Thanks Stan

[Guest guest]

I just watched the video of the car ride..It could very well be me and

one of my NT Grandkids. I missed it with . Watching the video I

remember baby , a very bright toddler, with great fine motor

skills, and an above average language skills. He did point to objects

and lable them, he did ask " What is that? " and he did sing the Barney

song. I would cut off my arms to know what is the final key to recover

him. This April marks the 7th year of bio-med for us. He is now 13.6,

and very loving, very smart in his head, but unable to trace a letter

on paper, or talk to me. sigh. And yet...the video does not bring me

to tears for what we lost and have not regained, it brings me to tears

for what you did gain, and what you will never suffer as your son

grows. It give me hope, and the promise that maybe other families will

never have a 13.6 year old that is like .....

Keep fighting, keep sharing, keep telling the story..every child

deserves the change to recover...and every parent needs to know every

road to travel to find the one that will bring their child home

again. Cheryl/smom