Guest guest Posted August 18, 2006 Report Share Posted August 18, 2006 Carie - welcome. Your doctor needs to sign a form requiring Hospital Homebound services. He needs to specify what illnesses your son should miss for and what contagious diseases he should be kept home for. The county will then be required to school him at your house (although it will only be a fraction of the time he would have gotten during regular school hours). He will also not be counted absent and will get credit for all work. If this starts now it will be much easier in middle and high school when grades and attendance truly matter. Do not sign anything granting them direct access to the doctors or medical records. Make sure that his doctor is aware that the school has had a change of heart and is being " difficult " . His office should be on guard as to who sends what forms for " release " of information. Do you know which Primary Immune Disease he has been diagnosed with? What part of the country are you from? What treatment have the doctors offered so far? Ursula - mom to (13) and Macey (11, CVID) http://www.primaryimmune.org http://www.jmfworld.org http://members.cox.net/maceyh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2006 Report Share Posted August 18, 2006 I am from Az in the US. The doctor is wanting to do double dose IVIG for his immune system. I do not know yet for the SCAD. He was diagnosed with common variable immunodeficiency, which is a type primary humoral immunodeficiency. I actually would like him in school when he or others are not ill, or at least after his IVIG treatments have taken effect of his immune system. They say I HAVE to sign the release. Do I not have to? _____ From: [mailto: ] On Behalf Of Ursula Holleman Sent: Friday, August 18, 2006 1:59 PM Subject: Re: My child Kreed Carie - welcome. Your doctor needs to sign a form requiring Hospital Homebound services. He needs to specify what illnesses your son should miss for and what contagious diseases he should be kept home for. The county will then be required to school him at your house (although it will only be a fraction of the time he would have gotten during regular school hours). He will also not be counted absent and will get credit for all work. If this starts now it will be much easier in middle and high school when grades and attendance truly matter. Do not sign anything granting them direct access to the doctors or medical records. Make sure that his doctor is aware that the school has had a change of heart and is being " difficult " . His office should be on guard as to who sends what forms for " release " of information. Do you know which Primary Immune Disease he has been diagnosed with? What part of the country are you from? What treatment have the doctors offered so far? Ursula - mom to (13) and Macey (11, CVID) http://www.primaryi <http://www.primaryimmune.org> mmune.org http://www.jmfworld <http://www.jmfworld.org> .org http://members. <http://members.cox.net/maceyh> cox.net/maceyh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2006 Report Share Posted August 18, 2006 No you do not have to. The form signed by the doctor (which allows him to fluctuate his attendance based on his exposure or sickness) will be enough. A small summary letter by the doctor outlining his diagnosis, prognosis and accomodations is nice to offer but NO you do not have to release his medical records to them. Will they just do the one time dose or will he start monthly treatment? Does he do a daily antibiotic? I am not familiar with SCAD? My daughter Macey is 11 and has CVID and my husband Les has CVID. Macey takes IgG weekly and an antibiotic, Les takes an antibiotic. We live in Georgia. Ursula - mom to (13) and Macey (11, CVID) http://www.primaryimmune.org http://www.jmfworld.org http://members.cox.net/maceyh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2006 Report Share Posted August 18, 2006 It will be a monthly treatment yes. _____ From: [mailto: ] On Behalf Of Ursula Holleman Sent: Friday, August 18, 2006 2:22 PM Subject: Re: My child Kreed No you do not have to. The form signed by the doctor (which allows him to fluctuate his attendance based on his exposure or sickness) will be enough. A small summary letter by the doctor outlining his diagnosis, prognosis and accomodations is nice to offer but NO you do not have to release his medical records to them. Will they just do the one time dose or will he start monthly treatment? Does he do a daily antibiotic? I am not familiar with SCAD? My daughter Macey is 11 and has CVID and my husband Les has CVID. Macey takes IgG weekly and an antibiotic, Les takes an antibiotic. We live in Georgia. Ursula - mom to (13) and Macey (11, CVID) http://www.primaryi <http://www.primaryimmune.org> mmune.org http://www.jmfworld <http://www.jmfworld.org> .org http://members. <http://members.cox.net/maceyh> cox.net/maceyh Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2006 Report Share Posted August 19, 2006 You need to get an IEP put into place ASAP! Contact the Special Education Coordinator (or teacher) for your district. The IEP is a LEGAL document that requires the school to provide for your child's needs. You need to figure out what you want to have available for your child to accommodate his needs. Be sure to include any tutoring you might want -- one family put into their IEP that their child will get one hour of tutoring (during school time) per day missed at school. You might need homebound schooling. The only document the schools need from your doctors is a letter. Good-luck. Pam Tim - CVID age 16 Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.