Guest guest Posted September 22, 2006 Report Posted September 22, 2006 HUGS>>>>> LEt me know if there is anything that I can do..Will try to call you tonight or this weekend... LINDA Quoting Pattie Curran <catholicmomof3@...>: > I called the ped's office to let them know I needed to speak to her this > evening and let them know I was faxing a letter for her to read before she > called. it is easier to cut and paste the letter than to explain all over > again about out day. MRI went well. He was still until the very end.so he > had to repeat the last 7 minutes. my letter > > > > Saw the neurosurgeon & he wants to go ahead with neurosurgery for fatty > terminale (lumbar laminectomy for release of tethered cord). and I > discussed with him the various options that might be available. Dr. X (our > understanding) feels that there really are no other options at this point. > He spoke with Dr. X prior to our coming in to visit, as well. We brought up > the possibility of more testing to determine other possible causes. I told > him that you had spoken to a neurologist who suggested we might do an EMG. > His feeling was that doing an EMG would not be helpful/the data gathered > would not be helpful because we still would not have other options (my > understanding). I asked about doing an EEG and how we could be sure that > there wasn't some sort of " brain related issue " involved. He said that he > doesn't feel an EEG is needed. Something about neurogenic bladders being > seizure related or ph would be having seizures if it were a problem? I > asked if the exams everyone has done helped to rule that out, as well. I > apologize if I have that last point completely wrong.but the main point is > that he doesn't feel further testing would give us helpful information. He > feels we'd be right back where we are, so to speak. > > > > He did speak to us in detail about the surgery. 50% are " cured " from their > neurogenic bladder. He did say that they cannot say why this is. ph > would be in the hospital for 3-4 days. 2 weeks out of school (of course we > homeschool) and then 6 weeks total recovery before he can return to normal > activities. We talked about the potential risks (bleeding, infection and > neurologic deficits). He feels that this surgery is an easy surgery because > it is so far below the nerve endings in the spine. As far as infection, he > asked if J had any previous surgeries (no). We talked about his propensity > toward developing infections and told him we did not have a protocol in > place for surgical procedures. He asked which doctor he should contact > regarding this. and I decided that you were the best one for him to > contact (hope you don't mind). He asked who his hematologist was and we > explained that Dr. Hem is his hematologist, but is now in clinic only one > day a week and can sometimes be difficult to get in touch with. > > > > Would you mind calling me when you get a chance? I would really like to > hear your input on this matter before we go ahead with the surgery. Do you > think 50% success rate is successful enough to give it a try? Many other > questions, of course. We did not set the surgery in stone. They set up a > date (Oct 20th) and we are to call them back once we decide (soon, I > suppose). When looking at our schedule, Oct 20 would work out because it > would be after football season for ph and it would give him plenty of > recovery time before he started winter basketball. He really wants to play > basketball (his first time) & we had told him that he could. Practice > starts in Dec. > > > > Thanks so much for everything you do. I am anxious to hear what you have > to say. > > > > > > Peace Be With You, > > > > Pattie > > Don't let your past dictate who you are now, but let it be a part of who you > will become. > > > > > > Quote
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