Guest guest Posted August 21, 2007 Report Share Posted August 21, 2007 There are many different home care companies that provide SCIG services....some offer more benefits then others. We went straight to SCIG....we did daily infusions for 3 days then went to weekly. Typically an IVIG pt will recieve their IVIG dose, then the following week recieve 1/4 of that dose SQ...then go weekly from there. Some companies send nurses to train you, others I have heard only send a DVD...Some physicians state you can push the meds, others use a syringe pump. There is only one product that has current FDA approval for sc use, but many other products are utilized " off label " so to speak. Is your physician supportive, what about your insurance company. Some home care companies will get all the authorizations that you need, etc. SCIG has been a wonderful experience for us....but we were well prepared for the procedure. The Immune Deficiency Foundation may be able to help you identify home care companies in your area to assist you in the process. At the IDF conference there were a few companies represented there. I would go to www.primaryimmune.org and contact them. Hope that helps... S. Mom to , PID, not otherwise specified...? NEMO deficient.. subQ Hello to everyone. I haven't been posting a whole lot, usually that means everyone is well. Three of us in my house have cvid. I want to switch myself and my almost 6 year old to subQ. Is there anyone who can give me any info on that type of treatment? Thanks so much. Dawn Souza mother to 6 cvid, autism, acid reflux and adhd, cvid, anxiety Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2007 Report Share Posted August 28, 2007 sassykay59@... wrote: > > Has anyone had any luck with > increased energy with SubQ?? That is one problem that lingers. YEAH!!!!! Yes, Katy found that she was much more energetic -- but we didn't notice that for a couple of months. Then she realized that she was had a lot more energy than she had had on IVIG. Aren't you glad you fought for sub-Q!!!! In His service, dale Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2007 Report Share Posted August 28, 2007 It is amazing the difference SubQ has made in my son. We went from a 8 hour IV to SubQ. Not only does he have more energy, but his IgG levels are higher than ever. He is now at 961. He is in PE now at school, and holds his own with all of the other kids all of the time, not just after an infusion. Also, something I didn't think about, no longer feels like he is " sick. " He told me that he is not afraid that he is dying now because he is not always at the hospital. That is a lot for a 11 year old boy to express on his own. > sassykay59@... wrote: > > > > > Has anyone had any luck with > > increased energy with SubQ?? That is one problem that lingers. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.