RE: S./

[Guest guest]

Valarie,

It sounds more seizure like to me, then vaso vagal.....I know what you

mean about the appts, etc....we are so used to all of this and if it was

routine, the Neuro's response doesn't match...

Focal seizures are seizures that affect one small area typically....

I'm wondering if it is more of a very severe migraine.....but that

doesn't really add up either...

Have they talked about a sleep deprived EEG or any other neuro

workup?????

CT's are a good start...but MRI's are more specific and maybe even and

MRA....maybe with your pressure being up for some reason you had a spasm

in one of the cerebral vessels which caused this and now that your BP is

normal, things aren't showing up....

I certainly can understand your fears as to the driving as it seems the

majority of this falls on us to do....Don't know what else to tell

you...Try to hang in there, but I'm sure you are freaked as anyone would

be. I'll try to rack my brain and check with my coworker who are old

ICU nurses as well and see if they have any other suggestions...

I'm a bill auditor now.....just working as a nurse on the side on

weekends here and there so that I can make up the difference in pay. I

work for the state and the pay is terrible.

Hang in there.

My work email is lschatz@...

if you need to get a hold of me during the day. I have a meeting

tomorrow at 11, but should be at my computer the remainder of the day.

S.

S.

I so appreciate all this info. This is such a great board for

everything!!

I have always had migraines. Started when I was 12, and the first

time, I did fall and shake. Since my older sister has epilepsy, this

is what they immediately thought. My first EEG showed I did. they

repeated it for whatever reason, said I didnt, and took me off the

meds. I continuedd to have migraines all thru my teens and complete

with the " aura " , sometimes trapped in a dark room for days. They

stopped, and came back when I was in a car wreck at 22 and whacked my

head, got a concussion. This lasted about 2 yrs.

Now they are off and on.

Both my sister and I have a mitral valve prolapse.

I also have asthma.

However, I did not feel short of breath, my chest didnt hurt, I mean,

I was seriously just sitting there talking. really. just.....normal.

they did an ekg, head ct, 15 minute eeg with the blinky lights.

Everything came back ok.

the only things that were questionable were that since I was in a drs

office, they did not have a glucometer at the ready, so the crash team

gave me a large amount of dextrose, and then, a few minutes later when

they got a glucometer, took my sugar, which was 95. One nurse

mentioned that usually, with a regular BS, the amount of dextrose they

gave me would have jumped my BS much higher than 95, so it must have

been low to begin with. They did take my BP as this all started, and

it was like, 160 over 100-----and I usually run about 90/60, somewhere

around there. The first time they ran my calcium it came up low, the

second time it looked ok.

I did see a neuro who is supposed to be the go-to guy around here. He

is still convinced this is the vv thing. He is positive, though I keep

telling him this isnt so, that I was just terrified in the hospital

and held my breath. He thinks I was afraid of the dr, nervous in the

hospital, etc, happens all the time, hes seen it before with people

visiting relatives and all and they get nervous.

BUT, Im not nervous in a hospital. With 4 kids with chronic medical

conditions, we are there all the time. Its like second home. We have

great drs, our pulmo, who we were seeing at that time, is just my

friend. Our nurses there and the dr and I are all on first name

basis. We're all buddies. Known each other 5 yrs. This was not a

frightening appt, just a regular followup--not anything to be nervous

about.

My daughter saw me, and said I turned white, then red, then white

again and my eyes were gone(rolled up).

Evidently I shook, and was unresponsive off and on for 2 hrs. They

also said I had multiple " focal seizures " where my eyes were open, but

fully dilated and I was unresponsive. I do not remember most of this

time, just very spotty of people smacking me and calling my name. I

was hypoglycemic as a child, but havent had a problem with that in

many yrs.

I dont know. I feel like Im just getting the easy answer, but

personally, with all the driving I do, I am feeling concerned this

could have happened with my kids in the car, and feel almost sick to

think of this. I know one thing, I am teaching them all how to operate

the cell phone.

Dont get me wrong=-----I DO NOT WANT TO HAVE A SEIZURE

DISORDER!!NONONO!! Ive watched my sister, two nephews, my niece all

struggle with this. Its terrible. I CANNOT be put on driving

restriction........I have no one to help me with all these appts and

things I need to do with the kids, drs appts, infusions, tests, etc.

I just want to know what happened, so I know my kids and I are safe:)

It was a scary experience, and I NEVER want to repeat that. Its horrid

to feel that out of control.

valarie