Dehydration

[Guest guest]

,

I let Ashton play outside before an infusion. It was summer, and

she had been drinking tons. Well, they never could get a vein. Had

to ship some for next day delivery. Now, we have a port. She still

hydrates, but we don't have the find a vein problem.

I used to get so exhausted on IVIG day. She was so stressed, cried,

etc.. Now, it is so much easier, we numb the port, reassure her,

and go. Luckily, we are able to have our infusions at home with the

same nurse every time.

Seeing your child like that is terrible, but not getting them

treatment would be worse. I kept telling Ashton that she had to do

this, even if I had to hold her down. After she would go to bed, I

would lose it. Now that she feels better from the treatments, she

understands. She is actually growing more. She is still skinny,

but is over 5'2 " now. She still wishes she didn't have to have

IVIG, but understands.

Prayers to all.

L

mom to Ashton 12 CVID, Asthma, Dyslexia & Marina 10 Asthma,

Migraines