Neurontin

[Guest guest]

I am 28 and take was perscribed one of the lowest doses . It made me feel

disorientaded, I could not sleep. I could not eat. I would not give a child

this.

[Guest guest]

Hello All,

Several years ago I had trouble with leg jerks at night which was brought out by

a sleep study and Neurontin (gabapentin) was prescribed at 800 mg per night. I

had similar problems and finally reduced it to half of the smallest capsule

made. That's 50 mg for 200# body weight which has been doing the job just fine.

Every time I run out for a day or two, the leg jerks come back. A lot has to do

with how much I push myself during the day.

I can't imagine what a child could do at 50# or less. Dosage rates

are very personal and need to be adjusted accordingly. My personal

philosophy is use the minimum to do the job as you might need more later and

avoid side effects.

EdM from NH

[Guest guest]

Thank You, .

[Guest guest]

I am on the absolute highest dose, and it works well. But I also take other

drugs, as well.

[Guest guest]

,

How high is your dose and what else do you take for pain? Did you gain weight

from the drug and how long did it take before it started to work, I tried it

long ago but nothing helped the burning or Lyrica as well. Thanks

Joyce

>

>

[Guest guest]

I was prescribed Neurontin over 7 yrs ago. My new neurologist instantly changed

that for Gabapentin, which for all intent and purposes does the job. I'm pretty

much on the minimum dosage of 2x300mg 3-4 times a day.. but I self medicate when

things get abit out of control. ie. the leg spasms that can go on for too long.

worse case has been 20 sec spasm every 1-1½ min but can go on for 3-4 days

before I regain control. Rest and the meds are the key... actually not pushing

the envelope in the first would be smarter..but I've never been the brightest of

lads. Then in all honesty even being a good boy hasn't always been the answer

either, the spasms come when the do and I deal.

Take good care Joyce,

Mark

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>

[Guest guest]

Hello Mark and All,

As far as I know, Gabapentin is the generic name for Neurontin. At any

rate, that's what I take before bedtime each night with a dose of 50 mg

which is enough to stop the nighttime twitches and leg jerks.

Ed from NH

[Guest guest]

Dear Dee,

Yes, I was on neurontin and it elevated my creatinine serum levels in my

blood and I began producing too much potassium. Now I have to take drugs to get

rid of the excess potassium. As a result, I am on a potassium free diet and the

doctor said it all started when I was put on neurontin. He looked it up and it

said that it can cause renal failure. I am trying to cope with that now and it

is not easy. Ask your druggist or go to www.drugstore.com. I looked it up and

stopped taking it and also stopped seeing the N/P who prescribed it. It

happened to me, but it doesn't mean it will happen to everyone, but if you watch

your serum levels and they continue to be normal, then it shouldn't be a problem

for you, but I just wanted to share my experience with you since you asked the

question.

Carpe diem,

Lottie Duthu

[Guest guest]

From: Dolores Claesson <dclaesson@...>

Subject: Neurontin

dclaesson@...

Date: Sunday, January 30, 2011, 12:47 PM

http://www.nytimes.com/2011/01/29/business/29pfizer.html?_r=1 & scp=1 & sq=pfizer

 

 

 

We need to stop destroying our children's future with all the drugs being

prescribed to them.  And I do not mean antibiotics. 

[Guest guest]

Please watch out for Neurontin! I thought I had the flu two weeks after I had

started taking it. After developing rash, I went to the doctor and was admitted

to the hospital and placed in Intensive Care. One more pill and it would have

killed me! It's on our list for CMT patients to beware of! Please be

careful!!!!

Margaret Lee

> >

> > Why not do both types of research?

> >

>

[Guest guest]

Margaret,

Neurontin is not on the general 2005 Medication Alert List or the expanded list.

It can be very useful in managing CMT pain. Your experience was unfortunate. But

nonetheless, a good warning to all of us, be careful with what you are

prescribed, talk to and ask questions of your doctor and pharmacist and

immediately report any adverse effects.

Gretchen

[Guest guest]

Had a terrible reaction to Neurontin. Felt like toxic shock.

, 68. CMT 2A

[Guest guest]

Margaret - So sorry you had a bad experience with Neurontin. It is NOT on the

list of harmful medications for those with CMT. I would think that you had an

allergic reaction to gabapentin (the generic name) or perhaps it was

contraindicated with something else you take.

It has been very helpful in managing my sons pain.

[Guest guest]

Hello Margaret Lee,

I think that it is often given in too large of a dose. I take 50mg each

night before bedtime to help prevent spasms along with 5mg of flexeril.

This has been going on for years and works quite well for me. Generic

name is gabapentin and it was prescribed by a sleep specialist.

I reduced the dosage in order to avoid the side effects.

75 EdM from NH

[Guest guest]

I've been taking 3000mg of Neurontin for a number of years and have had no

problems with it. Have you ever had toxic shock to know what it feels like?

Tommy

[Guest guest]

According to some people, Ambien actually increases pain. See this thread:

!!!!!!Must read if you are an ambien user!!!!!!!! - I have had FM for 5 y

http://www.prohealth.com/me-cfs/blog/boardDetail.cfm?id=1425960

Ellen

Neurontin

Hi Everyone,

just wondring if anyone has any experiences with using Neurontin for pain in

CFS/Fibro? and if it is helpful? I am currently taking Vicodin and Xanax for

pain, and Ibuprofen, Ambien to help sleep. Any input is

appreciated, Thanks, Randy

[Guest guest]

Dear Randy,

I was on Neurontin for years and it did nothing for pain that comes with CFS.

Neurontin is a drug that is supposed to calm the brain down so that seizures do

not happen. It did not ease any of the symptoms of CFS and I was glad to stop it

when I did about 10 years ago.

Mira

[Guest guest]

Hi Randy, I was on neurontin for 8 yrs. it did not help with the pain, turned me

into a zombie and gave me a severe tremor. Doctors love to throw this drug at

people who are experiencing pain when they don't know how to treat it. It may

partially mask symptoms for some people. It is not addictive but you do have to

do a slow titration off from it. I'm anti neurontin because drs use it as a

crutch for unexplained pain.

Have you tried acupuncture? It is one of my most successful forms if treatment.

I've had cfids/fm for 19 years.

Peace be with you and all that jazz

Chardale Irvine

On Jul 2, 2012, at 4:20 PM, " Randy " <randydean3@...> wrote:

> Hi Everyone,

>

> just wondring if anyone has any experiences with using Neurontin for pain in

CFS/Fibro? and if it is helpful? I am currently taking Vicodin and Xanax for

pain, and Ibuprofen, Ambien to help sleep. Any input is

> appreciated, Thanks, Randy

>

>