that I cant control, they just dont get it. and that just makes me more emotional cause I knoe their thinking Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.