Guest guest Posted May 25, 2001 Report Share Posted May 25, 2001 Hey Kathy B. in Chicago, I'm not sure what Dr. G. does for that, but my daughter and i have horrible immune systems and we both take Kutapressin injections and she takes gamma globulin injections IM. That works well for us. Tina Tina M. Hendrix Cure2000@... President, Coalition, Northern California Neuro-Immune Dysfunction Syndromes Autism Spectrum Disorder, ADD/ADHD, Learning Disorders, Hyperactivity, CFS, etc. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2001 Report Share Posted May 25, 2001 AT the DAN Conference, there was talk of using Transfer Factor to build up NKC's and the immunce system in general. I ordered some for my son. In a message dated 5/25/2001 11:10:56 AM Eastern Daylight Time, liamcbuckley@... writes: << i!! We just had our repeat bloodwork back from Dr. G after a year of treatment and we had some good news and bad news. The good news is that our alpha-inferon came down from 197 to 72. Is alpha-interferon a measure of inflammation, infection or for the immune system in general? That was the good news. The bad news is that we have almost no natural T killer cells at all. Does anyone know what Dr. G does for this? I was completely floored and am now completely convinced of my son's horrible immune system. Please help!! Thanks!! Kathy B ( In Chicago) >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2001 Report Share Posted May 25, 2001 Hi , How did you order it? THanks.. KathyB Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2001 Report Share Posted May 25, 2001 Hi TIna, Who prescribes the gamma globluin for you? I really think the Kutapressin is a great drug. Colin was on it for 3 months every day and we saw a real improvement with him. We are now at every other day and I would like to go back to every day. I am really thinking the Kutapressin may be the medicine that has helped bring our alpha inteferon down. We also don't have any IGE. Wow, this whole thing is so mind boggling!! I guess, if there is something wrong, then we at least have something to fix and maybe Colin will get better and better! I am hopeful! Thanks for your response. Kathy B (Chicago) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2001 Report Share Posted May 26, 2001 Dear Kathy B, You have given a beautiful example as to why the protocol at this time takes 3-4 years and why some children have to be on maintenance therapy after finishing the protocol. I might also add this is also why the other therapies just do not do the job. The immune system is complex and it takes years to normalize. What you can do is to be vigilant about reducing triggers and sticking with the protocol. All of this may become more rapid when we have some good immune modulators to work with but unfortunately that is not yet the case! Kathy R - Northern New York Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2001 Report Share Posted May 26, 2001 , What is in the transfer factor? Is it a pure substance? Does it stimulate the immune system? How does it work? Kathy R - Northern New York Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2001 Report Share Posted May 26, 2001 hello everyone., i am mother of an autistic kid who is 3 years old. He is slightly affected, and not hyperactive, not aggressive. Only problem is lack of communication and socialization. what drugs cani use for him. Doctors here are not suggestingme and inturn saying that only interventions will workout. His blood tests also normal. please suggest me if anyone having any idea. swapna --- liamcbuckley@... wrote: > Hi TIna, > Who prescribes the gamma globluin for you? I really > think the Kutapressin is > a great drug. Colin was on it for 3 months every > day and we saw a real > improvement with him. We are now at every other day > and I would like to go > back to every day. I am really thinking the > Kutapressin may be the medicine > that has helped bring our alpha inteferon down. We > also don't have any IGE. > Wow, this whole thing is so mind boggling!! I > guess, if there is something > wrong, then we at least have something to fix and > maybe Colin will get better > and better! I am hopeful! Thanks for your > response. Kathy B (Chicago) > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2001 Report Share Posted May 27, 2001 In a message dated 5/26/2001 10:04:38 AM Eastern Daylight Time, JOSKAT95@... writes: << , What is in the transfer factor? Is it a pure substance? Does it stimulate the immune system? How does it work? Kathy R - Northern New York >> I found out about it at the DAN Conference. All I know is that it's derived from colostrum, seems like a concentrated form of the immune fighters in it. On the charts they had it showed that colostrum had about a 23% improvement to the immune system, echinechea 34%, transfer factor 100 something percent and transfer factor plus had a 243% improvement in nkc's. I'm still finding out more about it. I can let you know what I find out if you'd like. I also have the number for the distributer if you want. I ordered some but have not received it yet. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2001 Report Share Posted May 27, 2001 Dr Goldberg has alot of information on TF on his website. If you go into the conference area and search on Transfer factor, there are 17 messages. I would read what he has to say about it. Good luck and God bless. Suzanne From: JOSKAT95@... Reply- Subject: Re: Natural Killer Cells-we don't have many at all!! Date: Sat, 26 May 2001 10:03:11 EDT , What is in the transfer factor? Is it a pure substance? Does it stimulate the immune system? How does it work? Kathy R - Northern New York Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2001 Report Share Posted May 28, 2001 I have been using Transfer Factor for about 2 years and having wonderful success for a non toxic, 100% safe, no side effects, and all natural this is absolutely the best product anywhere on the market. It has helped with many of our problems for an IMMUNE MODULATING product to control the overactive, underactive immune system. Does not matter which you have it will modulate it. Re: Natural Killer Cells-we don't have many at all!! > AT the DAN Conference, there was talk of using Transfer Factor to build up > NKC's and the immunce system in general. I ordered some for my son. > > > > In a message dated 5/25/2001 11:10:56 AM Eastern Daylight Time, > liamcbuckley@... writes: > > << i!! > We just had our repeat bloodwork back from Dr. G after a year of treatment > and we had some good news and bad news. The good news is that our > alpha-inferon came down from 197 to 72. Is alpha-interferon a measure of > inflammation, infection or for the immune system in general? That was the > good news. The bad news is that we have almost no natural T killer cells at > all. Does anyone know what Dr. G does for this? I was completely floored > and am now completely convinced of my son's horrible immune system. Please > help!! Thanks!! Kathy B ( In Chicago) > >> > > Responsibility for the content of this message lies strictly with > the original author, and is not necessarily endorsed by or the > opinion of the Research Institute. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2001 Report Share Posted May 28, 2001 Tina, Is there a coalition for in Southern California? Who orders your Kutapressin?? I have been to see Dr. Galpin next door to Dr. G. and my son just had his first appt. with Dr. G. I was on Kutapressin for 6 months or less in 1989 and it helped tremendously. The protocol at that time was a limited period of time to use the product. I have and so does my son who is 16. Two sisters severely involved with the illness and two other sons were not diagnosed officially but probably have it too. in Orange County CA _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2001 Report Share Posted May 28, 2001 I woul like to say that I have been trying to give you all information about Transfer Factor for over a year ... noone would listen to me ... now apparently Dr. Goldberg who would never respond to me has decided that I knew about these products and were all they claimed to be with the medical research and science behind them ... I wish someone would listen when post are made and do the research even if Dr. Goldberg does not recommend it at that time...It could simply be because he has not heard of it or had the time to research yet. And I have taken nasty emails from my post simply because I have done my research and I have been using Transfer Factor or over 2 years and trying to help other ... I do not understand why so many won't listen unless a Doctor says do it !!!! Could someone please explain to me why that is? Re: Natural Killer Cells-we don't have many at all!! > In a message dated 5/26/2001 10:04:38 AM Eastern Daylight Time, > JOSKAT95@... writes: > > << > , > What is in the transfer factor? Is it a pure substance? Does it stimulate > the immune system? How does it work? Kathy R - Northern New York > >> > > I found out about it at the DAN Conference. All I know is that it's derived > from colostrum, seems like a concentrated form of the immune fighters in it. > On the charts they had it showed that colostrum had about a 23% improvement > to the immune system, echinechea 34%, transfer factor 100 something percent > and transfer factor plus had a 243% improvement in nkc's. I'm still finding > out more about it. I can let you know what I find out if you'd like. I also > have the number for the distributer if you want. I ordered some but have not > received it yet. > > > Responsibility for the content of this message lies strictly with > the original author, and is not necessarily endorsed by or the > opinion of the Research Institute. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2001 Report Share Posted May 29, 2001 How can I find out if my son will benefit from this and I do I order it. Thanks for the info. --- Lake260@... wrote: > In a message dated 5/26/2001 10:04:38 AM Eastern > Daylight Time, > JOSKAT95@... writes: > > << > , > What is in the transfer factor? Is it a pure > substance? Does it stimulate > the immune system? How does it work? Kathy R - > Northern New York > >> > > I found out about it at the DAN Conference. All I > know is that it's derived > from colostrum, seems like a concentrated form of > the immune fighters in it. > On the charts they had it showed that colostrum had > about a 23% improvement > to the immune system, echinechea 34%, transfer > factor 100 something percent > and transfer factor plus had a 243% improvement in > nkc's. I'm still finding > out more about it. I can let you know what I find > out if you'd like. I also > have the number for the distributer if you want. I > ordered some but have not > received it yet. > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2001 Report Share Posted June 1, 2001 I've been hearing alot and reading up on this myself the past couple of weeks. In your post, it sounded like you had heard Dr. G. say that this is alright after all. Is that correct? I'm not bashing, just interested in giving this to my son too. My son has any OVER active nkc count, so will this " cool it down " so to speak? I found some that is made for kids, it's in gummie bear form I believe, and has some other great stuff in it to that my son needs very badly. Where do you get yours and what form does it come in? Thanks in advance. Sincerely, Diane B. > I woul like to say that I have been trying to give you all information about > Transfer Factor for over a year ... noone would listen to me ... now > apparently Dr. Goldberg who would never respond to me has decided that I > knew about these products and were all they claimed to be with the medical > research and science behind them ... I wish someone would listen when post > are made and do the research even if Dr. Goldberg does not recommend it at > that time...It could simply be because he has not heard of it or had the > time to research yet. And I have taken nasty emails from my post simply > because I have done my research and I have been using Transfer Factor or > over 2 years and trying to help other ... I do not understand why so many > won't listen unless a Doctor says do it !!!! Could someone please explain > to me why that is? > > > Re: Natural Killer Cells-we don't have many at all!! > > > > In a message dated 5/26/2001 10:04:38 AM Eastern Daylight Time, > > JOSKAT95@a... writes: > > > > << > > , > > What is in the transfer factor? Is it a pure substance? Does it > stimulate > > the immune system? How does it work? Kathy R - Northern New York > > >> > > > > I found out about it at the DAN Conference. All I know is that it's > derived > > from colostrum, seems like a concentrated form of the immune fighters in > it. > > On the charts they had it showed that colostrum had about a 23% > improvement > > to the immune system, echinechea 34%, transfer factor 100 something > percent > > and transfer factor plus had a 243% improvement in nkc's. I'm still > finding > > out more about it. I can let you know what I find out if you'd like. I > also > > have the number for the distributer if you want. I ordered some but have > not > > received it yet. > > > > > > Responsibility for the content of this message lies strictly with > > the original author, and is not necessarily endorsed by or the > > opinion of the Research Institute. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2001 Report Share Posted June 1, 2001 Hi! I just want to say thank you to you all for all of the information! We have our phone consult in a week and a half and I will talk with Dr. G about it then. Thank you! Kathy B Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2001 Report Share Posted June 1, 2001 I thought that this post gave the message that Dr. Goldberg is now endorsing the use of Transfer Factor. That is not the case. While he is interested in its contents and processing he still cautions against it on the basis of triggering the wrong things in the immune system. Remember, much of what he advises has to do with eliminating rather than adding things to the system. Re: Natural Killer Cells-we don't have many at all!! > > > > In a message dated 5/26/2001 10:04:38 AM Eastern Daylight Time, > > JOSKAT95@... writes: > > > > << > > , > > What is in the transfer factor? Is it a pure substance? Does it > stimulate > > the immune system? How does it work? Kathy R - Northern New York > > >> > > > > I found out about it at the DAN Conference. All I know is that it's > derived > > from colostrum, seems like a concentrated form of the immune fighters in > it. > > On the charts they had it showed that colostrum had about a 23% > improvement > > to the immune system, echinechea 34%, transfer factor 100 something > percent > > and transfer factor plus had a 243% improvement in nkc's. I'm still > finding > > out more about it. I can let you know what I find out if you'd like. I > also > > have the number for the distributer if you want. I ordered some but have > not > > received it yet. > > > > > > Responsibility for the content of this message lies strictly with > > the original author, and is not necessarily endorsed by or the > > opinion of the Research Institute. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2001 Report Share Posted June 1, 2001 Hi > Tina, Is there a coalition for in Southern California? Yes, contact Marc Share: marcs@... Who orders your > Kutapressin?? My pharmacy does. Safeway Pharmacy, Calistoga Rd., Santa , CA. If you call them they will tell you who their supplier is: (707)539-2129 I have been to see Dr. Galpin next door to Dr. G. and my son > just had his first appt. with Dr. G. I was on Kutapressin for 6 months or > less in 1989 and it helped tremendously. The protocol at that time was a > limited period of time to use the product. > > My ASD daughter has been using it successfully for three years, dosage > slowly decreasing. I have and so does my son > who is 16. Two sisters severely involved with the illness and two other sons > were not diagnosed officially but probably have it too. Kutapressin as well as other aspects of Dr. G's protocol have helped me immensely as well. Get in contact with the chapter in So. Cal. They are supportive, knowlegable folks. There is also a possibility of a conf. this fall in So. CAL. > > in Orange County CA > Tina M. Hendrix Cure2000@... President, Coalition, Northern California Neuro-Immune Dysfunction Syndromes Autism Spectrum Disorder, ADD/ADHD, Learning Disorders, Hyperactivity, CFS, etc. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2001 Report Share Posted June 2, 2001 That is great that you are having great success and that you think it is due to transfer factor. Your opinion, however valid, is anecdotal and not a scientific study. No one has a right to insult anything that you post however, everyone has the right to question in a polite, fair way. People in the health care fields are given credibility for medical decision making because they have the education, training, and experience that lay people do not have. If we have a plumbing problem we call a plumber, if I want a new telephone line I call the telephone company. We all go to specialists! I would not go to my dentist, who is very good, for a hair cut. Why would I take information from a stranger on the web and apply it to the health and well being of my little girl? When people bring their kids to me they are not bringing them because I am a nice person, but because I have a body of knowledge, and area of expertise, consisting of years of education and thirty years of experience. I would hope that my opinion in the area of my expertise has more credence than someone who does not have my credentials. This does not mean that a person without a healthcare background cannot do research and make some observations and draw some brilliant conclusions but is this someone who should be providing healthcare information? The value of education sometimes is to make you learn how little you really do know. Knowledge does a times equate to power but that power has to be handled very prudently. Kathy R -Northern New York Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 2, 2001 Report Share Posted June 2, 2001 In a message dated 6/2/01 10:39:22 AM Central Daylight Time, JOSKAT95@... writes: > People in > the health care fields are given credibility for medical decision making > because they have the education, training, and experience that lay people > do > not have. Kathy, This may be true. However, I can't tell you how many times I've been misled by the " educated " . The doctor who originally diagnosed my son would not label him with anything, but only told me there was something " really wrong " and I should look into special schools. Where was I supposed to go with that? Most often, I walk into the local doctors office and I end up being the one telling the doctor about the research, science, etc that I have read/heard about. It is very discouraging that most docs are not up to date about what's out there for our kids. My kids primary care physician told me that he believes the increase in " autism " is due to better diagnosis......(thankfully, in spite of this, he has been very supportive of working with Dr G (ordering tests, etc), and consulted with him about what Dr G believes is going on with my kids and how Dr G is treating them). I think, as parents, it's our job to get as much information as possible. We are the ones who ultimately have to decide which direction to take with these kids, and we have to live with the results. Sharon P.S. It was actually the internet that led me to Dr Goldberg. I spent six months reading over his website and checking out the facts before I made the decision to make an appointment for my child. Sharing information is a good thing, but you are right, it is our responsibility to check it out before applying it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2001 Report Share Posted June 3, 2001 I am new to this website, so I feel silly asking, but can some one explain to me what stands for and is all about? --- Cure2000@... wrote: > > Hi > > > Tina, Is there a coalition for in Southern > California? > > Yes, contact Marc Share: marcs@... > > Who orders your > > Kutapressin?? > > My pharmacy does. Safeway Pharmacy, Calistoga Rd., > Santa , CA. If you > call them they will tell you who their supplier is: > (707)539-2129 > > I have been to see Dr. Galpin next door to Dr. G. > and my son > > just had his first appt. with Dr. G. I was on > Kutapressin for 6 months or > > less in 1989 and it helped tremendously. The > protocol at that time was a > > limited period of time to use the product. > > > > My ASD daughter has been using it successfully for > three years, dosage > > slowly decreasing. > > I have and so does my son > > who is 16. Two sisters severely involved with the > illness and two other sons > > were not diagnosed officially but probably have it > too. > > Kutapressin as well as other aspects of Dr. G's > protocol have helped me > immensely as well. Get in contact with the > chapter in So. Cal. They > are supportive, knowlegable folks. There is also a > possibility of a > conf. this fall in So. CAL. > > > > > in Orange County CA > > > > > Tina M. Hendrix > Cure2000@... > President, Coalition, Northern California > Neuro-Immune Dysfunction Syndromes > Autism Spectrum Disorder, ADD/ADHD, Learning > Disorders, Hyperactivity, CFS, > etc. > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2001 Report Share Posted June 3, 2001 Tina, Thank you so much for the information on Kutapressin and the Southern California Coalition. I have a very important question that I need to find an answer to ASAP. Do you know of any resource- especially comments written by Dr. G. re: Stimulants for children? I read his article on Ritalin and the information for ADD/ADHD on the web site for Dr. G. is under construction. I need to know in particular about the effect of amphetamines such as Dexedrine on the brain and resulting behavior and risks vs any benefits. Thank you so much for your help. _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2001 Report Share Posted June 4, 2001 Sharon, I don''t disagree with you. We are all people with the peculiarities that go with that! Narrow mindedness, closed mind, fear, prejudice...All of the blocks to communication that make life so hard. Many of the practitioners who are difficult to work with might be amenable to new ideas if we had the time to really sit down and explain it but the present health care system simply does not allow for that in my experience. I really still think that many of the people that go into health care go into it because they do want to help people. Yes, we as parents have to do research and I think that includes coming up with health care providers that are supportive. It is sometimes not easy but everyone who is successful paves the way for another family! Remember the physician who treats himself has a fool for a patient. There are many people in the organization who are self educated lay people who have a fantastic command of a difficult body of knowledge. There are also people on this LISTSERV who don't, but this does not stop them from dispensing medical advice! This really disturbs me. Again, just because someone thinks that a product is helping their child does not mean that a. it really is or that b. it would help someone else's and c. it won't harm someone else's. Kathy -Northern New York Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2001 Report Share Posted June 4, 2001 In a message dated 6/4/01 10:19:26 AM Central Daylight Time, JOSKAT95@... writes: > Sharon, > I don''t disagree with you. We are all people with the peculiarities that > go > with that! Narrow mindedness, closed mind, fear, prejudice...All of the > blocks to communication that make life so hard. Many of the practitioners > who > are difficult to work with might be amenable to new ideas if we had the > time > to really sit down and explain it but the present health care system simply > does not allow for that in my experience. I really still think that many of > the people that go into health care go into it because they do want to help > people. Yes, we as parents have to do research and I think that includes > coming up with health care providers that are supportive. It is sometimes > not > easy but everyone who is successful paves the way for another family! > Remember the physician who treats himself has a fool for a patient. There > are > many people in the organization who are self educated lay people who > have a fantastic command of a difficult body of knowledge. There are also > people on this LISTSERV who don't, but this does not stop them from > dispensing medical advice! This really disturbs me. Again, just because > someone thinks that a product is helping their child does not mean that a. > it > really is or that b. it would help someone else's and c. it won't harm > someone else's. Kathy -Northern New York > > Kathy, Totally agreed. I just wouldn't want anybody to feel afraid of sharing experiences. It is definitely our responsibility to read between the lines and check it out. I hope that we are all intelligent enough to realize that internet advice is just that. The internet is not my physician, but it has been a good source of information and leads (look at how I found out about ). I do agree with you about some of the advice Kathy. Unfortunately, this is a disease with a million " miracle " cures. I personally would just like a magic pill please :-) Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2001 Report Share Posted June 6, 2001 , I wish i knew more on his opinion of Ritalin & Stimulants in relation to patients, but i don't. You can try e-mailing him or get into the Tues. nite chats. office@... (818)343-1010. Does anyone else on this list have info for ? Tina In a message dated 6/2/01 6:34:23 PM Pacific Daylight Time, lauwva@... writes: > Tina, Thank you so much for the information on Kutapressin and the Southern > California Coalition. I have a very important question that I need to > find an answer to ASAP. Do you know of any resource- especially comments > written by Dr. G. re: Stimulants for children? I read his article on > Ritalin and the information for ADD/ADHD on the web site for Dr. G. is > under > construction. I need to know in particular about the effect of > amphetamines > such as Dexedrine on the brain and resulting behavior and risks vs any > benefits. > > Thank you so much for your help. > > > _________________________________________________________________ > Tina M. Hendrix Cure2000@... President, Coalition, Northern California Neuro-Immune Dysfunction Syndromes Autism Spectrum Disorder, ADD/ADHD, Learning Disorders, Hyperactivity, CFS, etc. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2001 Report Share Posted June 6, 2001 Neuro Immune Dysfunction Syndromes. The place to get the 411 on is www..net and www.neuroimmunedr.com In a message dated 6/3/01 6:58:35 PM Pacific Daylight Time, sharnitap@... writes: > I am new to this website, so I feel silly asking, but > can some one explain to me what stands for and is > all about? > > > > Tina M. Hendrix Cure2000@... President, Coalition, Northern California Neuro-Immune Dysfunction Syndromes Autism Spectrum Disorder, ADD/ADHD, Learning Disorders, Hyperactivity, CFS, etc. Quote Link to comment Share on other sites More sharing options...
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