Update

October 24, 2002

,

Thanks for the update on Tucker. I'm glad that you will not have to deal with a

second band. Good luck with the lawyer - I'll keep my fingers crossed.

Marci

October 25, 2002

-

Good luck with your insurance battle! And I thought we had been

battling this for a long time!

Tucker is the only plagio baby your dr has seen? I would think with

the Back to Sleep campaign, she would see them frequently. My ped

says she has had up to 6 patients in bands at the same time.

We saw our ped last week and I asked her about the positioning of

where you felt the soft spots and she said as you ped did about it

not being soft spots, but probably suture lines. There are 5 suture

lines, not 5 soft spots.

At least you don't have to get another band and Tucker is continuing

to round out on his own!

Our friends son started speech with EI at 2 yo. He is doing great

and talking up a storm now at 3 yo!

Fingers and toes crossed you will get good news from the atty

tomorrow!

Dane's mom DOC Grad

October 25, 2002

i better clarify a bit..when tucker was banded he was seeing a pediatric dr..but after banding we switched to a dif dr because the ped became a jerk..so we now have a family dr..she has never seen a plagio kid...we are a small town of 2500 so maybe that has something to do about it..however..she always askes me questions and stuff like that..and now she has even gone the to madison ct clinic to talk to them about things she should watch for and ect...sooo..thats good news..the clinic we went to for the doc band had lots of banded babies tho..1 was only 2 months old..that was the cutest little helmet i've ever seen!

brenda

-- Re: update

-Good luck with your insurance battle! And I thought we had been battling this for a long time! Tucker is the only plagio baby your dr has seen? I would think with the Back to Sleep campaign, she would see them frequently. My ped says she has had up to 6 patients in bands at the same time. We saw our ped last week and I asked her about the positioning of where you felt the soft spots and she said as you ped did about it not being soft spots, but probably suture lines. There are 5 suture lines, not 5 soft spots. At least you don't have to get another band and Tucker is continuing to round out on his own! Our friends son started speech with EI at 2 yo. He is doing great and talking up a storm now at 3 yo! Fingers and toes crossed you will get good news from the atty tomorrow!Dane's mom DOC GradFor more plagio info

November 2, 2002

Hi . It¹s good to hear that working is no problem and that you are

able to enjoy life. I hope your increase in meds allows you to feel even

better. Now that is on your case to get your eye appointment, I have

no doubt that you will be getting it done LOL!

Have a great weekend.

a

> Hi all,

> I haven't posted in awhile so I thought I give you an update on how things are

> going. I saw my dr yesturday (Thursday). He has upped my Planquenil to 2

> times per day. He had me reduce it for the last 6 months and I am doing

> worse. I was asked to rate my pain - I told them about a 5. He told me that

> was better than last time, however, I am having more problems and he is

> concerned that there may be some damage going on. He had me get a series of

> x-rays; both feet, both hands and my right hip. I will know next week if

> there is any change from the last set of x-rays. I also need to get my eyes

> checked since I am on Planquenil. I keep forgetting to make an appointment.

> Someone want to take on the job of reminding me to do this until I actually do

> it???? I have so many things going on that I keep forgetting to do this and

> it is important that I get this done.

>

> Things are going well otherwise. I am able to keep doing the things I enjoy

> and I don't have any problems working - it helps that the teacher I work with

> also has RA so he understands when I'm having a bad day.

>

> Hope you all have a wonderful weekend.

>

> in Minnesota

> linda@...

>

November 5, 2002

Hi ka,

We also had a few adjustments the first couple of weeks for the DOC band to fit just right- they usually tell you that they should fade within an hour, but like you, after 30 minutes, I would let CT know about certain areas to see if it should be a concern, and to make sure that it wasn't a comfort issue either (had the ear area trimmed because I felt it was rubbing too much- so keep an eye out for things that concern you about the fit in general- if it doesn't compromise treatment, CT will probably accomodate you). My son also had very noticeable facial asymmetry, and the DOC band corrected that in about the 2nd month he wore it. Our biggest indicator was to set him in front of a mirror, it was clearly working when we had a hard time spotting anything- and I am happy to say his ears are aligned and no more asymmetry. Good luck with your new journey and please keep us posted on little .

' Mom

November 5, 2002

Hi ka:

's in the Ballert Helmet right? Most orthotists say as long as

the red spots fade w/i one hour they are ok. You mention 's

don't fade w/i 30 mins, but they usually give em an hour to

completely fade. But it's best to have them looked at by the

orthotist.

Yes, irritation and trips back to the orthotist are common in the

beginning of treatment. It takes some time to get that perfect fit,

but you'll get it soon!

The bands DOOOOO help with assymetries. While the band " pushes " the

head back into it's normal round shape, the rounding will help push

out other assymetries, like the ears, etc.. Often assymetries are

the most difficult to correct, but they are certainly correctable!

Let us know what the orthotist says.

Debbie Abby's mom DOCGrad

GR MI

> Hi Everyone,

> I am just writing an update on (7 months today). He has had

the

> helmet for about 10 days but only wore it for about 7 of those

days.

> He seems to be tolerating it well. The only problem is that is

was

> giving him red marks that wouldn't go away within 30 minutes. So we

> have an appointment with the orthotist today. I didn't like not

> putting him in it but I couldn't because of the irritation. Is that

> typical at first? How do you all handle that when it happens

> (especially on a weekend)? I also have another question about the

> facial assymetry. Does the helmet actually help that? I was told by

> the cranio-facio specialist that it doesn't. But I figured you all

> would know better. Hope everyone is doing well. Thanks for all

of

> your support.

> ka mom to

> Michigan

November 5, 2002

>I also have another question about the

facial assymetry. Does the helmet actually help that? I was told by

the cranio-facio specialist that it doesn't.<

Hi ka,

I asked my ortho at CT the very same question. She told me yes, the

band will help correct asymmetry! It is common to have to have the

band adjust when you first get it. Please let us know what your ortho

says today.

Good luck,