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Re: Digest Number 804

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  • 2 months later...
Guest guest

Mercy:

Where can I get a hold of Oral Aprixy for communication? My four year old is

autistic, non-verbal, uses some pecs, and we are following Dr. G's protocul

with the help of a doctor that I actually work for, and will see Dr. G in

California in October. It sounds good, and I wondered how I can get a hold

of that program?

Thanks,

Lavandowska (LAVJULIE@...)

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  • 2 weeks later...
Guest guest

Dear

The program is published by linguiSystems. It is called Easy does it for Apraxia

- preschool. It is written to be used by speech therapists. I got the manual and

the child's worksheets. If you have a speech pathologist who is willing to work

with you on apraxia, it will be excellent. If you are on your own, then it may

take you a couple of times to read the first few chapters but YOU can do it.

I photocopied the hand signals and enlarged them. Put them individually on

colored poster board and laminated them. When I started I made sure that the

targeted sound I was teaching was posted on his bulletin board in his room, on

the fridge in the kitchen, next to the phone in the den. Seeing it everywhere

reminded me to practice with him that particular sound all day long in spurts of

5-7 minutes. Once he learned to combine the sound with the visual hand signal, I

used the visual as a prompt while he produced the sound. After a while, he

mastered enough sounds to start reading. His reading is choppy but as long as he

understands what he is reading I don't really care. I would rather have that

over speech with no comprehension.

Nobody knows your child better than you. You know what he can and can't do. You

may want to order the program, get ready for it because the worksheets involve

cutting and so forth, then start after you see Dr. G. Your child will learn

faster and it will be less frustrating for you.

Hope this help!

Mercy ()

LAVJULIE@... wrote:

> Mercy:

> Where can I get a hold of Oral Aprixy for communication? My four year old is

> autistic, non-verbal, uses some pecs, and we are following Dr. G's protocul

> with the help of a doctor that I actually work for, and will see Dr. G in

> California in October. It sounds good, and I wondered how I can get a hold

> of that program?

> Thanks,

> Lavandowska (LAVJULIE@...)

>

> Responsibility for the content of this message lies strictly with

> the original author, and is not necessarily endorsed by or the

> opinion of the Research Institute.

>

>

>

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Guest guest

Mercy,

I'd like to know too!

Tina M. Hendrix

Cure2000@...

President, Coalition, Northern California

Neuro-Immune Dysfunction Syndromes

Autism Spectrum Disorder, ADD/ADHD, Learning Disorders, Hyperactivity, CFS,

etc.

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Guest guest

Tina

You want to know about what? I'm sorry my brain is fried as we get ready to

pack to go on vacation overseas. Write me!

Mercy

Cure2000@... wrote:

> Mercy,

> I'd like to know too!

>

> Tina M. Hendrix

> Cure2000@...

> President, Coalition, Northern California

> Neuro-Immune Dysfunction Syndromes

> Autism Spectrum Disorder, ADD/ADHD, Learning Disorders, Hyperactivity, CFS,

> etc.

>

>

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Guest guest

In a message dated 7/10/01 1:27:54 AM Pacific Daylight Time, psadka@...

writes:

> Tina

>

> You want to know about what? I'm sorry my brain is fried as we get ready to

> pack to go on vacation overseas. Write me!

>

> Mercy

>

>

>

Mercy,

The apraxia stuff, but you already answered it. Have a wonderful trip!

Tina

Tina M. Hendrix

Cure2000@...

President, Coalition, Northern California

Neuro-Immune Dysfunction Syndromes

Autism Spectrum Disorder, ADD/ADHD, Learning Disorders, Hyperactivity, CFS,

etc.

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  • 1 year later...

I totally agree that filling a patient with lots of fluid is not always good

trauma management. I would go by the patients circumstance and the amount of

blood loss. A mean BP is a good indicator when dealing with severe blood loss

Maintaining a mean BP of about 60 to 70 would be help reduce the chances of

blowing a clot. But would maintain renal function. The Kidneys are always the

first organ to close down, low urine output of less than 30mls an hour means

trouble. Always remember that a fall in blood pressure is a late sign of

blood loss.

A Merry Christmas and a Happy New year to All.

Fraser.

---------------------------------

With you can get a bigger mailbox -- choose a size that fits your

needs

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  • 1 year later...
Guest guest

thanks Sonny I seem to be over the emotional stuff but have a killer

headache still today I have no intension of existing in this kind of pain they

will either have to come off of this pain med ban or I will stop thretment and

Im gonna tell them so on the 1st, one good thing is that my counseling session

is today, I can not afford more drugs though Mike

There are 14 messages in this issue.

Topics in this digest:

1. all done. 12 days since last shot. whew...

From: " Graham "

2. Re: all done. 12 days since last shot. whew...

From: Sonny Du Sol

3. Re: Australians May Get Apology, But No Cash

From: " Mike "

4. Re: all done. 12 days since last shot. whew...

From: " Mike "

5. Re: all done. 12 days since last shot. whew...

From: " Marilyn Wilkinson "

6. Florida HCV Get Together

From: " philljr1952 "

7. Re: Therapies to Reduce Hepatic Fibrosis

From: " Suzy "

8. Re: Australians May Get Apology, But No Cash

From: " Suzy "

9. I thought this worthy of reading again...Chronic HCV--Historical Perspective

From: " Suzy "

10. Re: all done. 12 days since last shot. whew...

From: Jeanie

11. Re: Treatment

From: Jeanie

12. treatment Sides

From: " Mike "

13. Re: Australians May Get Apology, But No Cash

From: " Mike "

14. Re: treatment Sides

From: Sonny Du Sol

________________________________________________________________________

________________________________________________________________________

Message: 1

Date: Tue, 22 Jun 2004 16:12:31 -0000

From: " Graham "

Subject: all done. 12 days since last shot. whew...

The pegasys chapter of my life is finally over... Well, at least I

am not using the medicines anymore. The last two weeks have shown

me improvement in my mental acuity, motivation, emotional qualities

(empathy, etc)-- things that were simply gone for a while.

this has been one heck of a year. I started out with no sides, all

gung ho. Then I started getting lots of fatigue and general bone

pain. I stopped working at month 3. From then on was up and

down, to some of the lowest lows I have known, to some OK days. My

blood began to get a little haywire then too- White count 1800, ANC

700, H & H 30/11 so I started procrit and neupogen. I had increasing

pain, and ended up on around-the-clock opiods. There was a 2

month phase of regular vomiting, which was definitely the worst

thing about this treatment (because I felt like I was going to

die.) Sweats /hot flashes have been the other big discomfort (began

around the time I went to the pain patch) Then, depression...

crying spells-- days of tears with nothing to be sad about... I was

just a freakin mess. Mouth sores, ear problems, chest pain,

EXTreme Weakness (cant carry luggage, etc)... that about covers the

worst.

the good news? at each interval (3,6,10 month into tx) my PCR was

undetectable, using the most sensitive PCR analisys. My odds of

recovery improved as each of these came back, rising from the

roulette-like 45-50% odds to a strong 70% chance of sustained viral

response (read: cure)

Psychologically, I withdrew. I have two close friends that truly

came through and saved my life. a best friend prior to treatment

became distant, and we unfortuantly are not that close.... its

amazing how when you arent yourself, sometimes people stick with

you, and others want to wait for you to " come back. " I guess we

all deal differently. I was an active participant in the

groups.... Energy became SO sparse. I became paranoid about

things, feeling overwhelmed, just a general basket case. I saw a

psychiatrist through the duration of therapy bi-weekly [GODSEND.]

He was not only a sympathetic ear, but helped me manage my mental

side effects very aggressively and effectively.

My partner is not one to show emotional support very readily (don't

we pick our parents for our mates? Its true.) He's not

emotionally unavailable, but he is not very expressive, and gets

uncomfortable talking about feelings that are uncomfortable, etc.

AT one point I felt so lonely with this.... But, looking back, he

was truly there for me in the most important way. He took complete

care of " our " life.... financially, helping me get my medical needs

met, leaving work when I was having a breakdown, etc. It took

hindsight for me to realize I was completely carried through the

entire 11 months... what a gift- experience like that makes a

relationship something very special. the true meaning of

commitment. I learned to find my warm-fuzzy feeling support from

others (in my AA home group, etc)... Your partner sure cannot be

everything, all the time... if they are, it's not a healthy

relationship.

I am tempted to say I am grateful for the treatment. Things have

fallen into place that otherwise wouldn't have , like at least 2 of

my life-long dreams coming true.

If anyone is looking ahead to starting treatment, please keep an

open mind.... the odds are really not bad. It is not easy, but, you

wont be exempt from the " no-pain, no-gain " saying. And, I don't

just mean physical pain/gain.... I know I am a different person, and

better for it (not to mention my healthy liver.)

I was so happy the week after my shot, I joined the gym, started

running around town, errands, starbucks, etc.... Then I had a

serious crash (energy, sweating, fatigue, pain)... So, I am trying

to take it easy while I get better. I tend to be black-n-white...

Im either Sick or Well... I just had bloodwork yesterday, and my ANC

is 700, which is the lowest in a year. My H & H are still anemic,

32/11- so, I am definitely not physically ready to go nuts with 100%

speed! It was a wake up call. I re-started procrit and neupogen

yesterday... I feel better already.

I am going to have to take it slow, walking a bit each day, etc....

BTW, I went from 203 lbs to 183 lbs on treatment (in the last 6

months.) This is my " ideal " weight, and what I weighed in high

school. so, there is a glimmer of hope for some of you like me

who just hate the " diet and exercise " answer. Now I have to keep

it off.... that will be the acid test.

Love to all, especially those here who walked me through this,

PeachyPam and Suzy to name a couple.

Graham

________________________________________________________________________

________________________________________________________________________

Message: 2

Date: Tue, 22 Jun 2004 09:43:52 -0700 (PDT)

From: Sonny Du Sol

Subject: Re: all done. 12 days since last shot. whew...

Great news.

Do take it easy...it seems it took me a couple of months to detoxify and get

back into a more normal lifestyle.

Graham wrote:

The pegasys chapter of my life is finally over... Well, at least I

am not using the medicines anymore. The last two weeks have shown

me improvement in my mental acuity, motivation, emotional qualities

(empathy, etc)-- things that were simply gone for a while.

this has been one heck of a year. I started out with no sides, all

gung ho. Then I started getting lots of fatigue and general bone

pain. I stopped working at month 3. From then on was up and

down, to some of the lowest lows I have known, to some OK days. My

blood began to get a little haywire then too- White count 1800, ANC

700, H & H 30/11 so I started procrit and neupogen. I had increasing

pain, and ended up on around-the-clock opiods. There was a 2

month phase of regular vomiting, which was definitely the worst

thing about this treatment (because I felt like I was going to

die.) Sweats /hot flashes have been the other big discomfort (began

around the time I went to the pain patch) Then, depression...

crying spells-- days of tears with nothing to be sad about... I was

just a freakin mess. Mouth sores, ear problems, chest pain,

EXTreme Weakness (cant carry luggage, etc)... that about covers the

worst.

the good news? at each interval (3,6,10 month into tx) my PCR was

undetectable, using the most sensitive PCR analisys. My odds of

recovery improved as each of these came back, rising from the

roulette-like 45-50% odds to a strong 70% chance of sustained viral

response (read: cure)

Psychologically, I withdrew. I have two close friends that truly

came through and saved my life. a best friend prior to treatment

became distant, and we unfortuantly are not that close.... its

amazing how when you arent yourself, sometimes people stick with

you, and others want to wait for you to " come back. " I guess we

all deal differently. I was an active participant in the

groups.... Energy became SO sparse. I became paranoid about

things, feeling overwhelmed, just a general basket case. I saw a

psychiatrist through the duration of therapy bi-weekly [GODSEND.]

He was not only a sympathetic ear, but helped me manage my mental

side effects very aggressively and effectively.

My partner is not one to show emotional support very readily (don't

we pick our parents for our mates? Its true.) He's not

emotionally unavailable, but he is not very expressive, and gets

uncomfortable talking about feelings that are uncomfortable, etc.

AT one point I felt so lonely with this.... But, looking back, he

was truly there for me in the most important way. He took complete

care of " our " life.... financially, helping me get my medical needs

met, leaving work when I was having a breakdown, etc. It took

hindsight for me to realize I was completely carried through the

entire 11 months... what a gift- experience like that makes a

relationship something very special. the true meaning of

commitment. I learned to find my warm-fuzzy feeling support from

others (in my AA home group, etc)... Your partner sure cannot be

everything, all the time... if they are, it's not a healthy

relationship.

I am tempted to say I am grateful for the treatment. Things have

fallen into place that otherwise wouldn't have , like at least 2 of

my life-long dreams coming true.

If anyone is looking ahead to starting treatment, please keep an

open mind.... the odds are really not bad. It is not easy, but, you

wont be exempt from the " no-pain, no-gain " saying. And, I don't

just mean physical pain/gain.... I know I am a different person, and

better for it (not to mention my healthy liver.)

I was so happy the week after my shot, I joined the gym, started

running around town, errands, starbucks, etc.... Then I had a

serious crash (energy, sweating, fatigue, pain)... So, I am trying

to take it easy while I get better. I tend to be black-n-white...

Im either Sick or Well... I just had bloodwork yesterday, and my ANC

is 700, which is the lowest in a year. My H & H are still anemic,

32/11- so, I am definitely not physically ready to go nuts with 100%

speed! It was a wake up call. I re-started procrit and neupogen

yesterday... I feel better already.

I am going to have to take it slow, walking a bit each day, etc....

BTW, I went from 203 lbs to 183 lbs on treatment (in the last 6

months.) This is my " ideal " weight, and what I weighed in high

school. so, there is a glimmer of hope for some of you like me

who just hate the " diet and exercise " answer. Now I have to keep

it off.... that will be the acid test.

Love to all, especially those here who walked me through this,

PeachyPam and Suzy to name a couple.

Graham

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  • 6 months later...

Message: 5

Date: Mon, 03 Jan 2005 15:30:52 -0500

From: -= ß =- <baudecb1@...>

Subject: Re: Deodorent & After Shave

you wrote:

I noted your commercial site.

When you say " recipes " , wha tdo you have in mind?

A complete product? (alcohol based?)

Just the Perfume oil?

All Natural?

Nature Identical?

Fragrance Levels?

-= ß =-

Hello Thank you for your reply.I am trying to learn about all Natural

products. I don't know if I understand what my site has to do with it but I

hope to make all naturals products to offer starting with deodorant and

after shave. At this time I am not trying to make it to sell, not yet that

is. I haven't learn to make or test A N products yet. What I want is to make

and try them on my self and my DH. I'm far from being a pro. I'm here to

learn and may be some day help someone that needs my help. One thing that

made me happy to come to this list is because of A N. If I can learn I may

be able to keep Alzheimer's due to aluminum out of our lives. Having love

ones pass away that way isn't a good feeling and I don't want to go like

that, know that I have been told that this is why our parents died. If this

isn't what you are asking please let me know.

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  • 7 months later...

Night eating syndrome and sleep-related eating disorder are very serious

diagnoses. At times they can be indications that the nervous system is

beginning to deteriorate. It should be noted that one of the categories of

medications used to treat sleep disorders is the same used to treat

Parkinson's disease--and that certain people who start out with sleep

disorders actually end up with Parkinson's disease. That is not a

coincidence.

65% of the women answering my website survey on PCOS report some kind of

sleep disorder. I am not just referring to sleep apnea, but also restless

legs, insomnia, sleepwalking, and night eating.

If you are more interested in this topic, my PCOS home study kit has two

lectures on the topic--focusing on the diagnosis and treatment.

Regards,

Monika M. Woolsey, MS, RD

http://www.afterthediet.com

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  • 7 months later...
Guest guest

what are the broccoli sprouts supposed to taste like?

Are they kinda spicy like a raddish?

Just wondering...

s

Sherri Tutkus RN, BSN, NAAC

Nutraceutical Anti-Aging Consultant

www.RN4u2.com (Nutraceuticals, Natural Medicine Database)

www.RN4u2.Isotonix.com (Drink Your Vitamins)

www.RN4u2.transitionslife.com (Realistic Weight Management)

www.TutkusTreasures.com (endless shopping experience)

www.marketamerica.com America's Most Powerful Business Opportunity

Partnered with:

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, Reikki Master - www.Focusonthelight.unfranchise.com

Charlie Malis, MD - www.drmalis.unfranchise.com

Leslee Quick, DC - www.quickchiro.unfranchise.com

Delany, MD - www.drdelany.com

Buckley- www.BalancedChi.org

Re: Eating Raw

Hello,

I have a 1 and 2 year old and I am trying to become a vegan but I am a long

way from it. My kids still eat organic dairy products. But no meat, eggs, or

chicken. It is hard to change after living on the Standard American Diet for

so long. DO you give your kids almond milk or what kind of milk do they

drink? I am thinking about buying alissa cohen's book after your

recommendation.

>>

>> Hi,

>>

>> As a family with 3 kids (aged 5,3, 1) we have been on vegan diet for

>6

>> years and feeling good. A couple of weeks ago we purchased a copy of

>> Alissa Cohen's book on raw food and her related dvd. The info

>> contained has literally changed our lives.

>>

>> We are now only eating raw food and our energy levels have soared,

>we

>> are all sleeping better and our skins improved too.

>>

>> Go to www.alissacohen.com and you can read all about her work.

>>

>

>

>

>

>

>

>

>

>

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Guest guest

To the group moderator:

Am I mistaken or are solicitationsfor biz opps and mlm pyramids

restricted from this group?

Please examine the links in this post, below.Looks like spam to me.

Thanks!

> >>

> >> Hi,

> >>

> >> As a family with 3 kids (aged 5,3, 1) we have been on vegan diet for

> >6

> >> years and feeling good. A couple of weeks ago we purchased a copy of

> >> Alissa Cohen's book on raw food and her related dvd. The info

> >> contained has literally changed our lives.

> >>

> >> We are now only eating raw food and our energy levels have soared,

> >we

> >> are all sleeping better and our skins improved too.

> >>

> >> Go to www.alissacohen.com and you can read all about her work.

> >>

> >

> >

> >

> >

> >

> >

> >

> >

> >

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