SCIG & weight loss

[Guest guest]

Anyone out there run into any problems with their child loosing

weight while on Vivaglobin?? I know it sounds crazy, but Reagon was

doing great and finally putting a few pounds on when she was off

IVIG then we started her on Vivaglobin in May and she has gone from

35 lb. to 31 in 3 months!! She has not been sick and I have taken

her to her gastro. dr and her pulmonologist..neither can find

anything wrong with her. She just has no appetite at all. She

looks horrible. She started school last week and my friends who had

not seen her since May freaked out when they saw her. Everyone

commented that she looked the worst they have ever seen her look.

She has been so pale and her little face looks sooo thin. I'm

trying every supplement I can think of, but she just picks at

everything and then says she's just not hungry. Of course her

gastro. dr. said if it keeps up he wants to put a feeding tube in

and I'm thinking this is crazy! I've gone from having a perfectly

healthy child that was the most active in her class last year to one

that needs a feeding tube in 3 months??? Her blood work doesn't show

anything either so I am just at a loss and very frustrated!!! Any

ideas??

Becki Rion

Reagon 5 yrs. old CVID