Update

[Guest guest]

<PRE>i'm glad they are being cautious on your infection, please be careful. also

you are doing great on your weight loss, congrats!!!! i am down only 1lb. but

it beats going up. i am also having a vaginal infection (sorry guys) i am on

1000 mgs of antibiotics for that. (fun) they want me to have another pap in 3

mos. kathy in il

[Guest guest]

,

Only 6 more weeks?? Wow that is great! I'm so jealous. :-p

I'm j/k. It really is great. I bet you can't wait. Please let us know

when your little man graduates!

> Hi,

>

> We went to Cranial Tech tonight...and things are getting good.

Charlotte

> said will probably be done in 6 weeks..so that was good.

She said Dr

> Hall will probably say a little earlier..but she thinks 6 weeks

will be good.

> (Which Dr Hall did say about another month..maybe a bit longer) so

they are

> on the same page. Charlotte said his ears are lining up much

better

> now...the right one is still a little more forward..but definitely

getting

> better. And she shaved more today. So i can wait another 6

weeks. I'm

> just glad to see his head rounding. It's not perfect, but it's a

lot better.

> The right side still has to pop out a little more..and the whole

back has to

> round more..but the right side is not nearly as noticeably flat as

it

> was...and the back is rounding (going from the bottom moving up).

She said

> it may never completely pop out in the back...but as long as it's

getting

> better..it doesn't look funny anymore. I'm just so glad i decided

to go with

> the helmet..

>

> A friend i had met recently...has a baby..that is now 10 months

old....and

> her daughter has a flat side on the right and the left side is

buliging (kind

> of how 's was..but 's was worse to begin with).

Anyway...she

> never did anything about it..and is listening to her dr that it

will just

> stay that way but it won't be noticeable when she gets hair....i

was kind of

> surprised that she agreed with that..and she sees and knows

about the

> helmet. But i don't know her well enough to convince her to get

the

> helmet...so i kind of just have to not say anything. I mean i

asked once if

> she ever thought of doing anything about it..and she said that she

didn't

> feel it was that bad and that most people's heads aren't

perfect..and she

> doesn't want to do anything..so she isn't. Oh well. Anyway,

that's

> it....Hope everyone else is doing good.

>

>

> Mom to

[Guest guest]

Wow, that is so great . 6 weeks is nothing! I am jealous!

I'll have to post a Logan update.

- B

> Hi,

>

> We went to Cranial Tech tonight...and things are getting good.

Charlotte

> said will probably be done in 6 weeks..so that was good.

She said Dr

> Hall will probably say a little earlier..but she thinks 6 weeks

will be good.

> (Which Dr Hall did say about another month..maybe a bit longer) so

they are

> on the same page. Charlotte said his ears are lining up much

better

> now...the right one is still a little more forward..but definitely

getting

> better. And she shaved more today. So i can wait another 6

weeks. I'm

> just glad to see his head rounding. It's not perfect, but it's a

lot better.

> The right side still has to pop out a little more..and the whole

back has to

> round more..but the right side is not nearly as noticeably flat as

it

> was...and the back is rounding (going from the bottom moving up).

She said

> it may never completely pop out in the back...but as long as it's

getting

> better..it doesn't look funny anymore. I'm just so glad i decided

to go with

> the helmet..

>

> A friend i had met recently...has a baby..that is now 10 months

old....and

> her daughter has a flat side on the right and the left side is

buliging (kind

> of how 's was..but 's was worse to begin with).

Anyway...she

> never did anything about it..and is listening to her dr that it

will just

> stay that way but it won't be noticeable when she gets hair....i

was kind of

> surprised that she agreed with that..and she sees and knows

about the

> helmet. But i don't know her well enough to convince her to get

the

> helmet...so i kind of just have to not say anything. I mean i

asked once if

> she ever thought of doing anything about it..and she said that she

didn't

> feel it was that bad and that most people's heads aren't

perfect..and she

> doesn't want to do anything..so she isn't. Oh well. Anyway,

that's

> it....Hope everyone else is doing good.

>

>

> Mom to

[Guest guest]

:

Just 6 more wks? WOW! That is great news. Hopefully will hit

another good growth spurt to help correct remaining flatness before

graduation! So hopefully he'll be a graduate before Thanksgiving

Too bad about your friend's daughter, let's just hope mother nature

does the trick for her .

Thanks for the good update.

Debbie Abby's mom DOCGrad

MI

> Hi,

>

> We went to Cranial Tech tonight...and things are getting good.

Charlotte

> said will probably be done in 6 weeks..so that was good.

She said Dr

> Hall will probably say a little earlier..but she thinks 6 weeks

will be good.

> (Which Dr Hall did say about another month..maybe a bit longer) so

they are

> on the same page. Charlotte said his ears are lining up much

better

> now...the right one is still a little more forward..but definitely

getting

> better. And she shaved more today. So i can wait another 6

weeks. I'm

> just glad to see his head rounding. It's not perfect, but it's a

lot better.

> The right side still has to pop out a little more..and the whole

back has to

> round more..but the right side is not nearly as noticeably flat as

it

> was...and the back is rounding (going from the bottom moving up).

She said

> it may never completely pop out in the back...but as long as it's

getting

> better..it doesn't look funny anymore. I'm just so glad i decided

to go with

> the helmet..

>

> A friend i had met recently...has a baby..that is now 10 months

old....and

> her daughter has a flat side on the right and the left side is

buliging (kind

> of how 's was..but 's was worse to begin with).

Anyway...she

> never did anything about it..and is listening to her dr that it

will just

> stay that way but it won't be noticeable when she gets hair....i

was kind of

> surprised that she agreed with that..and she sees and knows

about the

> helmet. But i don't know her well enough to convince her to get

the

> helmet...so i kind of just have to not say anything. I mean i

asked once if

> she ever thought of doing anything about it..and she said that she

didn't

> feel it was that bad and that most people's heads aren't

perfect..and she

> doesn't want to do anything..so she isn't. Oh well. Anyway,

that's

> it....Hope everyone else is doing good.

>

>

> Mom to

[Guest guest]

Thanks . LOL. I was very happy to hear only 6 more weeks. When i asked her how much longer.....i was half expecting her to say 4 more months...lol..but when she said 6 more weeks..that made me happy. His cranial facial dr had said another month..and then just let him outgrow the band...but he had said in the beginning that he would wear it for 2 months....and Charlotte kind of said longer...so i wasn't sure how much longer. It will be about 3 months by the time he graduates...if he wears it for another 6 weeks..so that wasn't too bad.

How's doing with the new helmet? So far it sounds good....is she still doing good in it?

Mom to

In a message dated 10/3/2002 8:50:43 PM Eastern Daylight Time, taime@... writes:

,

Only 6 more weeks?? Wow that is great! I'm so jealous. :-p

I'm j/k. It really is great. I bet you can't wait. Please let us know

when your little man graduates!

[Guest guest]

Thanks ,

I am very happy....yea..i can handle 6 more weeks. Did you ask Charlotte how much longer for Logan? I bet he'll be done in no time too. I'm only worried now that his growth will slow down..and then he'll have to wear it for longer.....lol..(i'm always worrying about something) but i won't worry about that....i'm just happy that it really is working!!

Yea, send an update on Logan!!

Mom to

In a message dated 10/3/2002 9:16:23 PM Eastern Daylight Time, iammichelle@... writes:

Wow, that is so great . 6 weeks is nothing! I am jealous!

I'll have to post a Logan update.

- B

[Guest guest]

Debbie,

Thanks. Yea...i was happy when she said 6 more weeks. Of course if growth slows down and she suggests longer..i will probably leave it on longer..but she said that 6 weeks should be it...just to pop out the remaining flatness on the right side (which is much less noticeable now...and popped out a lot already) and for a little more growth on the left front...and she said for a little more length in the back to make it more rounded. But it really has gotten so much better. I often look at his head now and say it's not perfect..but if i got no more correction..i would be satisfied..though i obviously would be thrilled with more correction. But she said he will get more correction..so i'm very happy. He still has some height in the back....if he looks down..his head slopes downward..but it isn't as noticeable as it was.....b/c they kind of lifted his forehead a little with the helmet to make it less noticeable..and Charlotte said it looks better....and it does. And i was happy that she told us that his ears are lining up better which is what Dr hall had said.

Yea..i hope my friend's daughter's head does get better on its own...but i don't know..b/c i've known them for about 4 months now...and she is walking now (just started) and so she hasn't really been on her back the whole time and it hasn't gotten any better.....but with hair..it probably will be covered up.

Mom to

In a message dated 10/3/2002 9:40:30 PM Eastern Daylight Time, dj2kirby@... writes:

:

Just 6 more wks? WOW! That is great news. Hopefully will hit

another good growth spurt to help correct remaining flatness before

graduation! So hopefully he'll be a graduate before Thanksgiving

Too bad about your friend's daughter, let's just hope mother nature

does the trick for her .

Thanks for the good update.

Debbie Abby's mom DOCGrad

MI

[Guest guest]

Thanks !!

How's Vivian doing in her band? Yea..we definitely did the right thing!!!

Mom to

In a message dated 10/4/2002 7:49:44 AM Eastern Daylight Time, xtinaherp@... writes:

-

That is great news - only six more weeks! See how

fast this is all going? He'll be done before you know

it.

Too bad about your friend. Hopefully it will improve

a little on its own. Some lady looked at Vivian's

helmet and gave me the stink eye the other day at

babies r'us and I felt like saying (her babies head

was far from round) "listen lady, your kid ought to be

in one of these too" - but oh well. We can't always

make other people see what they don't want to see. At

least we know we did the right thing, huh?

& Vivian STARband 09/28/02

[Guest guest]

Thanks Niki!! Yes..the light at the end of the tunnel is getting closer Yay!!

Mom to

In a message dated 10/4/2002 4:27:40 PM Eastern Daylight Time, niki_jay175@... writes:

,

These next 6 weeks should really fly by. Its really nice knowing

that there is a light at the end of this tunnel, isn't it?! Can't

wait to read that official graduation post!!

Niki

Kaylie & Danny (STAR grads)

Phila., PA

[Guest guest]

,

These next 6 weeks should really fly by. Its really nice knowing

that there is a light at the end of this tunnel, isn't it?! Can't

wait to read that official graduation post!!

Niki

Kaylie & Danny (STAR grads)

Phila., PA

> Hi,

>

> We went to Cranial Tech tonight...and things are getting good.

Charlotte

> said will probably be done in 6 weeks..so that was good.

She said Dr

> Hall will probably say a little earlier..but she thinks 6 weeks

will be good.

> (Which Dr Hall did say about another month..maybe a bit longer) so

they are

> on the same page. Charlotte said his ears are lining up much

better

> now...the right one is still a little more forward..but definitely

getting

> better. And she shaved more today. So i can wait another 6

weeks. I'm

> just glad to see his head rounding. It's not perfect, but it's a

lot better.

> The right side still has to pop out a little more..and the whole

back has to

> round more..but the right side is not nearly as noticeably flat as

it

> was...and the back is rounding (going from the bottom moving up).

She said

> it may never completely pop out in the back...but as long as it's

getting

> better..it doesn't look funny anymore. I'm just so glad i decided

to go with

> the helmet..

>

> A friend i had met recently...has a baby..that is now 10 months

old....and

> her daughter has a flat side on the right and the left side is

buliging (kind

> of how 's was..but 's was worse to begin with).

Anyway...she

> never did anything about it..and is listening to her dr that it

will just

> stay that way but it won't be noticeable when she gets hair....i

was kind of

> surprised that she agreed with that..and she sees and knows

about the

> helmet. But i don't know her well enough to convince her to get

the

> helmet...so i kind of just have to not say anything. I mean i

asked once if

> she ever thought of doing anything about it..and she said that she

didn't

> feel it was that bad and that most people's heads aren't

perfect..and she

> doesn't want to do anything..so she isn't. Oh well. Anyway,

that's

> it....Hope everyone else is doing good.

>

>

> Mom to

[Guest guest]

Dear Al,

I am sorry to hear of Randi's results. My

stepdaughter who is 23 had the same thing happen. The

first time they used the freezing technique and the

second time they used the lazer. Her last pap smear

came back ok. It sounds as though they are going to

do what is necessary to effect a positive outcome.

Thank goodness that she went to the dr and this was

caught before it got worse. She will have to be

followed closely for the next year or so with frequent

pap smears. It is so important for young women to go

to the dr even though they think that they are

healthy. The same thing holds true for young men;

even in their late teens, and testicular cancer.

I hope that they can get to the bottom of why you are

still losing weight. Has this ever happened to any of

the other men in your family? Just close your eyes

and imagine that you are having a milk shake when you

drink that barium (I don't know about you, but my

imagination is not powerful enough for that)!

Please know that you and Randi are still in our

thoughts and prayers. Iris

Alan <kb9vrq@...> wrote:

> Hi everyone,

>

> As you know, it's been a pretty hectic time for me

> lately as I am

> still having tests done regarding my weight loss. My

> GI doctor called

> me at 10:00 pm with my biopsy results. Needless to

> say I was pretty

> anxious when he called. On a good note, all of them

> were normal. No

> cancer anywhere.

>

> I will be having a small bowel x-ray tomorrow

> morning. Can't wait to

> drink that barium again...LOL! My weight has

> remained around 160 with

> minimal exercise and lots of food. Although this

> sounds like a dream

> diet, I feel like the main character from

> King's " Thinner " .

>

> On a bad note, Randi received some results back. She

> has cervical

> cancer and needs to have laser surgery Saturday. In

> reading up on it

> it appears that the procedure is primarily used on

> patients that have

> Stage 0 cancer. The hope is that it's contained. It

> was difficult

> because there was a celebration of my results and

> much sorrow for

> hers. We are remaining positive though.

>

> I would like to thank everyone for all of the

> Birthday wishes and

> kind thoughts and prayers. I believe it really

> helped and am grateful

> to have each of you in my life.

>

> Wishing you all a pain free Thursday.

>

> All my love,

>

> Al

>

>

>

>

>

[Guest guest]

Hi Al,

I'm so sorry to hear about Randi, but hopefully they've caught the cancer in

plenty of time. Needless to say, she'll be in my prayers. Let us know how

it goes!

Much love to you and yours,

Carol

[ ] Update

Hi everyone,

As you know, it's been a pretty hectic time for me lately as I am

still having tests done regarding my weight loss. My GI doctor called

me at 10:00 pm with my biopsy results. Needless to say I was pretty

anxious when he called. On a good note, all of them were normal. No

cancer anywhere.

I will be having a small bowel x-ray tomorrow morning. Can't wait to

drink that barium again...LOL! My weight has remained around 160 with

minimal exercise and lots of food. Although this sounds like a dream

diet, I feel like the main character from King's " Thinner " .

On a bad note, Randi received some results back. She has cervical

cancer and needs to have laser surgery Saturday. In reading up on it

it appears that the procedure is primarily used on patients that have

Stage 0 cancer. The hope is that it's contained. It was difficult

because there was a celebration of my results and much sorrow for

hers. We are remaining positive though.

I would like to thank everyone for all of the Birthday wishes and

kind thoughts and prayers. I believe it really helped and am grateful

to have each of you in my life.

Wishing you all a pain free Thursday.

All my love,

Al

[Guest guest]

Hi Al,

I'm glad your report was good. My prayers are with your wife. I hope

all goes well for both of you.

Lynn (MeMom)

Alan wrote:

> Hi everyone,

>

> As you know, it's been a pretty hectic time for me lately as I am

> still having tests done regarding my weight loss. My GI doctor called

> me at 10:00 pm with my biopsy results. Needless to say I was pretty

> anxious when he called. On a good note, all of them were normal. No

> cancer anywhere.

>

> I will be having a small bowel x-ray tomorrow morning. Can't wait to

> drink that barium again...LOL! My weight has remained around 160 with

> minimal exercise and lots of food. Although this sounds like a dream

> diet, I feel like the main character from King's " Thinner " .

>

> On a bad note, Randi received some results back. She has cervical

> cancer and needs to have laser surgery Saturday. In reading up on it

> it appears that the procedure is primarily used on patients that have

> Stage 0 cancer. The hope is that it's contained. It was difficult

> because there was a celebration of my results and much sorrow for

> hers. We are remaining positive though.

>

> I would like to thank everyone for all of the Birthday wishes and

> kind thoughts and prayers. I believe it really helped and am grateful

> to have each of you in my life.

>

> Wishing you all a pain free Thursday.

>

> All my love,

>

> Al

>

>

>

[Guest guest]

Hi Al...I am so glad your biopsies were clear, and I am so grateful they

caught Randi's early. You all will certainly stay in my prayers. I'm

sure your love & support mean the world to Randi. God bless you all

bunches.

Hugs of Hope, Always...

Tess

[Guest guest]

Great news that your biopsy results are normal, Al! Good luck on the

x-ray tomorrow. You sure are having a lot of testing fun.

Sorry that Randi's news isn't better, but it sounds like she's been

going for exams regularly and very much on top of things, so they should

have caught the cervical cancer very early. Her prognosis should be very

good.

The best of luck to her!

[ ] Update

> Hi everyone,

>

> As you know, it's been a pretty hectic time for me lately as I am

> still having tests done regarding my weight loss. My GI doctor called

> me at 10:00 pm with my biopsy results. Needless to say I was pretty

> anxious when he called. On a good note, all of them were normal. No

> cancer anywhere.

>

> I will be having a small bowel x-ray tomorrow morning. Can't wait to

> drink that barium again...LOL! My weight has remained around 160 with

> minimal exercise and lots of food. Although this sounds like a dream

> diet, I feel like the main character from King's " Thinner " .

>

> On a bad note, Randi received some results back. She has cervical

> cancer and needs to have laser surgery Saturday. In reading up on it

> it appears that the procedure is primarily used on patients that have

> Stage 0 cancer. The hope is that it's contained. It was difficult

> because there was a celebration of my results and much sorrow for

> hers. We are remaining positive though.

>

> I would like to thank everyone for all of the Birthday wishes and

> kind thoughts and prayers. I believe it really helped and am grateful

> to have each of you in my life.

>

> Wishing you all a pain free Thursday.

>

> All my love,

>

> Al

[Guest guest]

<PRE>glad to hear of your results and ssorry about randi, hopefully the surgery

will get rid of it all. my weight is just staying the same. i have tried to

exercise and stretch some more, but it still just hangs around. has anyone

tried seattle sutton???they make your food for you? kathy in il

[Guest guest]

Iris,

Sorry to hear about your knee. Why is it doctors are always surprised when

a patient's condition turns out to be worse than they thought, I wonder?

I find it interesting how many times I've heard someone say their doctor

said the same thing, " you'll know when it is time to have a knee

replacement " . Ouch, sounds awful.

Glad you came through the procedure so well.

Suzanne

Re: [ ] Update

> Hi everyone,

>

> I spoke to my dr and he was very surprised at how much

> more extensive the damage was in my knee that didn't

> show up on the MRI. He said my knee is shot and when

> I could no longer stand the pain, it would be time for

> a knee replacement. Lots of bone spurs, flaking

> cartilage and floating cartilage and many places that

> you could see the bone through the cartilage because

> it is so thin.

>

> He wants to do more shots after I recover to buy some

> time. I see the value in that after seeing what Debs

> has gone through. Thanks for you well wishes and

> prayers. Iris

[Guest guest]

<PRE>gosh deb.hang in there, i still have you in my prayers. kathy in il

[Guest guest]

The best of luck to you tomorrow, Debs! I hope the plastic surgeon's

work is a success. You need a big break.

Sending more prayers,

[ ] Update

> Hi all,

>

> Well, it is back to the OR tomorrow for more surgery. They will be

doing the

> first of the skin/muscle transplant. They are doing several small

> transplants instead of one big one. The reason behind this is that

each

> transplant will have it's own form of blood supply established and

working

> before they do another transplant. So this could take quite some time

or

> could just be the one surgery. None of the surgeons can agree on

this. The

> hole on the knee cap is getting bigger and now has holes of it it's

own on

> it. What a mess. There are still two rather big possibilities at

this

> time.. I could still possibly lose my leg or my life due to the

extent of

> the infection. Doctors are not dwelling too much on this possibility.

I

> have now been here officially 2 weeks and am not a very happy camper.

They

> have me on 24/7 morphine for the pain and then double the amount for

> breakdown pain. I sure do hope that this e-mail makes sense. I got

out of

> the room today by my daughters using the wheel chair and pushing me

thru the

> halls.

>

> Well, the plastic surgeon was just here and he now explains yet a

different

> plan. He really won't know what he is going to use until he gets in

there

> tomorrow. I will be the first case, so the morning is all his. My

ortho

> surgeon will also be there as the first attending surgeon. I will

probably

> have another week in the hospital and then go home to silll wait until

the

> infection is gone and they can put the TKR back. I still have a long

way to

> go with many bumps and hills ahead of me. I am still pretty scared

but am

> told that this is normal! I am no longer looking for the light at the

end of

> the tunnel!

>

> At least I should need no more than 2 more surgeries after this one.

This is

> still all so confusing. The only other surgery that could be

attempted is

> by going thru the back which is a very dangerous operation. So it

will just

> be left the way the surgery is done now. I have been trying to

explain this

> all to Ron with no avail!

>

> Hope this helps but I don't give any guarantees! Gonna go and spend

time

> with the family.

>

> Talk to you all soon.

>

> Debs

[Guest guest]

Debs -

You have been through just way too much, Sweetie. Understand that even when I

don't post that often, I read the updates, and of course, you always have a

special place in my prayers.

Much love and big hugs,

[Guest guest]

Debs,

You are in my prayers and thoughts today. I hope all goes well and you

will

soon be home with your family.

Lynn (MeMom)

Auntblabbie2000@... wrote:

> Hi all,

>

> Well, it is back to the OR tomorrow for more surgery. They will be doing the

> first of the skin/muscle transplant. They are doing several small

> transplants instead of one big one. The reason behind this is that each

> transplant will have it's own form of blood supply established and working

> before they do another transplant. So this could take quite some time or

> could just be the one surgery. None of the surgeons can agree on this. The

> hole on the knee cap is getting bigger and now has holes of it it's own on

> it. What a mess. There are still two rather big possibilities at this

> time.. I could still possibly lose my leg or my life due to the extent of

> the infection. Doctors are not dwelling too much on this possibility. I

> have now been here officially 2 weeks and am not a very happy camper. They

> have me on 24/7 morphine for the pain and then double the amount for

> breakdown pain. I sure do hope that this e-mail makes sense. I got out of

> the room today by my daughters using the wheel chair and pushing me thru the

> halls.

>

> Well, the plastic surgeon was just here and he now explains yet a different

> plan. He really won't know what he is going to use until he gets in there

> tomorrow. I will be the first case, so the morning is all his. My ortho

> surgeon will also be there as the first attending surgeon. I will probably

> have another week in the hospital and then go home to silll wait until the

> infection is gone and they can put the TKR back. I still have a long way to

> go with many bumps and hills ahead of me. I am still pretty scared but am

> told that this is normal! I am no longer looking for the light at the end of

> the tunnel!

>

> At least I should need no more than 2 more surgeries after this one. This is

> still all so confusing. The only other surgery that could be attempted is

> by going thru the back which is a very dangerous operation. So it will just

> be left the way the surgery is done now. I have been trying to explain this

> all to Ron with no avail!

>

> Hope this helps but I don't give any guarantees! Gonna go and spend time

> with the family.

>

> Talk to you all soon.

>

> Debs

>

> od

>

>

>

[Guest guest]

Debs,

I hope your surgery went well today. You are in my thoughts and prayers.

This nightmare has gone on long enough.

a

[Guest guest]

, I am so glad to hear that Tucker is doing great, and that you don't need to worry about those soft spots. Wow, 25 lbs, such a big boy. Congrats. Heidi, mom to Jeffry, local helmet, MN update hi all..well i have an update about tucker..he had his appt today..he weighed in at 25 lbs..not sure on height tho..she said that the 2nd doc band is out...and what i'm feeling is not the soft spots..just the way the bones fused together...sooo..she did say tho that she has been talking to alot of other doctors that are familiar with this since tucker is the only one she knows of having plagio and they think that his head may continue to round out...and i must say..i'm starting to notice that it is..hats aren't fitting and it just feels bigger and looks better also..who knows...however..she did get in contact with our birth to 3years program..its like ei...she is concerned about his speach as he doesn't say words much..not on his own..you have to say it about 20 times and then he'll say it once..sooo..we aren't sure when that will be..she looked at his jaw and said that tmj should be ruled out from plagio..and even if he does get it we'll never know cause both ty and i have it anyways...so..we will see...hopfully tomorrow i will have an update also on our fight against our insurance..the lawyer is to call..so keep your fingers crossed.. thanks brenda mom of tucker doc grad ____________________________________________________ IncrediMail - Email has finally evolved - Click Here For more plagio info

[Guest guest]

,

I'm sorry to hear Tucker isn't a candidate for a second band. I have

read of children continuing to round out, after graduating. So

hopefully that will happen w/Tucker.

Please let us know what EI has to say. They've done wonders with

. Good luck with your insurance. I hope you win!

> hi all..well i have an update about tucker..he had his appt

today..he

> weighed in at 25 lbs..not sure on height tho..she said that the 2nd

doc band

> is out...and what i'm feeling is not the soft spots..just the way

the bones

> fused together...sooo..she did say tho that she has been talking to

alot of

> other doctors that are familiar with this since tucker is the only

one she

> knows of having plagio and they think that his head may continue to

round

> out...and i must say..i'm starting to notice that it is..hats

aren't fitting

> and it just feels bigger and looks better also..who

knows...however..she did

> get in contact with our birth to 3years program..its like ei...she

is

> concerned about his speach as he doesn't say words much..not on his

own..you

> have to say it about 20 times and then he'll say it once..sooo..we

aren't

> sure when that will be..she looked at his jaw and said that tmj

should be

> ruled out from plagio..and even if he does get it we'll never know

cause

> both ty and i have it anyways...so..we will see...hopfully tomorrow

i will

> have an update also on our fight against our insurance..the lawyer

is to

> call..so keep your fingers crossed..

>

> thanks

>

> brenda

> mom of tucker

> doc grad

[Guest guest]

:

Thanks for the update. Sounds like you have a good pediatrician.

That's great you've seen some improvment post band! That's what we

all hope for.

I'm sure Tucker will catch up with his speech soon, he's not even 2

Debbie Abby's mom DOCGrad

MI

> hi all..well i have an update about tucker..he had his appt

today..he

> weighed in at 25 lbs..not sure on height tho..she said that the 2nd

doc band

> is out...and what i'm feeling is not the soft spots..just the way

the bones

> fused together...sooo..she did say tho that she has been talking to

alot of

> other doctors that are familiar with this since tucker is the only

one she

> knows of having plagio and they think that his head may continue to

round

> out...and i must say..i'm starting to notice that it is..hats

aren't fitting

> and it just feels bigger and looks better also..who

knows...however..she did

> get in contact with our birth to 3years program..its like ei...she

is

> concerned about his speach as he doesn't say words much..not on his

own..you

> have to say it about 20 times and then he'll say it once..sooo..we

aren't

> sure when that will be..she looked at his jaw and said that tmj

should be

> ruled out from plagio..and even if he does get it we'll never know

cause

> both ty and i have it anyways...so..we will see...hopfully tomorrow

i will

> have an update also on our fight against our insurance..the lawyer

is to

> call..so keep your fingers crossed..

>

> thanks

>

> brenda

> mom of tucker

> doc grad