Boys update

[Guest guest]

HI Sange,

was there a reason that they are not going to try the IVIG just yet?

It doesnt really seem like you are getting any relief by waiting--and

please dont take that like I think I know what all I am talking about.

I REALLY really didnt want to start the IVIG at all---but Brennan has

only been majorly sick once since May and hasnt been on steroids at

all since may either. He started IVIG in April. I know winter will

probably another story but for now, this is the best summer he has

ever had!! Your boys have been sick so often...........it certainly

cant hurt to try it and see if it helps.....you already know what not

doing it is doing..........I know you are doing your best and are

tired and frustrated.

I just about fell over this July when brennan started " that "

cough.....you know what I mean, you just knwo its coming---and its

going to be bad...........and I mean, he was sick, maybe two weeks

total with sinus/bronchitis/asthma stuff, round the clock treatments,

and ONE DOSE of zithro.......which is like, a total record for him!!!

NO er run, no prednisone, no 2nd/3rd/10th round of antibiotics!!

I hope you can get some sleep soon, and that the boys are doing better

soon too. I really do pray you can get this all figured out and find

whatever is going to be the best thing for Randy and Peyton to help them.

Valarie