If we did a support bracelet - what would you want on it.

[Guest guest]

A few of us have been talking off line and we'd really like to combine

our efforts and start trying to raise awareness in other ways - maybe

by doing one of the support bracelets (like the Livestrong ones).

The idea is in it's infancy of course - but, if there were to be a

bracelet to come out of our efforts - what would you like to see on

it? Would you want it plain? Would you want a phrase on the back? If

so, what would you want?

I'm just trying to brainstorm and come up with ideas to present to

people who are interested in backing this - and we felt, what better

place to start than right here on the board with the people who are

touched by this the most....right?

Thanks for the input.

Stef

[Guest guest]

-Are you in MI? we are. just curious.

valarie

-- In , Reitz <reitzjennifer@...> wrote:

>

> I actually have been looking online for a bracelet of that sort.

The Michigan Immunodeficiency Foundation has put out a bracelet but it

is sold out. The web sight that has it is.... www.midf.org. That is

a great start for an idea. Please keep me informed.

>

> " picasso.moon " <picasso.moon@...> wrote: A few of us have

been talking off line and we'd really like to combine

> our efforts and start trying to raise awareness in other ways - maybe

> by doing one of the support bracelets (like the Livestrong ones).

> The idea is in it's infancy of course - but, if there were to be a

> bracelet to come out of our efforts - what would you like to see on

> it? Would you want it plain? Would you want a phrase on the back? If

> so, what would you want?

> I'm just trying to brainstorm and come up with ideas to present to

> people who are interested in backing this - and we felt, what better

> place to start than right here on the board with the people who are

> touched by this the most....right?

> Thanks for the input.

> Stef

>

>

>

>

>

>

> ---------------------------------

> Be a PS3 game guru.

> Get your game face on with the latest PS3 news and previews at

Games.

>

>

[Guest guest]

No, just put in PID awareness bracelet and found that. I'm in La.

osdbmom <osdbmom@...> wrote: -Are you in

MI? we are. just curious.

valarie

-- In , Reitz <reitzjennifer@...> wrote:

>

> I actually have been looking online for a bracelet of that sort.

The Michigan Immunodeficiency Foundation has put out a bracelet but it

is sold out. The web sight that has it is.... www.midf.org. That is

a great start for an idea. Please keep me informed.

>

> " picasso.moon " <picasso.moon@...> wrote: A few of us have

been talking off line and we'd really like to combine

> our efforts and start trying to raise awareness in other ways - maybe

> by doing one of the support bracelets (like the Livestrong ones).

> The idea is in it's infancy of course - but, if there were to be a

> bracelet to come out of our efforts - what would you like to see on

> it? Would you want it plain? Would you want a phrase on the back? If

> so, what would you want?

> I'm just trying to brainstorm and come up with ideas to present to

> people who are interested in backing this - and we felt, what better

> place to start than right here on the board with the people who are

> touched by this the most....right?

> Thanks for the input.

> Stef

>

>

>

>

>

>

> ---------------------------------

> Be a PS3 game guru.

> Get your game face on with the latest PS3 news and previews at

Games.

>

>

[Guest guest]

I've seen that one too but sadly, they've been sold out for quite a

while and I've emailed several times asking if they were going to

have more and there's been NO response.

SOOOOO.....I was just asking what you all thought of having one and

if you liked the idea, what would you like to see on it....

Thanks

Stef

A few of us have

> been talking off line and we'd really like to combine

> > our efforts and start trying to raise awareness in other ways -

maybe

> > by doing one of the support bracelets (like the Livestrong

ones).

> > The idea is in it's infancy of course - but, if there were to be

a

> > bracelet to come out of our efforts - what would you like to see

on

> > it? Would you want it plain? Would you want a phrase on the

back? If

> > so, what would you want?

> > I'm just trying to brainstorm and come up with ideas to present

to

> > people who are interested in backing this - and we felt, what

better

> > place to start than right here on the board with the people who

are

> > touched by this the most....right?

> > Thanks for the input.

> > Stef

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > Be a PS3 game guru.

> > Get your game face on with the latest PS3 news and previews at

> Games.

> >

> >

[Guest guest]

Sounds good to me...I think there was talk of this

before in the group but it never went anywhere....let

us know if you end up doing it...I would support it.

--- " picasso.moon " <picasso.moon@...> wrote:

> A few of us have been talking off line and we'd

> really like to combine

> our efforts and start trying to raise awareness in

> other ways - maybe

> by doing one of the support bracelets (like the

> Livestrong ones).

> The idea is in it's infancy of course - but, if

> there were to be a

> bracelet to come out of our efforts - what would you

> like to see on

> it? Would you want it plain? Would you want a

> phrase on the back? If

> so, what would you want?

> I'm just trying to brainstorm and come up with ideas

> to present to

> people who are interested in backing this - and we

> felt, what better

> place to start than right here on the board with the

> people who are

> touched by this the most....right?

> Thanks for the input.

> Stef

>

>

>

>

[Guest guest]

Wouldn't it be nice if we did have a bracelet that said something like

Primary Immunodeficiency Awareness and either the website for Primary

Immune or Modell

I created my own car bumper sticker with the above on it. I also have

the website phrase' know the sign of PI' on the bumper sticker as well.

I have had so many people stop to ask-it does raise awareness

- Mom to in CT

________________________________

From: [mailto: ] On Behalf

Of sarah larson

Sent: Friday, March 16, 2007 10:10 AM

Subject: Re: If we did a support bracelet - what would you want

on it.

Sounds good to me...I think there was talk of this

before in the group but it never went anywhere....let

us know if you end up doing it...I would support it.

--- " picasso.moon " <picasso.moon@...

<mailto:picasso.moon%40> > wrote:

> A few of us have been talking off line and we'd

> really like to combine

> our efforts and start trying to raise awareness in

> other ways - maybe

> by doing one of the support bracelets (like the

> Livestrong ones).

> The idea is in it's infancy of course - but, if

> there were to be a

> bracelet to come out of our efforts - what would you

> like to see on

> it? Would you want it plain? Would you want a

> phrase on the back? If

> so, what would you want?

> I'm just trying to brainstorm and come up with ideas

> to present to

> people who are interested in backing this - and we

> felt, what better

> place to start than right here on the board with the

> people who are

> touched by this the most....right?

> Thanks for the input.

> Stef

>

>

>

>

[Guest guest]

Wouldn't it be nice if we did have a bracelet that said something like

Primary Immunodeficiency Awareness and either the website for Primary

Immune or Modell

I created my own car bumper sticker with the above on it. I also have

the website phrase' know the sign of PI' on the bumper sticker as well.

I have had so many people stop to ask-it does raise awareness

- Mom to in CT

________________________________

From: [mailto: ] On Behalf

Of sarah larson

Sent: Friday, March 16, 2007 10:10 AM

Subject: Re: If we did a support bracelet - what would you want

on it.

Sounds good to me...I think there was talk of this

before in the group but it never went anywhere....let

us know if you end up doing it...I would support it.

--- " picasso.moon " <picasso.moon@...

<mailto:picasso.moon%40> > wrote:

> A few of us have been talking off line and we'd

> really like to combine

> our efforts and start trying to raise awareness in

> other ways - maybe

> by doing one of the support bracelets (like the

> Livestrong ones).

> The idea is in it's infancy of course - but, if

> there were to be a

> bracelet to come out of our efforts - what would you

> like to see on

> it? Would you want it plain? Would you want a

> phrase on the back? If

> so, what would you want?

> I'm just trying to brainstorm and come up with ideas

> to present to

> people who are interested in backing this - and we

> felt, what better

> place to start than right here on the board with the

> people who are

> touched by this the most....right?

> Thanks for the input.

> Stef

>

>

>

>

[Guest guest]

CONTACT _DAVE@..._ (mailto:DAVE@...) !!

PAM

TIM - CVID

************************************** AOL now offers free email to everyone.

Find out more about what's free from AOL at http://www.aol.com.

[Guest guest]

CONTACT _DAVE@..._ (mailto:DAVE@...) !!

PAM

TIM - CVID

************************************** AOL now offers free email to everyone.

Find out more about what's free from AOL at http://www.aol.com.

[Guest guest]

Thanks Pam....

I did that already several times without reply. I gave up. PLUS,

that's not the 'official' color for PID - at least not according to the

IDF. I think that's for Michigan - but not for the IDF.

SO, that's why I have come to you all here - to get input and opinions.

Thank you though for the contact, I appreciate it!

Take Care

Stef